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{{Short description|British disability reform advocate (born 1959)}}
{{EngvarB|date=September 2014}} {{EngvarB|date=September 2014}}
{{Use dmy dates|date=September 2014}} {{Use dmy dates|date=September 2014}}
{{Infobox person {{Infobox officeholder
| honorific-prefix = ]
| honorific_prefix =
| name = The Baroness Campbell<br>of Surbiton | name = The Baroness Campbell of Surbiton
| honorific_suffix = {{post-nominals|country=GBR|DBE|size=100%}} | honorific_suffix = {{post-nominals|country=GBR|size=100%|DBE}}
| image = File:Official portrait of Baroness Campbell of Surbiton crop 2.jpg | image = Official portrait of Baroness Campbell of Surbiton (cropped).jpg
| birth_date = {{Birth date and age|df=yes|1959|4|19}} | caption = Campbell in 2018
| office = ]<br />]
⚫ | birth_place = London, England
| term_start = 30 March 2007<br />]age
⚫ | death_date =
| death_place = | term_end =
| death_cause = | birth_name = Jane Susan Campbell
| birth_date = {{Birth date and age|df=yes|1959|04|19}}
⚫ | occupation =
⚫ | birth_place = London, England
⚫ | known_for = Campaigner and adviser for disability reforms
| title = Lady Campbell of Surbiton | death_date =
| website = | death_place =
⚫ | death_cause =
⚫ | module = {{Listen| embed=yes |filename = Baroness Jane Campbell BBC Radio4 Desert Island Discs 05 August 2012 b01lh96q.flac |title = Campbell's voice |type = speech |description = from the BBC programme '']'', 5 August 2012<ref name="BBC-b01lh96q">{{Cite episode |title= Baroness Campbell |series= Desert Island Discs |url= http://www.bbc.co.uk/programmes/b01lh96q |accessdate= 18 January 2014 |station= BBC Radio 4 |date= 5 August 2012 }}</ref> }}
⚫ | occupation =
| party = ]
⚫ | known_for = Campaigner and adviser for disability reforms
| website = {{URL|https://baronesscampbellofsurbiton.uk/}}
⚫ | module = {{Listen| embed=yes |filename = Baroness Jane Campbell BBC Radio4 Desert Island Discs 05 August 2012 b01lh96q.flac |title = Campbell's voice |type = speech |description = from the BBC programme '']'', 5 August 2012<ref name="BBC-b01lh96q">{{Cite episode |title= Baroness Campbell |series= Desert Island Discs |url= http://www.bbc.co.uk/programmes/b01lh96q |access-date= 18 January 2014 |station= BBC Radio 4 |date= 5 August 2012 }}</ref> }}
}} }}


'''Jane Susan Campbell, Baroness Campbell of Surbiton''', {{post-nominals|country=GBR|DBE|sep=,|size=100%}} (born 19 April 1959)<ref name=livingwithdignity> Baroness Campbell's official website, accessed 25 April 2016</ref> is a British disability rights campaigner and ]. She was Commissioner of the ] (EHRC) from 2006–08. She also served as Chair of the Disability Committee which led on to the EHRC Disability Programme. She was the former Chair of the ]. She was Commissioner of the ] until it was wound up in October 2006. '''Jane Susan Campbell, Baroness Campbell of Surbiton''', {{post-nominals|country=GBR|sep=,|DBE}} (born 19 April 1959), is a British disability rights campaigner and a ] in the ]. She was Commissioner of the ] (EHRC), and served as the Chair of the Disability Committee which led on to the EHRC Disability Programme. She was the former Chair of the ]. She was a Commissioner at the ] (DRC).


==Early life== ==Early life==
Campbell grew up in ]. Her father, Ron, was a heating engineer and her mother, Jesse, was a window dresser in a gown shop.{{citation needed|date=April 2016}} At the age of nine months Campbell did not have the strength in her neck muscles to hold her head up, and exhibited little movement by the age of one year. Her mother consulted the family doctor who referred her to the local ].{{citation needed|date=April 2016}} Campbell grew up in ]. Her father, Ron, was a heating engineer and her mother, Jesse, was a window dresser in a gown shop. At the age of nine months Campbell did not have the strength in her neck muscles to hold her head up, and exhibited little movement by the age of one year. Her mother consulted the family doctor who referred her to the local ].<ref name=":1">{{Cite news |last=Cole |first=Moreton |date=9 Dec 2012 |title=Disabled people are the best problem solvers |pages=21 |work=Sunday Telegraph}}</ref><ref name=":2">{{Cite news |last=Webster |first=Lucy |date=9 Dec 2022 |title=From the wheelchair-using Black Panther to the 'cripple suffragette' - 10 heroes of the disability rights movement |work=The Guardian }}</ref>


