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{{Autism rights movement}} | {{Autism rights movement}} | ||
] is a popular symbol among autism rights advocates. The colors symbolize the autism spectrum.<ref name="symbol" >{{cite web |first=Debra |last=Muzikar |title=The Autism Puzzle Piece: A symbol that's going to stay or go? |url=http://the-art-of-autism.com/the-autism-puzzle-piece-a-symbol-of-what/ |website=The Art of Autism |date=20 April 2015 |access-date=1 April 2017 |archive-date=1 April 2017 |archive-url=https://web.archive.org/web/20170401234134/http://the-art-of-autism.com/the-autism-puzzle-piece-a-symbol-of-what/ |url-status=live }}</ref>]] | ] is a popular symbol among autism rights advocates. The colors symbolize the autism spectrum.<ref name="symbol" >{{cite web |first=Debra |last=Muzikar |title=The Autism Puzzle Piece: A symbol that's going to stay or go? |url=http://the-art-of-autism.com/the-autism-puzzle-piece-a-symbol-of-what/ |website=The Art of Autism |date=20 April 2015 |access-date=1 April 2017 |archive-date=1 April 2017 |archive-url=https://web.archive.org/web/20170401234134/http://the-art-of-autism.com/the-autism-puzzle-piece-a-symbol-of-what/ |url-status=live }}</ref>]] | ||
The '''autism rights movement''', also known as the '''autistic acceptance movement''', is a ] allied with the ]. It emphasizes the ], viewing ] as a set of naturally occurring variations in ], a disability with both strengths and weaknesses, rather than as a disease to be cured or a disorder |
The '''autism rights movement''', also known as the '''autistic acceptance movement''', is a ] allied with the ]. It emphasizes the ], viewing ] as a set of naturally occurring variations in ], a disability with both strengths and weaknesses, rather than as a disease to be cured or a medical disorder.<ref name="Solomon">{{cite news |last=Solomon |first=Andrew |date=2008-05-25 |title=The autism rights movement |url=https://nymag.com/news/features/47225/ |url-status=live |archive-url=https://web.archive.org/web/20080527025140/http://nymag.com/news/features/47225/ |archive-date=27 May 2008 |access-date=2008-05-27 |work=]}}</ref> This paradigm contradicts and diverges from the ], without opposing all aspects of it.<ref>{{cite journal |last1=Dwyer |first1=Patrick |title=The Neurodiversity Approach(es): What Are They and What Do They Mean for Researchers? |journal=Human Development |date=2022 |volume=66 |issue=2 |pages=73–92 |doi=10.1159/000523723 |pmid=36158596 |pmc=9261839 }}</ref><ref>{{cite journal |last1=Ne’eman |first1=Ari |last2=Pellicano |first2=Elizabeth |title=Neurodiversity as Politics |journal=Human Development |date=2022 |volume=66 |issue=2 |pages=149–157 |doi=10.1159/000524277 |pmid=36714278 |pmc=9881465 }}</ref><ref>{{cite book |doi=10.1007/978-981-13-8437-0_21 |chapter=Critiques of the Neurodiversity Movement |title=Autistic Community and the Neurodiversity Movement |date=2020 |last1=Russell |first1=Ginny |pages=287–303 |isbn=978-981-13-8436-3 }}</ref> | ||
Central to the autism rights movement's beliefs is the right to self-determine if one is part of the autism community, that autistic people should be seen as the primary voice for people with autism, and that autistic people have the final say in what language should be used when talking about autism. A common motto used by the autism rights movement, borrowed from the disability rights movement, is the phrase "nothing about us without us".{{ |
Central to the autism rights movement's beliefs is the right to self-determine if one is part of the autism community, that autistic people should be seen as the primary voice for people with autism, and that autistic people have the final say in what language should be used when talking about autism. A common motto used by the autism rights movement, borrowed from the disability rights movement, is the phrase "nothing about us without us".{{sfn|Kapp|2020|p=131}} | ||
Autism rights movement advocates strive for widespread acceptance of people with autism, as well as the traits and behaviors (e.g. ], lack of eye contact, and ]) associated with |
Autism rights movement advocates strive for widespread acceptance of people with autism, as well as the traits and behaviors (e.g. ], lack of eye contact, and ]) associated with autism, for autistic people to socialize on their own terms,<ref name="Autreat"> {{Webarchive|url=https://web.archive.org/web/20011214035623/http://ani.autistics.org/autreat.html|date=14 December 2001}} (23 May 2008) AIN.</ref> and to mitigate the ].<ref>{{cite journal |last1=Chapple |first1=Melissa |last2=Davis |first2=Philip |last3=Billington |first3=Josie |last4=Myrick |first4=Joe Anthony |last5=Ruddock |first5=Cassie |last6=Corcoran |first6=Rhiannon |title=Overcoming the Double Empathy Problem Within Pairs of Autistic and Non-autistic Adults Through the Contemplation of Serious Literature |journal=Frontiers in Psychology |date=27 July 2021 |volume=12 |doi=10.3389/fpsyg.2021.708375 |doi-access=free |pmid=34385964 |pmc=8354525 }}</ref><ref>{{cite journal |last1=Finke |first1=Erinn H. |last2=Dunn |first2=Danny H. |title=Neurodiversity and double empathy: can empathy disconnects be mitigated to support autistic belonging? |journal=Disability & Society |date=23 December 2023 |pages=1–24 |doi=10.1080/09687599.2023.2295802 }}</ref> The movement seeks to reform and foster autism-oriented interventions and therapies in accordance with neurodiversity principles to emphasize coping skills for challenging situations,<ref name="Bigthink">{{cite web |last1=Ratner |first1=Paul |date=10 July 2016 |title=Should Autism Be Cured or Is "Curing" Offensive? |url=https://bigthink.com/paul-ratner/should-autism-be-cured-or-is-curing-offfensive |url-status=live |archive-url=https://web.archive.org/web/20190616072634/https://bigthink.com/paul-ratner/should-autism-be-cured-or-is-curing-offfensive |archive-date=16 June 2019 |access-date=16 June 2019 |website=] |language=en}}</ref> promote adaptive skills, and promote psychological well-being and mental health.<ref>{{Cite journal |last1=Leadbitter |first1=Kathy |last2=Buckle |first2=Karen Leneh |last3=Ellis |first3=Ceri |last4=Dekker |first4=Martijn |date=2021-04-12 |title=Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice |journal=] |volume=12 |doi=10.3389/fpsyg.2021.635690 |doi-access=free |pmid=33912110 |pmc=8075160 }}</ref><ref>{{Cite journal |last1=Lerner |first1=Matthew D. |last2=Gurba |first2=Ava N. |last3=Gassner |first3=Dena L. |date=2023 |title=A framework for neurodiversity-affirming interventions for autistic individuals |journal=] |volume=91 |issue=9 |pages=503–504 |doi=10.1037/ccp0000839 |pmc=10430771 |pmid=37578755 }}</ref><ref>{{Cite journal |last1=Pantazakos |first1=Themistoklis |last2=Vanaken |first2=Gert-Jan |date=2023-09-04 |title=Addressing the autism mental health crisis: the potential of phenomenology in neurodiversity-affirming clinical practices |journal=] |volume=14 |doi=10.3389/fpsyg.2023.1225152 |doi-access=free |pmid=37731874 |pmc=10507173 }}</ref><ref>{{Cite journal |last1=Dallman |first1=Aaron |last2=Williams |first2=Kathryn |last3=Villa |first3=Lauren |date=2022-04-15 |title=Neurodiversity-Affirming Practices are a Moral Imperative for Occupational Therapy |url=https://scholarworks.wmich.edu/ojot/vol10/iss2/13/ |journal=The Open Journal of Occupational Therapy |volume=10 |issue=2 |pages=1–9 |doi=10.15453/2168-6408.1937 |doi-access=free }}</ref><ref>{{Cite journal |last1=Cherewick |first1=Megan |last2=Matergia |first2=Michael |date=2024-09-01 |title=Neurodiversity in Practice: a Conceptual Model of Autistic Strengths and Potential Mechanisms of Change to Support Positive Mental Health and Wellbeing in Autistic Children and Adolescents |journal=Advances in Neurodevelopmental Disorders |volume=8 |issue=3 |pages=408–422 |doi=10.1007/s41252-023-00348-z |doi-access=free }}</ref><ref>{{cite journal |last1=Dwyer |first1=Patrick |last2=Gurba |first2=Ava N |last3=Kapp |first3=Steven K |last4=Kilgallon |first4=Elizabeth |last5=Hersh |first5=Lynnette H |last6=Chang |first6=David S |last7=Rivera |first7=Susan M |last8=Gillespie-Lynch |first8=Kristen |title=Community views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions |journal=Autism |date=18 September 2024 |doi=10.1177/13623613241273029 |pmid=39291753 }}</ref> | ||
The movement criticizes therapies and interventions |
The movement criticizes therapies and interventions that—implicitly or explicitly—encourage ] behaviors associated with autism and imitating neurotypical social behaviors,<ref>{{cite journal |last1=Ne'eman |first1=Ari |title=When Disability Is Defined by Behavior, Outcome Measures Should Not Promote "Passing" |journal=AMA Journal of Ethics |date=July 2021 |volume=23 |issue=7 |pages=E569–575 |doi=10.1001/amajethics.2021.569 |pmid=34351268 |pmc=8957386 }}</ref><ref>{{cite journal |last1=Schuck |first1=Rachel K. |last2=Geng |first2=Alicia |last3=Doss |first3=Yvette |last4=Lin |first4=Florence |last5=Crousore |first5=Hannah |last6=Baiden |first6=Kaitlynn M. P. |last7=Dwyer |first7=Patrick |last8=Williams |first8=Zachary J. |last9=Wang |first9=Mian |title=A qualitative investigation into autistic adults' perspectives on intervention goals for autistic children |journal=Neurodiversity |date=January 2024 |volume=2 |doi=10.1177/27546330241266718 }}</ref> as higher tendencies of camouflaging, ], or passing as neurotypical are associated with worse mental health outcomes according to most recent studies and multiple systematic reviews<ref>{{cite journal |last1=Zhuang |first1=Sici |last2=Tan |first2=Diana Weiting |last3=Reddrop |first3=Susan |last4=Dean |first4=Lydia |last5=Maybery |first5=Murray |last6=Magiati |first6=Iliana |title=Psychosocial factors associated with camouflaging in autistic people and its relationship with mental health and well-being: A mixed methods systematic review |journal=Clinical Psychology Review |date=November 2023 |volume=105 |pages=102335 |doi=10.1016/j.cpr.2023.102335 |pmid=37741059 }}</ref><ref>{{cite journal |last1=Klein |first1=Jessica |last2=Krahn |first2=Rachel |last3=Howe |first3=Stephanie |last4=Lewis |first4=Jessi |last5=McMorris |first5=Carly |last6=Macoun |first6=Sarah |title=A systematic review of social camouflaging in autistic adults and youth: Implications and theory |journal=Development and Psychopathology |date=7 October 2024 |pages=1–15 |doi=10.1017/S0954579424001159 |pmid=39370528 }}</ref><ref>{{cite journal |last1=Khudiakova |first1=Valeria |last2=Russell |first2=Emmeline |last3=Sowden-Carvalho |first3=Sophie |last4=Surtees |first4=Andrew D.R. |title=A systematic review and meta-analysis of mental health outcomes associated with camouflaging in autistic people |journal=Research in Autism Spectrum Disorders |date=October 2024 |volume=118 |pages=102492 |doi=10.1016/j.rasd.2024.102492 }}</ref> and some autistic adults who experienced some forms of behavioral interventions reported adverse effects such as detrimental effects on their mental health due to increased camouflaging or autistic masking.<ref>{{cite journal |last1=Anderson |first1=Laura K |title=Autistic experiences of applied behavior analysis |journal=Autism |date=April 2023 |volume=27 |issue=3 |pages=737–750 |doi=10.1177/13623613221118216 |pmid=35999706 }}</ref><ref>{{cite journal |last1=McGill |first1=Owen |last2=Robinson |first2=Anna |title='Recalling hidden harms': autistic experiences of childhood applied behavioural analysis (ABA) |journal=Advances in Autism |date=26 October 2021 |volume=7 |issue=4 |pages=269–282 |doi=10.1108/aia-04-2020-0025 |url=https://strathprints.strath.ac.uk/73753/1/McGill_Robinson_AA_2020_autistic_experiences_of_childhood_Applied_Behavioural_Analysis.pdf }}</ref><ref>{{cite journal |last1=McCormack |first1=Lynne |last2=Wong |first2=Sze Wing |last3=Campbell |first3=Linda E. |title='If I don't Do It, I'm Out of Rhythm and I Can't Focus As Well': Positive and Negative Adult Interpretations of Therapies Aimed at 'Fixing' Their Restricted and Repetitive Behaviours in Childhood |journal=Journal of Autism and Developmental Disorders |date=September 2023 |volume=53 |issue=9 |pages=3435–3448 |doi=10.1007/s10803-022-05644-6 |pmid=35781855 |pmc=10465631 }}</ref> | ||
The movement also advocates for people with autism to be recognized as a ] rather than as having a disorder. Within the autism rights movement, autism is often compared to different variations in human biology not categorized as disorders, such as ].<ref name=" |
The movement also advocates for people with autism to be recognized as a ] rather than as having a disorder. Within the autism rights movement, autism is often compared to different variations in human biology not categorized as disorders, such as ].<ref name="Jaarsma20122">{{cite journal |last1=Jaarsma |first1=Pier |last2=Welin |first2=Stellan |date=March 2012 |title=Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement |journal=Health Care Analysis |volume=20 |issue=1 |pages=20–30 |doi=10.1007/s10728-011-0169-9 |pmid=21311979}}</ref> | ||
==History== | ==History== | ||
=== 1980s–1990s: Autistic-run organizations, newsletters, and conferences === | === 1980s–1990s: Autistic-run organizations, newsletters, and conferences === | ||
] is credited as the first person to communicate the autism rights perspective.<ref name="Solomon" /> In the early 1990s, Sinclair frequently participated in autism conferences led by parent-centric organizations but found them "overwhelmingly hostile from both sensory and emotional standpoints".<ref name="Dinh">{{Cite book | last = Dinh | first = Ann | title = Don't Mourn for Us: The Autistic Life of Jim Sinclair and an Extraordinary Story of Neurodiversity | date = 2024 | publisher = Independently published | |
] is credited as the first person to communicate the autism rights perspective.<ref name="Solomon" /> In the early 1990s, Sinclair frequently participated in autism conferences led by parent-centric organizations but found them "overwhelmingly hostile from both sensory and emotional standpoints".<ref name="Dinh">{{Cite book | last = Dinh | first = Ann | title = Don't Mourn for Us: The Autistic Life of Jim Sinclair and an Extraordinary Story of Neurodiversity | date = 2024 | publisher = Independently published |asin=B0DG6T67TD }}{{pn|date=December 2024}}{{self-published inline|date=December 2024}}</ref> In 1992, Sinclair co-founded the ] (ANI) with ] and ], an organization that publishes newsletters "written by and for autistic people." | ||
The ANI newsletter, ''Our Voice'', had its first issue distributed online in November 1992 to an audience of primarily neurotypical professionals and parents of young autistic children. The number of autistic people in the organization increased over the years, and ANI eventually became a communication network for like-minded autistic people.<ref name="ANIHist"> | The ANI newsletter, ''Our Voice'', had its first issue distributed online in November 1992 to an audience of primarily neurotypical professionals and parents of young autistic children. The number of autistic people in the organization increased over the years, and ANI eventually became a communication network for like-minded autistic people.<ref name="ANIHist"> | ||
{{cite web |url=http://web.syr.edu/~jisincla/History_of_ANI.html |title=Autism Network International: The Development of a Community and its Culture |author=]. |date=January 2005|publisher=Jim Sinclair's personal website |access-date=2007-11-07 |archive-url = https://web.archive.org/web/20090126110607/http://web.syr.edu/~jisincla/History_of_ANI.html |archive-date = 2009-01-26}}</ref> Sinclair wrote the essay "Don't Mourn for Us" (1993) in the ANI newsletter (Volume 1, Number 3) with an anti-cure perspective on autism.<ref name="2DontMourn">{{cite web | {{cite web |url=http://web.syr.edu/~jisincla/History_of_ANI.html |title=Autism Network International: The Development of a Community and its Culture |author=]. |date=January 2005|publisher=Jim Sinclair's personal website |access-date=2007-11-07 |archive-url = https://web.archive.org/web/20090126110607/http://web.syr.edu/~jisincla/History_of_ANI.html |archive-date = 2009-01-26}}{{self-published inline|date=December 2024}}</ref> Sinclair wrote the essay "Don't Mourn for Us" (1993) in the ANI newsletter (Volume 1, Number 3) with an anti-cure perspective on autism.<ref name="2DontMourn">{{cite web | ||
|url=http://www.autreat.com/dont_mourn.html | |url=http://www.autreat.com/dont_mourn.html | ||
|title=Don't mourn for us | |title=Don't mourn for us | ||
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}}</ref> | }}</ref> | ||
ANI established the yearly retreat "]" in 1996. Autreat was a retreat and conference held in the ] specifically for autistic people<ref>]. {{webarchive |url=https://web.archive.org/web/20090126110607/http://web.syr.edu/~jisincla/History_of_ANI.html |date=26 January 2009 }}. Retrieved 12 November 2005.</ref> and was held every year from 1996 to 2013, except in 2001. The theme of the first conference in 1996 was "Celebrating Autistic Culture", and it had close to 60 participants. It was hosted at Camp Bristol Hills in ].<ref name="ValuablePart">{{Cite web|url=https://slate.com/technology/2015/09/the-neurodiversity-movement-autism-is-a-minority-group-neurotribes-excerpt.html|title=Autism Is a Valuable Part of Humanity's Genetic Legacy|last=Silberman|first=Steve|date=2015-09-23|website=] |access-date=2019-08-03|archive-date=14 December 2017|archive-url=https://web.archive.org/web/20171214112226/http://www.slate.com/articles/health_and_science/science/2015/09/the_neurodiversity_movement_autism_is_a_minority_group_neurotribes_excerpt.html|url-status=live}}</ref> The success of Autreat later inspired similar retreats, such as the ]'s conference, ], in the United States;<ref>{{Cite web|url=http://autisticcommunity.org/faqs/|title=FAQs – Association for Autistic Community|website=Association for Autistic Community|language=en-US|access-date=2019-08-03|archive-date=3 August 2019|archive-url=https://web.archive.org/web/20190803190500/http://autisticcommunity.org/faqs/|url-status=live}}</ref> ] in the ];<ref>{{Cite web|url=http://www.autscape.org/about/concept|title=Concept|website=Autscape|access-date=2019-08-03|archive-date=3 August 2019|archive-url=https://web.archive.org/web/20190803190502/http://www.autscape.org/about/concept|url-status=live}}</ref> and ] in ].<ref>{{ |
ANI established the yearly retreat "]" in 1996. Autreat was a retreat and conference held in the ] specifically for autistic people<ref>]. {{webarchive |url=https://web.archive.org/web/20090126110607/http://web.syr.edu/~jisincla/History_of_ANI.html |date=26 January 2009 }}. Retrieved 12 November 2005.{{self-published inline|date=December 2024}}</ref> and was held every year from 1996 to 2013, except in 2001. The theme of the first conference in 1996 was "Celebrating Autistic Culture", and it had close to 60 participants. It was hosted at Camp Bristol Hills in ].<ref name="ValuablePart">{{Cite web|url=https://slate.com/technology/2015/09/the-neurodiversity-movement-autism-is-a-minority-group-neurotribes-excerpt.html|title=Autism Is a Valuable Part of Humanity's Genetic Legacy|last=Silberman|first=Steve|date=2015-09-23|website=] |access-date=2019-08-03|archive-date=14 December 2017|archive-url=https://web.archive.org/web/20171214112226/http://www.slate.com/articles/health_and_science/science/2015/09/the_neurodiversity_movement_autism_is_a_minority_group_neurotribes_excerpt.html|url-status=live}}</ref> The success of Autreat later inspired similar retreats, such as the ]'s conference, ], in the United States;<ref>{{Cite web|url=http://autisticcommunity.org/faqs/|title=FAQs – Association for Autistic Community|website=Association for Autistic Community|language=en-US|access-date=2019-08-03|archive-date=3 August 2019|archive-url=https://web.archive.org/web/20190803190500/http://autisticcommunity.org/faqs/|url-status=live}}</ref> ] in the ];<ref>{{Cite web|url=http://www.autscape.org/about/concept|title=Concept|website=Autscape|access-date=2019-08-03|archive-date=3 August 2019|archive-url=https://web.archive.org/web/20190803190502/http://www.autscape.org/about/concept|url-status=live}}</ref> and ] in ].<ref>{{cite journal |last1=Bertilsdotter Rosqvist |first1=Hanna |last2=Brownlow |first2=Charlotte |last3=O’Dell |first3=Lindsay |title=Mapping the social geographies of autism – online and off-line narratives of neuro-shared and separate spaces |journal=Disability & Society |date=April 2013 |volume=28 |issue=3 |pages=367–379 |doi=10.1080/09687599.2012.714257 |url=https://oro.open.ac.uk/35175/2/AB8F664.pdf }}</ref> | ||
], an autistic computer programmer from the ], launched an e-mail list called "Independent Living on the Autism Spectrum", or "InLv", in 1996. The list also welcomed those with similar conditions, such as ], ], and ].<ref name="ValuablePart" /> American writer ] was a member of the list<ref name="ValuablePart" /> and described it as embracing "neurological pluralism" in a 1997 article in '']''.<ref name="BlumeNYT">{{cite news |url=https://www.nytimes.com/1997/06/30/business/autistics-freed-from-face-to-face-encounters-are-communicating-in-cyberspace.html|title=Autistics, freed from face-to-face encounters, are communicating in cyberspace|last=Blume|first=Harvey|website=]|date=30 June 1997 |access-date=8 November 2007 |url-status=live |archive-url=https://web.archive.org/web/20080126085905/http://query.nytimes.com/gst/fullpage.html?res=9803E7DC1F31F933A05755C0A961958260 |archive-date=26 January 2008 }}</ref> Blume discussed the concept of neurological diversity with ]n sociologist ].<ref>{{Cite web|url=http://www.myspectrumsuite.com/meet-judy-singer/|title=Meet Judy Singer, Neurodiversity Pioneer|last=Craft|first=Samantha|website=My Spectrum Suite|language=en|access-date=2019-08-03|archive-date=6 June 2019|archive-url=https://web.archive.org/web/20190606235437/http://www.myspectrumsuite.com/meet-judy-singer/|url-status=live}}</ref> The term "]" was first published in Judy Singer's 1998 Honours thesis<ref name="OddPeopleIn">{{cite thesis |last=Singer |first=Judy |title=Odd People In: The Birth of Community Amongst People on the Autistic Spectrum: A personal exploration of a New Social Movement based on Neurological Diversity |degree=Bachelor of Arts Social Science (Honours) |place=Sydney |year=1998 |publisher=Faculty of Humanities and Social Science University of Technology |url=https://www.academia.edu/27033194 |access-date=29 October 2022 |archive-date=15 November 2022 |archive-url=https://web.archive.org/web/20221115023408/https://www.academia.edu/27033194 |url-status=dead }}</ |
], an autistic computer programmer from the ], launched an e-mail list called "Independent Living on the Autism Spectrum", or "InLv", in 1996. The list also welcomed those with similar conditions, such as ], ], and ].<ref name="ValuablePart" /> American writer ] was a member of the list<ref name="ValuablePart" /> and described it as embracing "neurological pluralism" in a 1997 article in '']''.<ref name="BlumeNYT">{{cite news |url=https://www.nytimes.com/1997/06/30/business/autistics-freed-from-face-to-face-encounters-are-communicating-in-cyberspace.html|title=Autistics, freed from face-to-face encounters, are communicating in cyberspace|last=Blume|first=Harvey|website=]|date=30 June 1997 |access-date=8 November 2007 |url-status=live |archive-url=https://web.archive.org/web/20080126085905/http://query.nytimes.com/gst/fullpage.html?res=9803E7DC1F31F933A05755C0A961958260 |archive-date=26 January 2008 }}</ref> Blume discussed the concept of neurological diversity with ]n sociologist ].<ref>{{Cite web|url=http://www.myspectrumsuite.com/meet-judy-singer/|title=Meet Judy Singer, Neurodiversity Pioneer|last=Craft|first=Samantha|website=My Spectrum Suite|language=en|access-date=2019-08-03|archive-date=6 June 2019|archive-url=https://web.archive.org/web/20190606235437/http://www.myspectrumsuite.com/meet-judy-singer/|url-status=live}}</ref> The term "]" was first published in Judy Singer's 1998 Honours thesis<ref name="OddPeopleIn">{{cite thesis |last=Singer |first=Judy |title=Odd People In: The Birth of Community Amongst People on the Autistic Spectrum: A personal exploration of a New Social Movement based on Neurological Diversity |degree=Bachelor of Arts Social Science (Honours) |place=Sydney |year=1998 |publisher=Faculty of Humanities and Social Science University of Technology |url=https://www.academia.edu/27033194 |access-date=29 October 2022 |archive-date=15 November 2022 |archive-url=https://web.archive.org/web/20221115023408/https://www.academia.edu/27033194 |url-status=dead }}</ref>{{sfn|Singer|2017|p={{pn|date=December 2024}}}} and in Harvey Blume's 1998 article in '']''.<ref name="auto2">Blume, Harvey (1998). {{Webarchive|url=https://web.archive.org/web/20190604091348/https://www.theatlantic.com/magazine/archive/1998/09/neurodiversity/305909/ |date=4 June 2019 }}. On the neurological underpinnings of geekdom. The Atlantic, September 1998.</ref> | ||
=== 2000s–2010s: The rise of self-advocacy === | === 2000s–2010s: The rise of self-advocacy === | ||
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{{main|Neurodiversity}} | {{main|Neurodiversity}} | ||