She was subsequently referred to ] where she was diagnosed with ] and given a prognosis that she would not live to reach the age of two years; however, it was her younger sister, Sally, who died from the same disease before that age. As a child she was prone to getting severe chest infections, which occurred two or three times per year, sometimes requiring hospitalisation.<ref name=thigui-JC>{{cite episode|url=http://www.bbc.co.uk/programmes/b007vqlf|title =''The House I Grew Up In'', with Baroness Campbell |station=BBC Radio 4| series=The House I Grew Up In|airdate=1 September 2009}}{{failedverification|date=December 2019}}</ref> She was subsequently referred to ] where she was diagnosed with ] and given a prognosis that she would not live to reach the age of two years; however, it was her younger sister, Sally, who died from the same disease before that age. As a child she was prone to getting severe chest infections, which occurred two or three times per year, sometimes requiring hospitalisation.<ref name=":3">{{Cite news |last=Condon |first=Kate |date=18 March 2001 |title=Cash: My Money: In control - and causing trouble |pages=36 |work=The Observer}}</ref><ref name=":4">{{Cite news |last=Salman |first=Saba |date=13 July 2015 |title=Disability Rights campaigner Jane Campbell - In the Lords, I'm still a radical activist |pages=37 |work=The Guardian}}</ref>


==Education== ==Education==
Campbell went to a segregated school for disabled children where academic achievement was not the top priority. Her best friend, who had a hole in the heart, died at the age of 13 years. She left school at the age of 16 years with no qualifications and hardly able to read or write, but she nevertheless regarded herself as quite intelligent.<ref name=guardian>{{cite news|url=https://www.theguardian.com/society/2009/jul/11/lady-campbell-disability-peer|title=I'm bossy. I'm ambitious. I love ideas. And I love life: Dea Birkett meets Jane Campbell, a Life Peer with spinal muscular atrophy|last=Birkett|first=Dea|date=11 July 2009|publisher=Guardian News and Media|work=The Guardian|accessdate=2 September 2009}}</ref> Campbell went to a segregated school for disabled children where academic achievement was not the top priority. Her best friend, who had a hole in the heart, died at the age of 13 years. She left school at the age of 16 years with no qualifications and hardly able to read or write, but she nevertheless regarded herself as quite intelligent.<ref name=guardian>{{cite news|url=https://www.theguardian.com/society/2009/jul/11/lady-campbell-disability-peer|title=I'm bossy. I'm ambitious. I love ideas. And I love life: Dea Birkett meets Jane Campbell, a Life Peer with spinal muscular atrophy|last=Birkett|first=Dea|date=11 July 2009|publisher=Guardian News and Media|work=The Guardian|access-date=2 September 2009}}</ref>


In 1975 she enrolled at ], ], ]; a special college for disabled students where there was an academic environment, and where she was generally able to enjoy the life-style of an ordinary teenager.<ref name=thigui-JC/> While there she gained six O-levels and three A-levels within three years.<ref name=guardian/> From Coventry she went to ], and then became an ] at the ] with a dissertation on ].<ref name=guardian/> In 1975 she enrolled at ], ], ]; a special college for disabled students where there was an academic environment, and where she was generally able to enjoy the life-style of an ordinary teenager.<ref name="thigui-JC">{{cite episode |url=http://www.bbc.co.uk/programmes/b007vqlf |title=''The House I Grew Up In'', with Baroness Campbell |station=BBC Radio 4 |series=The House I Grew Up In |airdate=1 September 2009}}</ref> While there she gained six O-levels and three A-levels within three years.<ref name=guardian/> From Coventry she went to ], and then became an ] at the ] with a dissertation on ].<ref name=guardian/>


==Career== ==Career==
Following a year in 1983 as an administrator at the ] (RADAR), in 1984 she started her career in local government as Equal Opportunities Liaison Officer, in ] (GLC) followed by Disability Training Development Officer role, London Boroughs Disability Resource Team (DRT) where she ran the Disability Equality and Awareness training unit.<ref name=":3" />
{{BLP sources section|date=August 2020}}
In 1996 Campbell co-founded and directed the ] (NCIL){{Citation needed|date=March 2021}} where she worked for six years before being appointed by the Minister for Social Care to chair SCIE. As chair at the ] and co-director at NCIL, Campbell saw these organisations through pioneering work in the field of independent living, civil rights, peer counselling and equal opportunities. In 1996 she co-authored a book entitled ''Disability Politics'', and was appointed a ] (DBE) in the Queen's 2001 Birthday Honours.