Judy Singer coined the term ''neurodiversity'' in the late 1990s as a middle ground between the two dominating models of disability, the ] and the ], dismissing both of them as insufficiently capturing the solution for—and cause of—disability.<ref>{{Cite journal |last=Dwyer |first=Patrick |date=February 22, 2022 |title=The Neurodiversity Approach(es): What Are They and What Do They Mean for Researchers? |journal=Human Development |volume=66 |issue=2 |pages=73–92 |doi=10.1159/000523723 |
Judy Singer coined the term ''neurodiversity'' in the late 1990s as a middle ground between the two dominating models of disability, the ] and the ], dismissing both of them as insufficiently capturing the solution for—and cause of—disability.<ref>{{Cite journal |last=Dwyer |first=Patrick |date=February 22, 2022 |title=The Neurodiversity Approach(es): What Are They and What Do They Mean for Researchers? |journal=Human Development |volume=66 |issue=2 |pages=73–92 |doi=10.1159/000523723 |pmc=9261839 |pmid=36158596 }}</ref>{{sfn|Singer|2017|p=10}} | ||
Steve Silberman describes neurodiversity as seeing the virtue of different conditions while taking into consideration that the conditions also convey challenges.<ref name=".ca">{{Cite web |last1=Teitel |first1=Emma |last2=Silberman |first2=Steve |date=2015-08-25 |title=Steve Silberman on autism and 'neurodiversity' |url=https://www.macleans.ca/society/science/steve-silberman-on-autism-and-the-neurodiversity-movement/ |url-status=live |archive-url=https://web.archive.org/web/20190803145501/https://www.macleans.ca/society/science/steve-silberman-on-autism-and-the-neurodiversity-movement/ |archive-date=3 August 2019 |access-date=2019-08-03 |website=Maclean's |publisher=Rogers Media |
Steve Silberman describes neurodiversity as seeing the virtue of different conditions while taking into consideration that the conditions also convey challenges.<ref name=".ca">{{Cite web |last1=Teitel |first1=Emma |last2=Silberman |first2=Steve |date=2015-08-25 |title=Steve Silberman on autism and 'neurodiversity' |url=https://www.macleans.ca/society/science/steve-silberman-on-autism-and-the-neurodiversity-movement/ |url-status=live |archive-url=https://web.archive.org/web/20190803145501/https://www.macleans.ca/society/science/steve-silberman-on-autism-and-the-neurodiversity-movement/ |archive-date=3 August 2019 |access-date=2019-08-03 |website=Maclean's |publisher=Rogers Media |location=Toronto}}</ref> Autistics for Autistics, a self-advocacy group, describes neurodiversity this way: "Neurodiversity means that—like biodiversity—all of us have a role to play in society ...and we should be valued for who we are. Included in public life, such as school and employment. For nonverbal autistics, this also means equal and fair access to communication, such as AAC."<ref>{{Cite web|url=https://a4aontario.com/2019/04/27/raising-the-neurodiversity-flag-at-toronto-city-hall/|title=Raising the Neurodiversity Flag at Toronto City Hall!|last=a4aontario|date=2019-04-27|website=A4A Ontario|language=en-US|access-date=2019-11-16|archive-date=16 November 2019|archive-url=https://web.archive.org/web/20191116232330/https://a4aontario.com/2019/04/27/raising-the-neurodiversity-flag-at-toronto-city-hall/|url-status=live}}</ref> | ||
The autistic self-advocacy movement, made up of autistic individuals, works from a social model of disability perspective. For example, the Autistic Self-Advocacy Network describes its mandate as "to advance the principles of the disability rights movement with regard to autism".<ref>{{Cite web |last= |first= |date=26 May 2011 |title=About ASAN |url=https://autisticadvocacy.org/about-asan/ |url-status=live |archive-url=https://web.archive.org/web/20190809175020/http://autisticadvocacy.org/about-asan/ |archive-date=9 August 2019 |access-date=2019-11-16 |website=Autistic Self Advocacy Network |language=en-us}}</ref> | The autistic self-advocacy movement, made up of autistic individuals, works from a social model of disability perspective. For example, the Autistic Self-Advocacy Network describes its mandate as "to advance the principles of the disability rights movement with regard to autism".<ref>{{Cite web |last= |first= |date=26 May 2011 |title=About ASAN |url=https://autisticadvocacy.org/about-asan/ |url-status=live |archive-url=https://web.archive.org/web/20190809175020/http://autisticadvocacy.org/about-asan/ |archive-date=9 August 2019 |access-date=2019-11-16 |website=Autistic Self Advocacy Network |language=en-us}}</ref> | ||
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There is no leader of the neurodiversity movement, and little academic research has been conducted on it as a social phenomenon. As such, proponents of the neurodiversity approach have heterogeneous beliefs<ref name="Bloomsbury" /> but are consistent in the view that autism cannot be separated from an autistic person.<ref name="Solomon" /> The movement opposes therapies that aim to make children "indistinguishable from their peers".<ref name="Solomon" /> Instead, they advocate for accommodations in schools and work environments<ref name="Future">{{Cite web|url=https://greatergood.berkeley.edu/article/item/does_neurodiversity_have_a_future|title=Does Neurodiversity Have a Future?|last=Nerenberg|first=Jenara|date=2016-11-21|website=] |access-date=2019-08-03|archive-date=3 August 2019|archive-url=https://web.archive.org/web/20190803145502/https://greatergood.berkeley.edu/article/item/does_neurodiversity_have_a_future|url-status=live}}</ref> and ] when making decisions that affect them.<ref>{{Cite web|url=https://autisticadvocacy.org/about-asan/position-statements/|title=Position Statements|website=Autistic Self Advocacy Network|date=28 May 2011|language=en|access-date=2019-08-03|archive-date=16 April 2016|archive-url=https://web.archive.org/web/20160416032240/http://autisticadvocacy.org/policy-advocacy/position-statements/|url-status=dead}}</ref> Neurodiversity advocates oppose researching a "cure" for autism, and instead support research that helps autistic people thrive as they are.<ref name="Solomon" /> | There is no leader of the neurodiversity movement, and little academic research has been conducted on it as a social phenomenon. As such, proponents of the neurodiversity approach have heterogeneous beliefs<ref name="Bloomsbury" /> but are consistent in the view that autism cannot be separated from an autistic person.<ref name="Solomon" /> The movement opposes therapies that aim to make children "indistinguishable from their peers".<ref name="Solomon" /> Instead, they advocate for accommodations in schools and work environments<ref name="Future">{{Cite web|url=https://greatergood.berkeley.edu/article/item/does_neurodiversity_have_a_future|title=Does Neurodiversity Have a Future?|last=Nerenberg|first=Jenara|date=2016-11-21|website=] |access-date=2019-08-03|archive-date=3 August 2019|archive-url=https://web.archive.org/web/20190803145502/https://greatergood.berkeley.edu/article/item/does_neurodiversity_have_a_future|url-status=live}}</ref> and ] when making decisions that affect them.<ref>{{Cite web|url=https://autisticadvocacy.org/about-asan/position-statements/|title=Position Statements|website=Autistic Self Advocacy Network|date=28 May 2011|language=en|access-date=2019-08-03|archive-date=16 April 2016|archive-url=https://web.archive.org/web/20160416032240/http://autisticadvocacy.org/policy-advocacy/position-statements/|url-status=dead}}</ref> Neurodiversity advocates oppose researching a "cure" for autism, and instead support research that helps autistic people thrive as they are.<ref name="Solomon" /> | ||
An analysis of data from the ] and ] in 2017 found evidence that self-advocates with autism or intellectual disabilities are rarely involved in leadership or decision-making within organisations.<ref>{{ |
An analysis of data from the ] and ] in 2017 found evidence that self-advocates with autism or intellectual disabilities are rarely involved in leadership or decision-making within organisations.<ref>{{cite journal |last1=Petri |first1=Gabor |last2=Beadle-Brown |first2=Julie |last3=Bradshaw |first3=Jill |title='More Honoured in the Breach than in the Observance'—Self-Advocacy and Human Rights |journal=Laws |date=16 November 2017 |volume=6 |issue=4 |pages=26 |doi=10.3390/laws6040026 |doi-access=free }}</ref> It also showed that poverty, unpaid positions at disability organisations, and lack of support are significant barriers for most autistic people, including autistic people with an intellectual disability who wish to self-advocate.<ref>{{cite journal |last1=Petri |first1=Gabor |last2=Beadle-Brown |first2=Julie |last3=Bradshaw |first3=Jill |title='Even a Self-Advocate Needs to Buy Milk' – Economic Barriers to Self-Advocacy in the Autism and Intellectual Disability Movement |journal=Scandinavian Journal of Disability Research |date=5 July 2021 |volume=23 |issue=1 |pages=180 |doi=10.16993/sjdr.738 |doi-access=free }}</ref> | ||
==Perspectives== | ==Perspectives== | ||
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=== Opposition to cure and prevention === | === Opposition to cure and prevention === | ||
The autism rights movement opposes "curing" autism,<ref name="Harmon" /> criticizing the idea as misguided and dangerous. Instead, autism is viewed as a way of life and advocate acceptance over a search for a cure.<ref name="Woodford">Woodford, Gillian. {{Webarchive|url=https://web.archive.org/web/20160303202254/http://www.nationalreviewofmedicine.com/issue/2006/04_30/3_patients_practice05_8.html|date=2016-03-03}} ''National Review of Medicine''. Volume 3 Number 8. 2006-04-30. Retrieved 2008-02-10.</ref><ref name="SanerDisease">{{cite news |author=Saner E |date=2007-08-07 |title=It is not a disease, it is a way of life |url=http://society.guardian.co.uk/health/story/0,,2143123,00.html |url-status=live |archive-url=https://web.archive.org/web/20070820055604/http://society.guardian.co.uk/health/story/0%2C%2C2143123%2C00.html |archive-date=20 August 2007 |access-date=2007-08-07 |work=The Guardian}}</ref> The autism rights movement is a part of the larger disability rights movement and acknowledges the ]. |
The autism rights movement opposes "curing" autism,<ref name="Harmon" /> criticizing the idea as misguided and dangerous. Instead, autism is viewed as a way of life and advocate acceptance over a search for a cure.<ref name="Woodford">Woodford, Gillian. {{Webarchive|url=https://web.archive.org/web/20160303202254/http://www.nationalreviewofmedicine.com/issue/2006/04_30/3_patients_practice05_8.html|date=2016-03-03}} ''National Review of Medicine''. Volume 3 Number 8. 2006-04-30. Retrieved 2008-02-10.</ref><ref name="SanerDisease">{{cite news |author=Saner E |date=2007-08-07 |title=It is not a disease, it is a way of life |url=http://society.guardian.co.uk/health/story/0,,2143123,00.html |url-status=live |archive-url=https://web.archive.org/web/20070820055604/http://society.guardian.co.uk/health/story/0%2C%2C2143123%2C00.html |archive-date=20 August 2007 |access-date=2007-08-07 |work=The Guardian}}</ref> The autism rights movement is a part of the larger disability rights movement and acknowledges the ].{{sfn|Waltz|2013|p={{pn|date=December 2024}}}} Within the model, struggles faced by autistic people are viewed as discrimination rather than deficiencies. | ||
Autism rights activists are opposed to attempts to eliminate autism genes, and argue that doing so would decrease ]. In particular, there is opposition to prenatal ] of autism in fetuses, which some believe might be possible in the future.<ref name="Harmon" /> On 23 February 2005, Joseph Buxbaum of the ] at the ] said there could be a prenatal test for autism within 10 years.<ref>{{cite web |author=Herrera, Sue |date=2005-02-23 |title=Autism research focuses on early intervention: Genetic clues sought in fight against disorder |url=https://www.nbcnews.com/id/7013251 |url-status=dead |archive-url=https://web.archive.org/web/20171107060725/http://www.nbcnews.com/id/7013251 |archive-date=7 November 2017 |access-date=2007-11-07 |publisher=NBC News}}</ref> However, the ] have proven to be extremely complex.<ref name="Freitag">{{cite journal |author=CM |year=2007 |title=The genetics of autistic disorders and its clinical relevance: a review of the literature |journal=Mol Psychiatry |volume=12 |issue=1 |pages=2–22 |doi=10.1038/sj.mp.4001896 |pmid=17033636 |