In 1987 she was appointed as a Principal Disability Advisor for ]. After a year she returned to the DRT as Director of Training where she remained until she established her own disability consultancy in 1994. In the early 1990s she co-chaired the ] (BCODP) with Lucille Lusk.<ref name=":0">{{Cite book |last=Campbell |first=Jane |url=https://www.worldcat.org/oclc/35596876 |title=Disability politics : understanding our past, changing our future |date=1998 |publisher=Routledge |others=Michael Oliver |isbn=0-415-07998-5 |location=London |oclc=35596876}}</ref><ref name=":1" /><ref name=":2" />
⚫ In 2003, Campbell was awarded an honorary doctorate in law from ] and another in social sciences from ]. Currently,{{when|date=December 2019}} she is exploring the notion of a human rights perspective of social care.{{fact|date=December 2019}}


In 1996 there was a spin-out organisation from BCODP - the ]<ref>{{Cite web |title=NATIONAL CENTRE FOR INDEPENDENT LIVING (NCIL) people - Find and update company information - GOV.UK |url=https://find-and-update.company-information.service.gov.uk/company/04701388/officers |access-date=2023-03-16 |website=find-and-update.company-information.service.gov.uk |language=en}}</ref> (NCIL) - which she co-founded and co-directed with Frances Hassler. Campbell worked at NCIL for six years before being appointed by the Minister for Social Care to chair the ].<ref name=":1" />
⚫ In February 2007, it was announced by the ] that she would be made a ] and would sit as a ]. Her ] was ] as '''Baroness Campbell of Surbiton''', ''of ] in the ]'' on 30 March 2007.<ref>{{London Gazette |issue=58292|date=3 April 2007 |page=4860}}</ref>

Also in 1996 she co-authored a textbook entitled ''Disability Politics'',<ref name=":0" /> and in 2000 she was awarded the ] (MBE), then in 2006 she was appointed a ] (DBE) in the Queen's Birthday Honours.<ref name=":5">{{Cite book |last=Hunt |first=Judy |url=https://www.worldcat.org/oclc/1108503896 |title=No limits : the disabled people's movement : a radical history |date=2019 |isbn=978-1-913148-02-7 |location=Manchester |oclc=1108503896}}</ref>

⚫ In 2003, Campbell was awarded an honorary doctorate in law from ] and another in social sciences from ].<ref name=":2" /><ref name=":1" />

She was Commissioner of the ] until it was wound up in October 2006.<ref name=":2" /><ref name=":4" />

From 2006 to 2008, she was commissioner of the ] (EHRC). She also served as chair of the Disability Committee which led on to the EHRC Disability Programme.<ref name=":3" /><ref name=":6">{{Cite news |last=Merrick |first=Rob |date=25 March 2020 |title=Disabled people will be seen as 'expendable' under coronavirus emergency powers, Paralympian fears |work=The Independent }}</ref>

⚫ On 3 April 2007, after it was announced by the ] she became a ] and would sit as a ]. Her ] was ] as '''Baroness Campbell of Surbiton''', ''of ] in the ]'' on 30 March 2007.<ref>{{London Gazette |issue=58292|date=3 April 2007 |page=4860}}</ref>

In her campaigning record, items of public note include the creation and later closure of the ] (ILF),<ref name=":4" /><ref name=":5" /> the creation of the Community Care (]) Act 1996,<ref name=":5" /><ref>{{Cite news |last=Kendra |first=Inman |date=2 Sep 1998 |title=Disability: I'm in charge |pages=8 |work=The Guardian}}</ref> the loss of some disabled people's welfare benefits,<ref>{{Cite news |last=Ashley |first=Jackie |date=23 March 2016 |title=Try life in a wheelchair and then tell me disabled people have equal rights |pages=45 |work=The Guardian}}</ref> the disproportionate impact of the ] on disabled people's lives,<ref name=":6" /> and attempts in Parliament and the appeal courts to change the law on ] as it impacts on disabled people.<ref name=":1" />