Autism rights activists are opposed to attempts to eliminate autism genes, and argue that doing so would decrease ]. In particular, there is opposition to prenatal ] of autism in fetuses, which some believe might be possible in the future.<ref name="Harmon" /> On 23 February 2005, Joseph Buxbaum of the ] at the ] said there could be a prenatal test for autism within 10 years.<ref>{{cite web |author=Herrera, Sue |date=2005-02-23 |title=Autism research focuses on early intervention: Genetic clues sought in fight against disorder |url=https://www.nbcnews.com/id/7013251 |url-status=dead |archive-url=https://web.archive.org/web/20171107060725/http://www.nbcnews.com/id/7013251 |archive-date=7 November 2017 |access-date=2007-11-07 |publisher=NBC News}}</ref> However, the ] have proven to be extremely complex.<ref name="Freitag">{{cite journal |author=CM |year=2007 |title=The genetics of autistic disorders and its clinical relevance: a review of the literature |journal=Mol Psychiatry |volume=12 |issue=1 |pages=2–22 |doi=10.1038/sj.mp.4001896 |pmid=17033636 |doi-access=}}</ref> A wider debate on the ] involved in the possible elimination of a ] that has advantages as well as disadvantages, has focused on possible negative effects of tampering with ].<ref>{{cite web |author=Caplan, Arthur |date=2005-05-31 |title=Would you have allowed Bill Gates to be born? Advances in prenatal genetic testing pose tough questions |url=https://www.nbcnews.com/id/wbna7899821 |url-status=live |archive-url=https://web.archive.org/web/20180625043346/http://www.nbcnews.com/id/7899821/ |archive-date=25 June 2018 |access-date=2007-11-07 |publisher=]}}</ref> | ||
Some people{{who|date=September 2024}} lament that professionals, such as social workers, may discourage autistic people from having children.<ref name="TrivediProud" /> Activists are concerned that the "ultimate cure will be a genetic test to prevent autistic children from being born"<ref name="Harmon" /> and that most fetuses with so-called "autism genes" would be aborted if prenatal tests for autism are developed.<ref name="SanerDisease" /> | Some people{{who|date=September 2024}} lament that professionals, such as social workers, may discourage autistic people from having children.<ref name="TrivediProud" /> Activists are concerned that the "ultimate cure will be a genetic test to prevent autistic children from being born"<ref name="Harmon" /> and that most fetuses with so-called "autism genes" would be aborted if prenatal tests for autism are developed.<ref name="SanerDisease" /> | ||
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=== Autistic culture === | === Autistic culture === | ||
{{further| |
{{further|Societal and cultural aspects of autism}} | ||
] | ] | ||
Some autistic activists{{Which|date=November 2024}} suggest that life with autism is |
Some autistic activists{{Which|date=November 2024}} suggest that life with autism is like being born among people who speak a different language, follow a religion or philosophy one does not share, and live a lifestyle that feels alien. Social media, meetups, and specific professions are spaces where autistic people connect and may share common interests.<ref>{{Cite web |title=Social/Relationships |url=https://www.autism-society.org/living-with-autism/autism-through-the-lifespan/adulthood/socialrelationships/ |url-status=dead |archive-url=https://web.archive.org/web/20210214112737/https://www.autism-society.org/living-with-autism/autism-through-the-lifespan/adulthood/socialrelationships/ |archive-date=14 February 2021 |access-date=2021-03-18 |website=Autism Society |language=en-US}}</ref> | ||
=== Self advocacy and inclusion in decision-making === | === Self advocacy and inclusion in decision-making === | ||
A common theme expressed among autism rights activists and neurodiversity groups{{Which|date=November 2024}} is that they are different from parent- and professional-led organizations and conferences that dominate the autism scene. | A common theme expressed among autism rights activists and neurodiversity groups{{Which|date=November 2024}} is that they are different from parent- and professional-led organizations and conferences that dominate the autism scene. | ||
In 2003, autism researcher ] criticizes the norm of allowing parents to speak on behalf of their autistic children at conferences to the exclusion of autistics: "With the happy and proud collaboration of governments, courts, researchers, service providers, and funding bodies |
In 2003, autism researcher ] criticizes the norm of allowing parents to speak on behalf of their autistic children at conferences to the exclusion of autistics: "With the happy and proud collaboration of governments, courts, researchers, service providers, and funding bodies", she says, "parents have succeeded in removing autistics from the vicinity of any important discussions or decisions." She says that the exclusion results in policy and treatment decisions being made solely by individuals who do not directly experience autism.<ref name="Bettelheim">{{cite web |author-link=Michelle Dawson |last=Dawson |first=Michelle |title=Bettelheim's Worst Crime: Autism and the Epidemic of Irresponsibility |url=http://www.sentex.net/~nexus23/md_01.html |publisher=Michelle Dawson's No Autistics Allowed |date=2003-09-09 |access-date=2007-11-07| archive-url= https://web.archive.org/web/20071031003227/http://www.sentex.net/~nexus23/md_01.html| archive-date= 31 October 2007 | url-status= live}}</ref> | ||
In 2005, Autism rights activist ] states that autism conferences are traditionally geared toward neurotypical parents and professionals, and that to an autistic person they may be quite "hostile" in terms of sensory stimulation and rigidity.<ref name="ANIHist" /> | In 2005, Autism rights activist ] states that autism conferences are traditionally geared toward neurotypical parents and professionals, and that to an autistic person they may be quite "hostile" in terms of sensory stimulation and rigidity.<ref name="ANIHist" /> | ||
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] (UN) human rights experts have expressed that people with autism are particularly at risk for harmful medical practices and some approaches amount to "ill-treatment or torture."<ref>{{Cite web|url=https://www.ohchr.org/en/press-releases/2015/04/discrimination-against-autistic-persons-rule-rather-exception-un-rights |title=Discrimination against autistic persons, the rule rather than the exception – UN rights experts| date=2015-04-02|website=Office of the High Commissioner for Human Rights |publisher = United Nations |language=en|access-date=2020-02-12|archive-date=9 June 2022|archive-url=https://web.archive.org/web/20220609031200/https://www.ohchr.org/en/press-releases/2015/04/discrimination-against-autistic-persons-rule-rather-exception-un-rights|url-status=live}}</ref> | ] (UN) human rights experts have expressed that people with autism are particularly at risk for harmful medical practices and some approaches amount to "ill-treatment or torture."<ref>{{Cite web|url=https://www.ohchr.org/en/press-releases/2015/04/discrimination-against-autistic-persons-rule-rather-exception-un-rights |title=Discrimination against autistic persons, the rule rather than the exception – UN rights experts| date=2015-04-02|website=Office of the High Commissioner for Human Rights |publisher = United Nations |language=en|access-date=2020-02-12|archive-date=9 June 2022|archive-url=https://web.archive.org/web/20220609031200/https://www.ohchr.org/en/press-releases/2015/04/discrimination-against-autistic-persons-rule-rather-exception-un-rights|url-status=live}}</ref> | ||
Canadian autism self-advocate ] testified in court against government funding of ABA therapy.<ref name="Dawson">{{cite web |title=In Support of Michelle Dawson and Her Work |url=http://archive.autistics.org/library/dawson.html |url-status=dead |archive-url=https://web.archive.org/web/20120215181832/http://archive.autistics.org/library/dawson.html |archive-date=2012-02-15 |access-date=2012-03-21 |publisher=Autistics.org}}</ref> The Canadian organization Autistics for Autistics (A4A) has outlined some of the main objections to ABA from autistic self-advocates.<ref>{{Cite web |last=a4aontario |date=2018-05-24 |title=Why we oppose ABA in any form |url=https://a4aontario.com/2018/05/24/why-we-oppose-aba-in-any-form/ |url-status=live |archive-url=https://web.archive.org/web/20191116232326/https://a4aontario.com/2018/05/24/why-we-oppose-aba-in-any-form/ |archive-date=16 November 2019 |access-date=2019-11-16 |website=A4A Ontario |language=en-US}}</ref> | Canadian autism self-advocate ] testified in court against government funding of ABA therapy.<ref name="Dawson">{{cite web |title=In Support of Michelle Dawson and Her Work |url=http://archive.autistics.org/library/dawson.html |url-status=dead |archive-url=https://web.archive.org/web/20120215181832/http://archive.autistics.org/library/dawson.html |archive-date=2012-02-15 |access-date=2012-03-21 |publisher=Autistics.org}}</ref> The Canadian organization Autistics for Autistics (A4A) has outlined some of the main objections to ABA from autistic self-advocates.{{Example needed|s|date=December 2024}}<ref>{{Cite web |last=a4aontario |date=2018-05-24 |title=Why we oppose ABA in any form |url=https://a4aontario.com/2018/05/24/why-we-oppose-aba-in-any-form/ |url-status=live |archive-url=https://web.archive.org/web/20191116232326/https://a4aontario.com/2018/05/24/why-we-oppose-aba-in-any-form/ |archive-date=16 November 2019 |access-date=2019-11-16 |website=A4A Ontario |language=en-US}}</ref> | ||
In 2004, Jane Meyerding, who has autism, criticized therapy that attempts to remove autism typical behaviors and states that the behaviors are often attempts to communicate.<ref name="Harmon" /> Studies have shown that efforts to pass as non-autistic is associated with poorer mental health and psychological well-being,<ref>{{cite journal |last1=Cook |first1=Julia |last2=Hull |first2=Laura |last3=Crane |first3=Laura |last4=Mandy |first4=William |year=2021 |title=Camouflaging in autism: A systematic review |journal=] |volume=89 |page=102080 |doi=10.1016/j.cpr.2021.102080 |pmid=34563942 |url=https://discovery.ucl.ac.uk/id/eprint/10134806/ |quote=While significant variation was noted across individual study findings, much of the existing literature supported three preliminary findings about the nature of autistic camouflaging: (1) adults with more self-reported autistic traits report greater engagement in camouflaging; (2) sex and gender differences exist in camouflaging; and (3) higher self-reported camouflaging is associated with worsening in mental health outcomes.}}</ref><ref>{{Cite journal |last1=Zhuang |first1=Sici |last2=Tan |first2=Diana Weiting |last3=Reddrop |first3=Susan |last4=Dean |first4=Lydia |last5=Maybery |first5=Murray |last6=Magiati |first6=Iliana |date=2023-11-01 |title=Psychosocial factors associated with camouflaging in autistic people and its relationship with mental health and well-being: A mixed methods systematic review |journal=] |volume=105 |pages=102335 |doi=10.1016/j.cpr.2023.102335 |pmid=37741059 |doi-access=free}}</ref> and such findings were consistent across various age groups.<ref>{{Cite journal |last1=Khudiakova |first1=Valeria |last2=Russell |first2=Emmeline |last3=Sowden-Carvalho |first3=Sophie |last4=Surtees |first4=Andrew D. R. |date=2024 |title=A systematic review and meta-analysis of mental health outcomes associated with camouflaging in autistic people |journal=] |volume=118 |pages=102492 |doi=10.1016/j.rasd.2024.102492}}</ref> There have been accounts and qualitative evidence that some forms of behavioral interventions increase masking or worsen mental health for some autistic people.<ref>{{Cite journal |last1=McGill |first1=Owen |last2=Robinson |first2=Anna |date=2021 |title='Recalling hidden harms': autistic experiences of childhood applied behavioural analysis (ABA) |url=https://strathprints.strath.ac.uk/73753/1/McGill_Robinson_AA_2020_autistic_experiences_of_childhood_Applied_Behavioural_Analysis.pdf |journal=] |volume=7 |issue=4 |pages=269–282 |doi=10.1108/AIA-04-2020-0025}}</ref><ref>{{cite journal |last1=Schuck |first1=Rachel K. |last2=Tagavi |first2=Daina M. |last3=Baiden |first3=Kaitlynn M. P. |last4=Dwyer |first4=Patrick |last5=Williams |first5=Zachary J. |last6=Osuna |first6=Anthony |last7=Ferguson |first7=Emily F. |last8=Jimenez Muñoz |first8=Maria |last9=Poyser |first9=Samantha K. |last10=Johnson |first10=Joy F. |last11=Vernon |first11=Ty W. |year=2021 |title=Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework |journal=] |volume=52 |issue=10 |pages=4625–4645 |doi=10.1007/s10803-021-05316-x |pmc=9508016 |pmid=34643863}}</ref><ref>{{Cite journal |last=Ne'eman |first=Ari |date=July 2021 |title=When Disability Is Defined by Behavior, Outcome Measures Should Not Promote 'Passing' |journal=] |volume=23 |issue=7 |pages=E569–575 |doi=10.1001/amajethics.2021.569 |pmc=8957386 |pmid=34351268}}</ref><ref>{{cite journal |last1=Anderson |first1=Laura K. |date=2023 |title=Autistic experiences of applied behavior analysis |journal=] |volume=27 |issue=3 |pages=737–750 |doi=10.1177/13623613221118216 |pmid=35999706}}</ref><ref>{{cite journal |last1=Cumming |first1=Therese M. |last2=Strnadová |first2=Iva |last3=Danker |first3=Joanne |last4=Basckin |first4=Caroline |date=December 2020 |title='I Was Taught That My Being Was Inherently Wrong': Is Applied Behavioural Analysis A Socially Valid Practice? |url=http://www.ijahss.com/Paper/05122020/1179451317.pdf |journal=International Journal of Arts Humanities and Social Sciences Studies |volume=5 |issue=12 |pages=72–82}}</ref> American autism rights advocate ] argues that by addressing individual traits and symptoms of autism, it is possible to reduce harmful behavior and avoid encouraging camouflaging behaviors.<ref>{{cite journal |last1=Ne’eman |first1=Ari |last2=Pellicano |first2=Elizabeth |date=2022 |title=Neurodiversity as Politics |journal=Human Development |volume=66 |issue=2 |pages=149–157 |doi=10.1159/000524277 |pmid=36714278 |pmc=9881465 |url=https://discovery.ucl.ac.uk/id/eprint/10146533/ |quote=By taking a trait-oriented approach to operationalizing neurodiversity, it is possible to address intrinsically harmful disability-related traits, such as self-injury, lack of communication, or anorexia, while also rejecting and fighting against the clinical passing demands embedded within so much of autism service-provision and research practice (Ne’eman, 2021).}}</ref> | |||