==Personal life== ==Personal life==
Campbell met her first husband, Graham Ingleson, at ]; they married when she was 27 years old. He was a ], and six weeks before the wedding they discovered that he had contracted HIV from a blood transfusion, from which he later died. She currently lives in ] with her second husband Roger Symes, a businessman.<ref name=guardian/> Campbell met her first husband, Graham Ingleson, at ]; they married in 1987 when she was 27 years old. He was a ], and six weeks before the wedding they discovered that he had contracted HIV from a blood transfusion following a car accident in 1985, from which he later died in December 1993.<ref name=":1" /><ref>{{Cite news |date=9 Oct 2019 |title=It's time for truth about the scandal of infected blood |pages=26 |work=The Times }}</ref> In 2009 she lived in ] with her second husband Roger Symes, a businessman.<ref name=guardian/>


Because of her physical weakness Campbell requires help to do almost everything and needs a ventilator to help her breathe at night. She uses an electrically powered ]<ref name=thigui-JC/> and has a computer on which she types with one finger. As of 2009, she received a direct payment from the local authority for her care needs, which enabled her to employ five female carers to help her with the routine activities of daily living.<ref name=thigui-JC/> Because of her physical weakness Campbell requires help to do almost everything and needs a ventilator to help her breathe at night. She uses an electrically powered ]<ref name=thigui-JC/> and has a computer on which she types with one finger. As of 2009, she received a direct payment from the local authority for her care needs, which enabled her to employ five female carers to help her with the routine activities of daily living.<ref name=thigui-JC/>
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Latest revision as of 17:43, 15 December 2024

British disability reform advocate (born 1959)

The Right HonourableThe Baroness Campbell of SurbitonDBE
Campbell in 2018
Member of the House of Lords
Lord Temporal
Incumbent
Assumed office
30 March 2007
Life peerage
Personal details
BornJane Susan Campbell
(1959-04-19) 19 April 1959 (age 65)
London, England
Political partyCrossbench
Known forCampaigner and adviser for disability reforms
Websitebaronesscampbellofsurbiton.uk
Campbell's voice from the BBC programme Desert Island Discs, 5 August 2012

Jane Susan Campbell, Baroness Campbell of Surbiton, DBE (born 19 April 1959), is a British disability rights campaigner and a life peer in the House of Lords. She was Commissioner of the Equality and Human Rights Commission (EHRC), and served as the Chair of the Disability Committee which led on to the EHRC Disability Programme. She was the former Chair of the Social Care Institute for Excellence (SCIE). She was a Commissioner at the Disability Rights Commission (DRC).

Early life

Campbell grew up in New Malden. Her father, Ron, was a heating engineer and her mother, Jesse, was a window dresser in a gown shop. At the age of nine months Campbell did not have the strength in her neck muscles to hold her head up, and exhibited little movement by the age of one year. Her mother consulted the family doctor who referred her to the local Kingston Hospital.

She was subsequently referred to Great Ormond Street Hospital where she was diagnosed with spinal muscular atrophy and given a prognosis that she would not live to reach the age of two years; however, it was her younger sister, Sally, who died from the same disease before that age. As a child she was prone to getting severe chest infections, which occurred two or three times per year, sometimes requiring hospitalisation.

Education

Campbell went to a segregated school for disabled children where academic achievement was not the top priority. Her best friend, who had a hole in the heart, died at the age of 13 years. She left school at the age of 16 years with no qualifications and hardly able to read or write, but she nevertheless regarded herself as quite intelligent.

In 1975 she enrolled at Hereward College, Tile Hill, Coventry; a special college for disabled students where there was an academic environment, and where she was generally able to enjoy the life-style of an ordinary teenager. While there she gained six O-levels and three A-levels within three years. From Coventry she went to Hatfield Polytechnic, and then became an MA at the University of Sussex with a dissertation on Sylvia Pankhurst.

Career

Following a year in 1983 as an administrator at the Royal Association for Disability and Rehabilitation (RADAR), in 1984 she started her career in local government as Equal Opportunities Liaison Officer, in Greater London Council (GLC) followed by Disability Training Development Officer role, London Boroughs Disability Resource Team (DRT) where she ran the Disability Equality and Awareness training unit.

In 1987 she was appointed as a Principal Disability Advisor for London Borough of Hounslow. After a year she returned to the DRT as Director of Training where she remained until she established her own disability consultancy in 1994. In the early 1990s she co-chaired the British Council of Disabled People (BCODP) with Lucille Lusk.

In 1996 there was a spin-out organisation from BCODP - the National Centre for Independent Living (NCIL) - which she co-founded and co-directed with Frances Hassler. Campbell worked at NCIL for six years before being appointed by the Minister for Social Care to chair the Social Care Institute for Excellence (SCIE).

Also in 1996 she co-authored a textbook entitled Disability Politics, and in 2000 she was awarded the Member of the British Empire (MBE), then in 2006 she was appointed a Dame Commander of the Order of the British Empire (DBE) in the Queen's Birthday Honours.

In 2003, Campbell was awarded an honorary doctorate in law from Bristol University and another in social sciences from Sheffield Hallam University.

She was Commissioner of the Disability Rights Commission until it was wound up in October 2006.

From 2006 to 2008, she was commissioner of the Equality and Human Rights Commission (EHRC). She also served as chair of the Disability Committee which led on to the EHRC Disability Programme.

On 3 April 2007, after it was announced by the House of Lords Appointments Commission she became a life peer and would sit as a crossbencher. Her peerage was gazetted as Baroness Campbell of Surbiton, of Surbiton in the Royal Borough of Kingston upon Thames on 30 March 2007.

In her campaigning record, items of public note include the creation and later closure of the Independent Living Fund (ILF), the creation of the Community Care (Direct Payments) Act 1996, the loss of some disabled people's welfare benefits, the disproportionate impact of the COVID-19 pandemic on disabled people's lives, and attempts in Parliament and the appeal courts to change the law on assisted dying as it impacts on disabled people.

Personal life

Campbell met her first husband, Graham Ingleson, at Hereward College; they married in 1987 when she was 27 years old. He was a haemophiliac, and six weeks before the wedding they discovered that he had contracted HIV from a blood transfusion following a car accident in 1985, from which he later died in December 1993. In 2009 she lived in Tolworth with her second husband Roger Symes, a businessman.

Because of her physical weakness Campbell requires help to do almost everything and needs a ventilator to help her breathe at night. She uses an electrically powered wheelchair and has a computer on which she types with one finger. As of 2009, she received a direct payment from the local authority for her care needs, which enabled her to employ five female carers to help her with the routine activities of daily living.

References

  1. "Baroness Campbell". Desert Island Discs. 5 August 2012. BBC Radio 4. Retrieved 18 January 2014.
  2. ^ Cole, Moreton (9 December 2012). "Disabled people are the best problem solvers". Sunday Telegraph. p. 21.
  3. ^ Webster, Lucy (9 December 2022). "From the wheelchair-using Black Panther to the 'cripple suffragette' - 10 heroes of the disability rights movement". The Guardian .
  4. ^ Condon, Kate (18 March 2001). "Cash: My Money: In control - and causing trouble". The Observer. p. 36.
  5. ^ Salman, Saba (13 July 2015). "Disability Rights campaigner Jane Campbell - In the Lords, I'm still a radical activist". The Guardian. p. 37.
  6. ^ Birkett, Dea (11 July 2009). "I'm bossy. I'm ambitious. I love ideas. And I love life: Dea Birkett meets Jane Campbell, a Life Peer with spinal muscular atrophy". The Guardian. Guardian News and Media. Retrieved 2 September 2009.
  7. ^ "The House I Grew Up In, with Baroness Campbell". The House I Grew Up In. 1 September 2009. BBC Radio 4.
  8. ^ Campbell, Jane (1998). Disability politics : understanding our past, changing our future. Michael Oliver. London: Routledge. ISBN 0-415-07998-5. OCLC 35596876.
  9. "NATIONAL CENTRE FOR INDEPENDENT LIVING (NCIL) people - Find and update company information - GOV.UK". find-and-update.company-information.service.gov.uk. Retrieved 16 March 2023.
  10. ^ Hunt, Judy (2019). No limits : the disabled people's movement : a radical history. Manchester. ISBN 978-1-913148-02-7. OCLC 1108503896.{{cite book}}: CS1 maint: location missing publisher (link)
  11. ^ Merrick, Rob (25 March 2020). "Disabled people will be seen as 'expendable' under coronavirus emergency powers, Paralympian fears". The Independent .
  12. "No. 58292". The London Gazette. 3 April 2007. p. 4860.
  13. Kendra, Inman (2 September 1998). "Disability: I'm in charge". The Guardian. p. 8.
  14. Ashley, Jackie (23 March 2016). "Try life in a wheelchair and then tell me disabled people have equal rights". The Guardian. p. 45.
  15. "It's time for truth about the scandal of infected blood". The Times . 9 October 2019. p. 26.
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