In 2004, Jane Meyerding, who has autism, criticized therapy that attempts to remove autism typical behaviors and states that the behaviors are often attempts to communicate.<ref name="Harmon" /> | |||
== Criticism of Autism Speaks == | == Criticism of Autism Speaks == | ||
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Until he resigned in 2013, ] was Autism Speaks' only board member openly recognized as being on the autism spectrum. His resignation came two days after the release of an op-ed by the group's co-founder Suzanne Wright which, according to Robison, "is simply not defensible for someone who feels as I do, and I cannot continue to stand up for the public actions of an organization that makes the same mistakes over and over again by failing to connect to the community it purports to represent".<ref name="Robison">{{cite web|url=http://jerobison.blogspot.com/2013/11/i-resign-my-roles-at-autism-speaks.html|title=I resign my roles at Autism Speaks|author=John Elder Robison|date=2013-11-13|publisher=John Elder Robison's personal website|access-date=28 July 2014|archive-date=14 November 2013|archive-url=https://web.archive.org/web/20131114003719/http://jerobison.blogspot.com/2013/11/i-resign-my-roles-at-autism-speaks.html|url-status=live}}</ref> | Until he resigned in 2013, ] was Autism Speaks' only board member openly recognized as being on the autism spectrum. His resignation came two days after the release of an op-ed by the group's co-founder Suzanne Wright which, according to Robison, "is simply not defensible for someone who feels as I do, and I cannot continue to stand up for the public actions of an organization that makes the same mistakes over and over again by failing to connect to the community it purports to represent".<ref name="Robison">{{cite web|url=http://jerobison.blogspot.com/2013/11/i-resign-my-roles-at-autism-speaks.html|title=I resign my roles at Autism Speaks|author=John Elder Robison|date=2013-11-13|publisher=John Elder Robison's personal website|access-date=28 July 2014|archive-date=14 November 2013|archive-url=https://web.archive.org/web/20131114003719/http://jerobison.blogspot.com/2013/11/i-resign-my-roles-at-autism-speaks.html|url-status=live}}</ref> | ||
Simone Greggs, the mother of an autistic child, filed a lawsuit against Autism Speaks for ] after her job offer was rescinded. The suit alleges that she lost the job offer due to asking for an accommodation on behalf of her autistic son.<ref name="Lawsuit">{{cite |
Simone Greggs, the mother of an autistic child, filed a lawsuit against Autism Speaks for ] after her job offer was rescinded. The suit alleges that she lost the job offer due to asking for an accommodation on behalf of her autistic son.<ref name="Lawsuit">{{cite news|url=http://www.wjla.com/articles/2012/08/mom-sues-autism-speaks-after-job-offer-is-rescinded-78415.html|title=Mom sues Autism Speaks after job offer is rescinded|author=Greta Kreuz|newspaper=Wjla |date=2012-08-02|publisher=ABC News|access-date=28 July 2014|archive-date=23 June 2014|archive-url=https://web.archive.org/web/20140623044122/http://www.wjla.com/articles/2012/08/mom-sues-autism-speaks-after-job-offer-is-rescinded-78415.html|url-status=live}}</ref> | ||
Autism Speaks has produced the documentary films '']'' (2006) and '']'' (2014) and the short video ''I Am Autism'' (2009), each met with strong opposition from autism rights advocates.{{Which?|date=November 2024}} ''Autism Every Day'' is a documentary featuring interviews of parents with mostly negative opinions about autism and their situations. It has been criticized{{By whom|date=November 2024}} due to parents speaking about their children as if they are not there. In one interview, former board member ], while in the same room as her autistic daughter, reveals she had contemplated driving herself and her daughter off a bridge.<ref name="murray">{{cite book|author=Murray, Stuart|year=2008|title=Representing Autism: Culture, Narrative, Fascination|url=https://archive.org/details/representingauti00murr|url-access=limited|publisher=Liverpool University Press|page=|isbn=978-1-84631-092-8|quote=... drew substantial criticism from disability rights advocates because of its concentration on the condition as one of problems and difficulties, especially for parents. It created particular controversy when one of the mothers being interviewed, discussing the struggles she had endured in searching for a school for her child, commented that the only reason she had not put her autistic daughter in her car and driven off of a bridge was because she has another daughter, who does not have autism.}}</ref> ''I Am Autism'' is a short video that personifies autism as a narrative voice, which compares itself to several life-threatening diseases<ref name=Transcript>{{cite web|url=http://autisticadvocacy.org/2009/09/horrific-autism-speaks-i-am-autism-ad-transcript/|title=Horrific Autism Speaks 'I am Autism' ad transcript|date=2009-09-23|publisher=Autistic Self Advocacy Network|access-date=28 July 2014|archive-date=9 August 2014|archive-url=https://web.archive.org/web/20140809093605/http://autisticadvocacy.org/2009/09/horrific-autism-speaks-i-am-autism-ad-transcript/|url-status=live}}</ref> and makes the false claim<ref name=Divorce>{{cite web|url=http://www.cnn.com/2010/HEALTH/05/19/autism.divorce.rates/|title=Parents of kids with autism not more likely to divorce, study suggests|author=Madison Park|publisher=CNN|access-date=28 July 2014|archive-date=9 August 2014|archive-url=https://web.archive.org/web/20140809145720/http://www.cnn.com/2010/HEALTH/05/19/autism.divorce.rates/|url-status=live}}</ref> of causing divorce.<ref>{{cite news |author= Biever C |title='Poetic' autism film divides campaigners |date=2009-09-29 |work=New Scientist |url=https://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html |access-date=2009-10-08 | archive-url= https://web.archive.org/web/20091003122813/http://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html| archive-date= 3 October 2009 | url-status= live}}</ref><ref>{{cite news|author=Wallis C |title='I Am Autism': an advocacy video sparks protest |magazine=] |date=2009-11-06 |url=http://www.time.com/time/health/article/0,8599,1935959,00.html |access-date=2009-12-07 |archive-url=https://web.archive.org/web/20091109022116/http://www.time.com/time/health/article/0%2C8599%2C1935959%2C00.html |archive-date=9 November 2009 |url-status=dead }}</ref> ''Sounding the Alarm'' is a documentary exploring the transition to adulthood and the cost of lifetime care. It was criticized by the Autistic Women & Nonbinary Network for being "full of dehumanizing rhetoric" and portraying ignorance of nonverbal communication.<ref name=SoundingTheAlarm>{{cite web|url=http://autismwomensnetwork.org/film-review-of-documentary-sounding-the-alarm-battling-the-autism-epidemic/|title=Film Review of documentary "Sounding the Alarm: Battling the Autism Epidemic"|author=Lei Wiley-Mydske|date=2014-07-19|publisher=Autism Women's Network|access-date=28 July 2014|archive-date=27 July 2014|archive-url=https://web.archive.org/web/20140727005457/http://autismwomensnetwork.org/film-review-of-documentary-sounding-the-alarm-battling-the-autism-epidemic/|url-status=live}}</ref> | Autism Speaks has produced the documentary films '']'' (2006) and '']'' (2014) and the short video ''I Am Autism'' (2009), each met with strong opposition from autism rights advocates.{{Which?|date=November 2024}} ''Autism Every Day'' is a documentary featuring interviews of parents with mostly negative opinions about autism and their situations. It has been criticized{{By whom|date=November 2024}} due to parents speaking about their children as if they are not there. In one interview, former board member ], while in the same room as her autistic daughter, reveals she had contemplated driving herself and her daughter off a bridge.<ref name="murray">{{cite book|author=Murray, Stuart|year=2008|title=Representing Autism: Culture, Narrative, Fascination|url=https://archive.org/details/representingauti00murr|url-access=limited|publisher=Liverpool University Press|page=|isbn=978-1-84631-092-8|quote=... drew substantial criticism from disability rights advocates because of its concentration on the condition as one of problems and difficulties, especially for parents. It created particular controversy when one of the mothers being interviewed, discussing the struggles she had endured in searching for a school for her child, commented that the only reason she had not put her autistic daughter in her car and driven off of a bridge was because she has another daughter, who does not have autism.}}</ref> ''I Am Autism'' is a short video that personifies autism as a narrative voice, which compares itself to several life-threatening diseases<ref name=Transcript>{{cite web|url=http://autisticadvocacy.org/2009/09/horrific-autism-speaks-i-am-autism-ad-transcript/|title=Horrific Autism Speaks 'I am Autism' ad transcript|date=2009-09-23|publisher=Autistic Self Advocacy Network|access-date=28 July 2014|archive-date=9 August 2014|archive-url=https://web.archive.org/web/20140809093605/http://autisticadvocacy.org/2009/09/horrific-autism-speaks-i-am-autism-ad-transcript/|url-status=live}}</ref> and makes the false claim<ref name=Divorce>{{cite web|url=http://www.cnn.com/2010/HEALTH/05/19/autism.divorce.rates/|title=Parents of kids with autism not more likely to divorce, study suggests|author=Madison Park|publisher=CNN|access-date=28 July 2014|archive-date=9 August 2014|archive-url=https://web.archive.org/web/20140809145720/http://www.cnn.com/2010/HEALTH/05/19/autism.divorce.rates/|url-status=live}}</ref> of causing divorce.<ref>{{cite news |author= Biever C |title='Poetic' autism film divides campaigners |date=2009-09-29 |work=New Scientist |url=https://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html |access-date=2009-10-08 | archive-url= https://web.archive.org/web/20091003122813/http://www.newscientist.com/article/dn17878-poetic-autism-film-divides-campaigners.html| archive-date= 3 October 2009 | url-status= live}}</ref><ref>{{cite news|author=Wallis C |title='I Am Autism': an advocacy video sparks protest |magazine=] |date=2009-11-06 |url=http://www.time.com/time/health/article/0,8599,1935959,00.html |access-date=2009-12-07 |archive-url=https://web.archive.org/web/20091109022116/http://www.time.com/time/health/article/0%2C8599%2C1935959%2C00.html |archive-date=9 November 2009 |url-status=dead }}</ref> ''Sounding the Alarm'' is a documentary exploring the transition to adulthood and the cost of lifetime care. It was criticized by the Autistic Women & Nonbinary Network for being "full of dehumanizing rhetoric" and portraying ignorance of nonverbal communication.<ref name=SoundingTheAlarm>{{cite web|url=http://autismwomensnetwork.org/film-review-of-documentary-sounding-the-alarm-battling-the-autism-epidemic/|title=Film Review of documentary "Sounding the Alarm: Battling the Autism Epidemic"|author=Lei Wiley-Mydske|date=2014-07-19|publisher=Autism Women's Network|access-date=28 July 2014|archive-date=27 July 2014|archive-url=https://web.archive.org/web/20140727005457/http://autismwomensnetwork.org/film-review-of-documentary-sounding-the-alarm-battling-the-autism-epidemic/|url-status=live}}</ref> | ||
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| align="center"| 2009 | | align="center"| 2009 | ||
| ] | | ] | ||
| UK campaign focusing on ], encouraging and supporting disabled actors.<ref name=BlackingUp>{{cite web|url=https://www.theguardian.com/society/2009/nov/15/disabled-actors-television-campaign|title=Mentally disabled actors are victims of modern 'blacking-up', says campaigner|author=Hill, Amelia |work=The Guardian| edition = US|date=14 November 2009 |
| UK campaign focusing on ], encouraging and supporting disabled actors.<ref name=BlackingUp>{{cite web|url=https://www.theguardian.com/society/2009/nov/15/disabled-actors-television-campaign|title=Mentally disabled actors are victims of modern 'blacking-up', says campaigner|author=Hill, Amelia |work=The Guardian| edition = US|date=14 November 2009 | oclc =60623878 |access-date=14 December 2016|archive-date=27 September 2016|archive-url=https://web.archive.org/web/20160927174316/https://www.theguardian.com/society/2009/nov/15/disabled-actors-television-campaign|url-status=live}}</ref> | ||
| {{No|None}} | | {{No|None}} | ||
|- | |- | ||
| align="center"| 2016 | | align="center"| 2016 | ||
| ] (ABO) | | ] (ABO) | ||
| Adaptive baseball/softball organization formed by ] in 2016 to raise awareness and acceptance for autistic teens and adults through sport.<ref name=AJC>{{cite web|url=http://www.ajc.com/lifestyles/for-love-the-game-young-man-dream-for-special-needs-baseball/Fh2lkjsfBqfrrbQaf58a7I/|title=For love of the game: a young man's dream for special needs baseball|author=Hansen, Zachary |
| Adaptive baseball/softball organization formed by ] in 2016 to raise awareness and acceptance for autistic teens and adults through sport.<ref name=AJC>{{cite web|url=http://www.ajc.com/lifestyles/for-love-the-game-young-man-dream-for-special-needs-baseball/Fh2lkjsfBqfrrbQaf58a7I/|title=For love of the game: a young man's dream for special needs baseball|author=Hansen, Zachary |location = Dunwoody, GA | newspaper=The Atlanta Journal-Constitution|date=8 November 2016|access-date=22 December 2016|archive-date=22 December 2016|archive-url=https://web.archive.org/web/20161222222327/http://www.ajc.com/lifestyles/for-love-the-game-young-man-dream-for-special-needs-baseball/Fh2lkjsfBqfrrbQaf58a7I/|url-status=live}}</ref> | ||
| {{Yes}} | | {{Yes}} | ||
|- | |- | ||
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*In 2010, ] was a response to the then-upcoming first commemoration of ]. The annual Communication Shutdown event encourages non-autistics to refrain from using social networking websites for one day as a ] exercise,<ref></ref> while Autistics Speaking Day encourages autistic people to become ''more'' active on social media and to describe their experiences during a time when there are fewer ] voices in the mix. | *In 2010, ] was a response to the then-upcoming first commemoration of ]. The annual Communication Shutdown event encourages non-autistics to refrain from using social networking websites for one day as a ] exercise,<ref></ref> while Autistics Speaking Day encourages autistic people to become ''more'' active on social media and to describe their experiences during a time when there are fewer ] voices in the mix. | ||
*In 2012, autistic activist Zoe Gross organized the first ] vigil held in memory of people with disabilities murdered by family members or caregivers.<ref>{{Cite news|url=https://obamawhitehouse.archives.gov/blog/2013/08/15/day-mourning-affirming-value-disabled-people-s-lives|title=Day of Mourning: Affirming the Value of Disabled People's Lives|date=2013-08-15|publisher=White House|access-date=2018-05-17|language=en|archive-date=17 May 2018|archive-url=https://web.archive.org/web/20180517223112/https://obamawhitehouse.archives.gov/blog/2013/08/15/day-mourning-affirming-value-disabled-people-s-lives|url-status=live}}</ref><ref>{{Cite news|url=http://dailyorange.com/2018/02/disability-day-mourning-vigil-held-schine-student-center/|title=Disability Day of Mourning vigil to be held at Schine Student Center | newspaper = The Daily Orange – The Independent Student Newspaper | location = Syracuse University |date=27 February 2018|language=en-US|access-date=2018-05-17|archive-date=17 May 2018|archive-url=https://web.archive.org/web/20180517223347/http://dailyorange.com/2018/02/disability-day-mourning-vigil-held-schine-student-center/|url-status=live}}</ref><ref name="AsanMourning">{{Cite web|url=http://autisticadvocacy.org/2013/02/asan-day-of-mourning-on-march-1st/|title=ASAN Day of Mourning on March 1st{{!}} Autistic Self Advocacy Network|last=Network|first=Autistic Self Advocacy|website=autisticadvocacy.org|language=en-US|access-date=2018-05-17|archive-url=https://web.archive.org/web/20130505200153/http://autisticadvocacy.org/2013/02/asan-day-of-mourning-on-march-1st/|archive-date=2013-05-05|url-status=dead}}</ref> These vigils are now held annually on 1 March globally, often by local ] and ] groups.<ref name="AsanMourning" /> | *In 2012, autistic activist Zoe Gross organized the first ] vigil held in memory of people with disabilities murdered by family members or caregivers.<ref>{{Cite news|url=https://obamawhitehouse.archives.gov/blog/2013/08/15/day-mourning-affirming-value-disabled-people-s-lives|title=Day of Mourning: Affirming the Value of Disabled People's Lives|date=2013-08-15|publisher=White House|access-date=2018-05-17|language=en|archive-date=17 May 2018|archive-url=https://web.archive.org/web/20180517223112/https://obamawhitehouse.archives.gov/blog/2013/08/15/day-mourning-affirming-value-disabled-people-s-lives|url-status=live}}</ref><ref>{{Cite news|url=http://dailyorange.com/2018/02/disability-day-mourning-vigil-held-schine-student-center/|title=Disability Day of Mourning vigil to be held at Schine Student Center | newspaper = The Daily Orange – The Independent Student Newspaper | location = Syracuse University |date=27 February 2018|language=en-US|access-date=2018-05-17|archive-date=17 May 2018|archive-url=https://web.archive.org/web/20180517223347/http://dailyorange.com/2018/02/disability-day-mourning-vigil-held-schine-student-center/|url-status=live}}</ref><ref name="AsanMourning">{{Cite web|url=http://autisticadvocacy.org/2013/02/asan-day-of-mourning-on-march-1st/|title=ASAN Day of Mourning on March 1st{{!}} Autistic Self Advocacy Network|last=Network|first=Autistic Self Advocacy|website=autisticadvocacy.org|language=en-US|access-date=2018-05-17|archive-url=https://web.archive.org/web/20130505200153/http://autisticadvocacy.org/2013/02/asan-day-of-mourning-on-march-1st/|archive-date=2013-05-05|url-status=dead}}</ref> These vigils are now held annually on 1 March globally, often by local ] and ] groups.<ref name="AsanMourning" /> | ||
*In 2015, autistic activist Alanna Rose Whitney created the social media campaign #WalkInRed, later rebranded #RedInstead to be more inclusive of wheelchair users, as another alternative to Light It Up Blue.<ref>{{Cite news|url=https://www.washingtonpost.com/politics/the-next-civil-rights-movement-accepting-adults-with-autism/2015/07/20/e7c6743e-f338-11e4-bcc4-e8141e5eb0c9_story.html|title=How autistic adults banded together to start a movement|last=Somashekhar|first=Sandhya|date=2015-07-20|newspaper=The Washington Post|access-date=2018-05-17|language=en-US |
*In 2015, autistic activist Alanna Rose Whitney created the social media campaign #WalkInRed, later rebranded #RedInstead to be more inclusive of wheelchair users, as another alternative to Light It Up Blue.<ref>{{Cite news|url=https://www.washingtonpost.com/politics/the-next-civil-rights-movement-accepting-adults-with-autism/2015/07/20/e7c6743e-f338-11e4-bcc4-e8141e5eb0c9_story.html|title=How autistic adults banded together to start a movement|last=Somashekhar|first=Sandhya|date=2015-07-20|newspaper=The Washington Post|access-date=2018-05-17|language=en-US |archive-date=17 May 2018|archive-url=https://web.archive.org/web/20180517153411/https://www.washingtonpost.com/politics/the-next-civil-rights-movement-accepting-adults-with-autism/2015/07/20/e7c6743e-f338-11e4-bcc4-e8141e5eb0c9_story.html|url-status=live}}</ref><ref>{{Cite news|url=http://alannarosewhitney.com/human-rights-advocate/|title=Human Rights Advocate|date=2018-04-23|access-date=2018-05-17|language=en-US|archive-date=17 May 2018|archive-url=https://web.archive.org/web/20180517154007/http://alannarosewhitney.com/human-rights-advocate/|url-status=live}}</ref> | ||
*Autism rights activists organize protests against organizations they consider objectionable, most notably ] and the ].<ref>{{Cite web|url=https://parenting.blogs.nytimes.com/2015/06/04/speaking-out-against-autism-speaks-even-if-it-means-no-ice-cream/|title=Speaking Out Against Autism Speaks, Even if It Means No Ice Cream|last=Perry|first=David|date=2015-06-04|website=The New York Times |department=Motherlode Blog|language=en-US|access-date=2018-05-17|archive-date=4 July 2018|archive-url=https://web.archive.org/web/20180704035221/https://parenting.blogs.nytimes.com/2015/06/04/speaking-out-against-autism-speaks-even-if-it-means-no-ice-cream/|url-status=live}}</ref><ref>{{Cite news|url=http://content.time.com/time/health/article/0,8599,1935959,00.html|title='I Am Autism': An Advocacy Video Sparks Protest|last=Wallis|first=Claudia|date=2009-11-06|magazine=Time|access-date=2018-05-17|language=en-US |
*Autism rights activists organize protests against organizations they consider objectionable, most notably ] and the ].<ref>{{Cite web|url=https://parenting.blogs.nytimes.com/2015/06/04/speaking-out-against-autism-speaks-even-if-it-means-no-ice-cream/|title=Speaking Out Against Autism Speaks, Even if It Means No Ice Cream|last=Perry|first=David|date=2015-06-04|website=The New York Times |department=Motherlode Blog|language=en-US|access-date=2018-05-17|archive-date=4 July 2018|archive-url=https://web.archive.org/web/20180704035221/https://parenting.blogs.nytimes.com/2015/06/04/speaking-out-against-autism-speaks-even-if-it-means-no-ice-cream/|url-status=live}}</ref><ref>{{Cite news|url=http://content.time.com/time/health/article/0,8599,1935959,00.html|title='I Am Autism': An Advocacy Video Sparks Protest|last=Wallis|first=Claudia|date=2009-11-06|magazine=Time|access-date=2018-05-17|language=en-US |archive-date=26 May 2018|archive-url=https://web.archive.org/web/20180526104816/http://content.time.com/time/health/article/0,8599,1935959,00.html|url-status=live}}</ref><ref>{{Cite news|url=https://www.bostonglobe.com/metro/2016/10/31/protestors-demonstrate-controversial-canton-center-for-troubled-youth/BMztldEVd4ERGoBYFeo4tK/story.html|title=Protesters demonstrate at controversial Canton center for troubled youth|work=The Boston Globe|access-date=2018-05-17|archive-date=18 May 2018|archive-url=https://web.archive.org/web/20180518054317/https://www.bostonglobe.com/metro/2016/10/31/protestors-demonstrate-controversial-canton-center-for-troubled-youth/BMztldEVd4ERGoBYFeo4tK/story.html|url-status=live}}</ref><ref>{{Cite news|url=http://www.masslive.com/politics/index.ssf/2016/11/adapt_protests_at_massachusett.html|title=ADAPT protests at State House, Judge Rotenberg Center for disability rights; 'I'd rather go to jail than die in Rotenberg!'|work=masslive.com|access-date=2018-05-17|language=en-US|archive-date=17 May 2018|archive-url=https://web.archive.org/web/20180517153116/http://www.masslive.com/politics/index.ssf/2016/11/adapt_protests_at_massachusett.html|url-status=live}}</ref> In the United States, activists affiliated with ASAN have organized numerous protests against Autism Speaks events, typically protesting and leafleting at fundraising walks.<ref>{{Cite web|url=http://autisticadvocacy.org/2009/09/help-us-fight-back-against-autism-speaks-attempts-to-speak-for-us/|title=Help Us Fight Back Against Autism Speaks' Attempts to Speak For Us! {{!}} Autistic Self Advocacy Network|last=Network|first=Autistic Self Advocacy|website=autisticadvocacy.org|date=24 September 2009|language=en-US|access-date=2018-05-17|archive-date=17 May 2018|archive-url=https://web.archive.org/web/20180517152822/http://autisticadvocacy.org/2009/09/help-us-fight-back-against-autism-speaks-attempts-to-speak-for-us/|url-status=live}}</ref> Autistic activists including ] and ] have organized lobbying days and protests aiming to close or more strictly regulate the Judge Rotenberg Center.<ref>{{Cite news|url=https://www.fox25boston.com/news/fda-meets-on-school-shock-device-warns-of-violations/139485289|title=FDA meets on school shock device, warns of violations|last=EndPlay|date=2013-01-10|publisher=WFXT|access-date=2018-05-17|language=en-US|archive-date=17 May 2018|archive-url=https://web.archive.org/web/20180517223335/https://www.fox25boston.com/news/fda-meets-on-school-shock-device-warns-of-violations/139485289|url-status=live}}</ref> | ||
==Terminology== | ==Terminology== | ||
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* ''Aspie'' – a person with ].<ref name="SanerDisease" /> Not as frequently used with Aspergers being removed as an official diagnosis. | * ''Aspie'' – a person with ].<ref name="SanerDisease" /> Not as frequently used with Aspergers being removed as an official diagnosis. | ||
* ''Autie'' – an autistic person.<ref name=Mitchell>{{cite journal |journal=He@LTH Information on the Internet |year=2003 |volume=33 |issue=1 |pages=3–4 |title=Autism e-mailing lists |author=Mitchell C |url=http://hii.rsmjournals.com/cgi/reprint/33/1/3.pdf |url-status=dead |archive-url=https://web.archive.org/web/20110715205640/http://hii.rsmjournals.com/cgi/reprint/33/1/3.pdf |archive-date=15 July 2011 }}</ref> | * ''Autie'' – an autistic person.<ref name=Mitchell>{{cite journal |journal=He@LTH Information on the Internet |year=2003 |volume=33 |issue=1 |pages=3–4 |title=Autism e-mailing lists |author=Mitchell C |url=http://hii.rsmjournals.com/cgi/reprint/33/1/3.pdf |url-status=dead |archive-url=https://web.archive.org/web/20110715205640/http://hii.rsmjournals.com/cgi/reprint/33/1/3.pdf |archive-date=15 July 2011 }}</ref> | ||
* ''Autistics and |
* ''Autistics and cousins'' (AC) – a cover term including aspies, auties, and their "cousins", i.e., people with some autistic traits but no formal diagnosis<ref>{{cite web |url=http://access.autistics.org/resources/glossary/main.html |title=A World Apart: Definitions |access-date=23 November 2008 |url-status=dead |archive-url=https://web.archive.org/web/20081204100549/http://access.autistics.org/resources/glossary/main.html |archive-date=4 December 2008 }}</ref> | ||
* ''Curebie'' – a person with the desire to cure autism. This term is considered derogatory. | * ''Curebie'' – a person with the desire to cure autism. This term is considered derogatory. | ||
* '']'' – the framework for understanding some disabilities, such as autism, as a variation in human ] makeup rather than a disorder. | * '']'' – the framework for understanding some disabilities, such as autism, as a variation in human ] makeup rather than a disorder. | ||
* '']'' (''NT'') – a person who does not have any neurological differences. It is often used to describe an individual who is not on the autism spectrum. | * '']'' (''NT'') – a person who does not have any neurological differences. It is often used to describe an individual who is not on the autism spectrum. | ||
* ''Allistic'' – a person who is not autistic<ref>{{cite web | first = Alicia | last = Lile |url=http://www.shiftjournal.com/2011/11/11/autistics-speaking-day-–-changing-from-shame-to-pride/|date = 11 November 2011 |title= Autistics Speaking Day – Changing from shame to pride |website=shiftjournal.com |archive-url=https://web.archive.org/web/20120222064137/http://www.shiftjournal.com/2011/11/11/autistics-speaking-day-%E2%80%93-changing-from-shame-to-pride/ |archive-date=22 February 2012}}</ref> Originally it was used satirically to describe those without autism.<ref>{{cite web |url=https://www.fysh.org/~zefram/allism/allism_intro.txt |title=Allism: An Introduction to a Little-known Condition|access-date=20 April 2015 |url-status=live |archive-url=https://web.archive.org/web/20030222010740/http://www.fysh.org/~zefram/allism/allism_intro.txt |archive-date=22 February 2003 }}</ref> | * ''Allistic'' – a person who is not autistic.<ref>{{cite web | first = Alicia | last = Lile |url=http://www.shiftjournal.com/2011/11/11/autistics-speaking-day-–-changing-from-shame-to-pride/|date = 11 November 2011 |title= Autistics Speaking Day – Changing from shame to pride |website=shiftjournal.com |archive-url=https://web.archive.org/web/20120222064137/http://www.shiftjournal.com/2011/11/11/autistics-speaking-day-%E2%80%93-changing-from-shame-to-pride/ |archive-date=22 February 2012}}</ref> Originally it was used satirically to describe those without autism.<ref>{{cite web |url=https://www.fysh.org/~zefram/allism/allism_intro.txt |title=Allism: An Introduction to a Little-known Condition|access-date=20 April 2015 |url-status=live |archive-url=https://web.archive.org/web/20030222010740/http://www.fysh.org/~zefram/allism/allism_intro.txt |archive-date=22 February 2003 }}</ref> | ||
== Autistic pride == | == Autistic pride == | ||
{{Further|Autistic Pride Day}} | {{Further|Autistic Pride Day}} | ||
<!-- "Autistic pride" redirects to here. If you change the title of this section, please change the redirect, too. --> | <!-- "Autistic pride" redirects to here. If you change the title of this section, please change the redirect, too. --> | ||
Autistic pride refers to pride |
Autistic pride refers to being pride of being autistic and promotes the idea that people with autism are not defective.<ref>{{Cite web |title=Autistic Pride |url=https://www.autisticempire.com/autistic-pride/ |access-date=2024-12-12 |website=Autistic Empire |language=en-US}}</ref> Autistic pride emphasizes the variation and diversity in human neurology. | ||
Autistic pride asserts that autistic people are not impaired or damaged; rather, they have a unique set of characteristics that provide them many rewards and challenges, not unlike their non-autistic peers.<ref name=SanerDisease/><ref name=NPRAutism/><ref name=INTO>{{cite journal|author=Costello, Mary |url=http://www.into.ie/ROI/Publications/InTouch/2006/JanuaryFebruary2006/File,2407,en.pdf |title=Autistic Pride |journal=InTouch |date=January–February 2006 |pages=26–7 |access-date=24 November 2007 |archive-url=https://web.archive.org/web/20071120024107/http://www.into.ie/ROI/Publications/InTouch/2006/JanuaryFebruary2006/File,2407,en.pdf |archive-date=20 November 2007 |url-status=dead }}</ref> | Autistic pride asserts that autistic people are not impaired or damaged; rather, they have a unique set of characteristics that provide them many rewards and challenges, not unlike their non-autistic peers.<ref name=SanerDisease/><ref name=NPRAutism/><ref name=INTO>{{cite journal|author=Costello, Mary |url=http://www.into.ie/ROI/Publications/InTouch/2006/JanuaryFebruary2006/File,2407,en.pdf |title=Autistic Pride |journal=InTouch |date=January–February 2006 |pages=26–7 |access-date=24 November 2007 |archive-url=https://web.archive.org/web/20071120024107/http://www.into.ie/ROI/Publications/InTouch/2006/JanuaryFebruary2006/File,2407,en.pdf |archive-date=20 November 2007 |url-status=dead }}</ref> | ||
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== Autistic culture and community == | == Autistic culture and community == | ||
] talks about Be Different on Bookbits radio.]] | ] talks about Be Different on Bookbits radio.]] | ||
With the recent increases in autism recognition and new approaches to educating and socializing autistics, an autistic culture has begun to develop. Autistic culture is based on a belief that autism is a unique way of being and not a disorder to be cured.<ref name="Harmon"/> The ''Aspie world'', as it is sometimes called, contains people with ] (AS) and ] (HFA), and can be linked to three historical trends: the emergence of AS and HFA as labels, the emergence of the ], and the rise of the ]. Autistic communities exist both online and offline; many people use these for support and communication with others like themselves, as the social limitations of autism sometimes make it difficult to make friends, to establish support within general society, and to construct an identity within society.<ref>{{cite journal |journal= Disabil Soc |year=2007 |volume=22 |issue=4 |pages=413–26 |title= Orchestrating voices: autism, identity and the power of discourse |author= Bagatell N |doi=10.1080/09687590701337967 |
With the recent increases in autism recognition and new approaches to educating and socializing autistics, an autistic culture has begun to develop. Autistic culture is based on a belief that autism is a unique way of being and not a disorder to be cured.<ref name="Harmon"/> The ''Aspie world'', as it is sometimes called, contains people with ] (AS) and ] (HFA), and can be linked to three historical trends: the emergence of AS and HFA as labels, the emergence of the ], and the rise of the ]. Autistic communities exist both online and offline; many people use these for support and communication with others like themselves, as the social limitations of autism sometimes make it difficult to make friends, to establish support within general society, and to construct an identity within society.<ref>{{cite journal |journal= Disabil Soc |year=2007 |volume=22 |issue=4 |pages=413–26 |title= Orchestrating voices: autism, identity and the power of discourse |author= Bagatell N |doi=10.1080/09687590701337967 }}</ref> | ||
Because many autistics find it easier to communicate online than in person, a large number of online resources are available.<ref name=NPRAutism>{{cite web|author=Shapiro, Joseph|url=https://www.npr.org/templates/story/story.php?storyId=5488463|title=Autism Movement Seeks Acceptance, Not Cures|publisher=NPR|date=26 June 2006|access-date=23 November 2007|url-status=live|archive-url=https://web.archive.org/web/20071224113918/http://www.npr.org/templates/story/story.php?storyId=5488463|archive-date=24 December 2007}}</ref> Some autistic individuals learn ], participate in online ]s, discussion boards, and websites, or use communication devices at autism-community social events. The Internet helps bypass non-verbal cues and emotional sharing that autistics tend to have difficulty with.<ref name="BlumeNYT"/><ref name=BlumeMIT>{{cite web|author=Blume, Harvey|url=http://web.mit.edu/m-i-t/articles/index_blume.html|title=Autism & The Internet or It's The Wiring, Stupid|date=1 July 1997|publisher=Media in Transition, Massachusetts Institute of Technology|access-date=8 November 2007|url-status=live|archive-url=https://web.archive.org/web/20080123143816/http://web.mit.edu/m-i-t/articles/index_blume.html|archive-date=23 January 2008}}</ref> It gives autistic individuals a way to communicate and form online communities.<ref>{{cite news |author=Biever C |title= Web removes social barriers for those with autism |work= New Scientist |issue=2610 |date=30 June 2007}}</ref> | Because many autistics find it easier to communicate online than in person, a large number of online resources are available.<ref name=NPRAutism>{{cite web|author=Shapiro, Joseph|url=https://www.npr.org/templates/story/story.php?storyId=5488463|title=Autism Movement Seeks Acceptance, Not Cures|publisher=NPR|date=26 June 2006|access-date=23 November 2007|url-status=live|archive-url=https://web.archive.org/web/20071224113918/http://www.npr.org/templates/story/story.php?storyId=5488463|archive-date=24 December 2007}}</ref> Some autistic individuals learn ], participate in online ]s, discussion boards, and websites, or use communication devices at autism-community social events. The Internet helps bypass non-verbal cues and emotional sharing that autistics tend to have difficulty with.<ref name="BlumeNYT"/><ref name=BlumeMIT>{{cite web|author=Blume, Harvey|url=http://web.mit.edu/m-i-t/articles/index_blume.html|title=Autism & The Internet or It's The Wiring, Stupid|date=1 July 1997|publisher=Media in Transition, Massachusetts Institute of Technology|access-date=8 November 2007|url-status=live|archive-url=https://web.archive.org/web/20080123143816/http://web.mit.edu/m-i-t/articles/index_blume.html|archive-date=23 January 2008}}</ref> It gives autistic individuals a way to communicate and form online communities.<ref>{{cite news |author=Biever C |title= Web removes social barriers for those with autism |work= New Scientist |issue=2610 |date=30 June 2007}}</ref> | ||
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{{Main|Autism Sunday}} | {{Main|Autism Sunday}} | ||
Autism Sunday is a global Christian event observed annually on the second Sunday of February. It is supported by church leaders{{Which|date=November 2024}} and organisations{{Which|date=November 2024}} around the world. The event was initiated by the founders of ], Charika Corea and ]. Autism Sunday was launched in London in 2002 with a service at St. Paul's Cathedral.<ref>{{cite web |title=Autism Sunday: world church leaders send messages of support |url=http://www.bloggernews.net/119578 |year=2009 |access-date=31 January 2009 |url-status= |
Autism Sunday is a global Christian event observed annually on the second Sunday of February. It is supported by church leaders{{Which|date=November 2024}} and organisations{{Which|date=November 2024}} around the world. The event was initiated by the founders of ], Charika Corea and ]. Autism Sunday was launched in London in 2002 with a service at St. Paul's Cathedral.<ref>{{cite web |title=Autism Sunday: world church leaders send messages of support |url=http://www.bloggernews.net/119578 |year=2009 |access-date=31 January 2009 |url-status=usurped |archive-url=https://web.archive.org/web/20090202051235/http://www.bloggernews.net/119578 |archive-date=2 February 2009 }}</ref> | ||
===Autism Awareness Year=== | ===Autism Awareness Year=== | ||
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Autism Awareness Year was led by ], ], ], ], Autism London, and 800 other organizations in the United Kingdom. It had the personal backing of British Prime Minister ].<ref>{{cite news |url=https://www.telegraph.co.uk/news/uknews/1380939/Yesterday-in-Parliament.html?pageNum=3 |title=Yesterday in Parliament: Blair backs campaign for autism awareness |date=10 January 2002 |work=The Daily Telegraph|access-date=23 November 2007 |location=London |first=Michael |last=Kallenbach |url-status=live |archive-url=https://web.archive.org/web/20081202182845/http://www.telegraph.co.uk/news/uknews/1380939/Yesterday-in-Parliament.html?pageNum=3 |archive-date=2 December 2008 }}</ref> | Autism Awareness Year was led by ], ], ], ], Autism London, and 800 other organizations in the United Kingdom. It had the personal backing of British Prime Minister ].<ref>{{cite news |url=https://www.telegraph.co.uk/news/uknews/1380939/Yesterday-in-Parliament.html?pageNum=3 |title=Yesterday in Parliament: Blair backs campaign for autism awareness |date=10 January 2002 |work=The Daily Telegraph|access-date=23 November 2007 |location=London |first=Michael |last=Kallenbach |url-status=live |archive-url=https://web.archive.org/web/20081202182845/http://www.telegraph.co.uk/news/uknews/1380939/Yesterday-in-Parliament.html?pageNum=3 |archive-date=2 December 2008 }}</ref> | ||
The 2002 Autism Awareness Year helped raise awareness of the serious issues concerning autism and Asperger's syndrome across the United Kingdom.<ref>{{cite news|url=https://www.bbc.co.uk/dna/h2g2/alabaster/A692183|title=2002 Autism Awareness Year (UK) (BBC)|year=2002|publisher=BBC|access-date=23 November 2007|url-status=live|archive-url=https://web.archive.org/web/20020213220242/http://www.bbc.co.uk/dna/h2g2/alabaster/A692183|archive-date=13 February 2002}}</ref> A major conference, Autism 2002, was held at the ] in London with debates in the ] and the ] in Westminster. Autism awareness ribbons were worn to mark the year.<ref>{{cite |
The 2002 Autism Awareness Year helped raise awareness of the serious issues concerning autism and Asperger's syndrome across the United Kingdom.<ref>{{cite news|url=https://www.bbc.co.uk/dna/h2g2/alabaster/A692183|title=2002 Autism Awareness Year (UK) (BBC)|year=2002|publisher=BBC|access-date=23 November 2007|url-status=live|archive-url=https://web.archive.org/web/20020213220242/http://www.bbc.co.uk/dna/h2g2/alabaster/A692183|archive-date=13 February 2002}}</ref> A major conference, Autism 2002, was held at the ] in London with debates in the ] and the ] in Westminster. Autism awareness ribbons were worn to mark the year.<ref>{{cite news |last1=Rawstrone |first1=Annette |title=Autism campaign seeks to fit the pieces together |url=https://www.nurseryworld.co.uk/content/news/autism-campaign-seeks-to-fit-the-pieces-together/ |work=Nursery World |date=16 January 2002 }}</ref> | ||
Some British autism advocates want autistic people acknowledged as a minority rather than as disabled, because they say that "disability discrimination laws don't protect those who are not disabled but who 'still have something that makes them look or act differently from other people.{{Single+double}}<ref name="SanerDisease" /> But the autism community is split over this issue, and some view this notion as radical.<ref name="SanerDisease" /> | Some British autism advocates want autistic people acknowledged as a minority rather than as disabled, because they say that "disability discrimination laws don't protect those who are not disabled but who 'still have something that makes them look or act differently from other people.{{Single+double}}<ref name="SanerDisease" /> But the autism community is split over this issue, and some view this notion as radical.<ref name="SanerDisease" /> | ||
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==Scholarship== | ==Scholarship== | ||
ASDs received increasing attention from ] scholars in the early 2000s, with the goals of improving support services and therapies, arguing that autism should be tolerated as a difference not a disorder, and by how autism affects the definition of personhood and identity.<ref name=Silverman>{{cite journal |journal=BioSocieties |year=2008 |volume=3 |issue=3 |pages=325–41 |title= Fieldwork on another planet: social science perspectives on the autism spectrum |author= Silverman C |doi=10.1017/S1745855208006236 |
ASDs received increasing attention from ] scholars in the early 2000s, with the goals of improving support services and therapies, arguing that autism should be tolerated as a difference not a disorder, and by how autism affects the definition of personhood and identity.<ref name=Silverman>{{cite journal |journal=BioSocieties |year=2008 |volume=3 |issue=3 |pages=325–41 |title= Fieldwork on another planet: social science perspectives on the autism spectrum |author= Silverman C |doi=10.1017/S1745855208006236 |doi-access=free }}</ref> Sociological research has also investigated how social institutions, particularly families, cope with the challenges associated with autism.<ref>{{cite journal |journal=Contexts |year=2009 |volume=8 |issue=2 |pages=40–5 |title=Autism, through a social lens |author=Poulson S |doi=10.1525/ctx.2009.8.2.40 |doi-access=free }}</ref> | ||
A study published on 20 January 2021, by the ] suggests that educating non-autistic people about the strengths and challenges of autistic people can help reduce stigma and misconceptions surrounding autism, which may help increase social inclusion of autistic people.<ref name=":0">{{ |
A study published on 20 January 2021, by the ] suggests that educating non-autistic people about the strengths and challenges of autistic people can help reduce stigma and misconceptions surrounding autism, which may help increase social inclusion of autistic people.<ref name=":0">{{cite press release |title=Reducing biases about autism may increase social inclusion, study finds |url=https://www.sciencedaily.com/releases/2021/02/210208085441.htm |work=ScienceDaily |publisher=University of Texas at Dallas |date=8 February 2021 }}</ref> The study also found that ] about autism were harder to overcome for non-autistic people.<ref name=":0" /> | ||
== Media portrayals == | == Media portrayals == | ||
{{See also|Autism |
{{See also|Autism in popular culture}} | ||
Much of the public perception of autism is based on its portrayals in biographies, movies, novels, and TV series. Many of these portrayals have been inaccurate, and have contributed to a divergence between public perception and the clinical reality of autism.<ref name=Trapped>{{cite journal|last=Sarrett|first=J C|title=Trapped children: popular images of children with autism in the 1960s and 2000s |
Much of the public perception of autism is based on its portrayals in biographies, movies, novels, and TV series. Many of these portrayals have been inaccurate, and have contributed to a divergence between public perception and the clinical reality of autism.<ref name=Trapped>{{cite journal|last=Sarrett|first=J C|title=Trapped children: popular images of children with autism in the 1960s and 2000s |journal=Journal of Medical Humanities|date=June 2011|volume=32|issue=2|pages=141–53|doi=10.1007/s10912-010-9135-z |pmid=21225325 }}</ref> For example, in the 2005 movie '']'', the opening scene gives four clues that a leading character has Asperger syndrome, and two of these clues are ] skills. The savant skills are not needed in the film, but in movies savant skills have become a stereotype for the autism spectrum, because of the incorrect assumption that most autistic people are savants.<ref name=Draaisma>{{cite journal |author= Draaisma D |title= Stereotypes of autism |journal= Philos Trans R Soc Lond B Biol Sci |volume=364 |issue=1522 |pages=1475–80 |year=2009 |pmid=19528033 |doi=10.1098/rstb.2008.0324 |pmc=2677582 }}</ref> | ||
Some works from the 1970s have autistic characters,{{which|date=May 2016}} who are rarely labeled.<ref name=Murray>{{cite journal | |
Some works from the 1970s have autistic characters,{{which|date=May 2016}} who are rarely labeled.<ref name=Murray>{{cite journal |last1=Murray |first1=Stuart |title=Autism and the Contemporary Sentimental: Fiction and the Narrative Fascination of the Present |journal=Literature and Medicine |date=2006 |volume=25 |issue=1 |pages=24–45 |doi=10.1353/lm.2006.0025 |id={{Project MUSE|202372}} |pmid=17040083 }}</ref> In contrast, in the 2013 ] television miniseries '']'', the impact of Noah Hoynes' Asperger syndrome on the boy's behavior and on his family, and steps Noah's loved ones take to accommodate and address it, are prominent plot points in all three episodes. | ||
Popular media have depicted special talents of some children with autism, including ] as seen in the 1988 movie '']''.<ref>{{cite book |author=Nolen-Hoeksema S |date=2014 |title=Abnormal Psychology |location=New York, NY |publisher=McGraw-Hill Education |page=292 |isbn= 978-0-07-803538-8 }}</ref> | Popular media have depicted special talents of some children with autism, including ] as seen in the 1988 movie '']''.<ref>{{cite book |author=Nolen-Hoeksema S |date=2014 |title=Abnormal Psychology |location=New York, NY |publisher=McGraw-Hill Education |page=292 |isbn= 978-0-07-803538-8 }}</ref> | ||
Since the 1970s, fictional portrayals of people with autism, ], and other ASCs have become more frequent.<ref name="Murray" /> Public perception of autism is often based on these fictional portrayals in novels, biographies, movies, and TV series. These depictions of autism in media today are often made in a way that brings pity to the public and their concern of the topic, because their viewpoint is never actually shown, leaving the public without knowledge of autism and its diagnosis.<ref>{{cite journal|last1=Holton|first1=Avery|last2=Farrell|first2=Laura|last3=Fudge|first3=Julie|title=A |
Since the 1970s, fictional portrayals of people with autism, ], and other ASCs have become more frequent.<ref name="Murray" /> Public perception of autism is often based on these fictional portrayals in novels, biographies, movies, and TV series. These depictions of autism in media today are often made in a way that brings pity to the public and their concern of the topic, because their viewpoint is never actually shown, leaving the public without knowledge of autism and its diagnosis.<ref>{{cite journal |last1=Holton |first1=Avery E. |last2=Farrell |first2=Laura C. |last3=Fudge |first3=Julie L. |title=A Threatening Space?: Stigmatization and the Framing of Autism in the News |journal=Communication Studies |date=April 2014 |volume=65 |issue=2 |pages=189–207 |doi=10.1080/10510974.2013.855642 }}</ref><ref name="Draaisma" /> Portrayals in the media of characters with atypical abilities (for example, the ability to multiply large numbers without a calculator) may be misinterpreted by viewers as accurate portrayals of all autistic people and of autism itself.<ref name=AutisticLicence>{{cite news|last=Bethune|first=Brian|title=Autistic licence: suddenly, Asperger's is the new 'it' disorder on screen and in fiction|url=http://www.macleans.ca/2009/07/13/autistic-licence/|access-date=18 April 2012|date=3 July 2009|newspaper= Maclean's| location = Toronto | publisher = Rogers Media |archive-date=20 April 2012|archive-url=https://web.archive.org/web/20120420072820/http://www2.macleans.ca/2009/07/13/autistic-licence/|url-status=live}}</ref> Additionally, the media frequently depicts autism as only affecting children, which promotes the misconception that autism does not affect adults.<ref>{{cite journal |last1=Stevenson |first1=Jennifer L. |last2=Harp |first2=Bev |last3=Gernsbacher |first3=Morton Ann |title=Infantilizing Autism |journal=Disability Studies Quarterly |date=18 July 2011 |volume=31 |issue=3 |doi=10.18061/dsq.v31i3.1675 |pmc=4266457 |pmid=25520546 }}</ref> | ||
==Notable individuals== | ==Notable individuals== | ||
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Some notable figures such as ], a food animal handling systems designer and author,<ref>{{cite web|url=http://americanradioworks.publicradio.org/features/mcdonalds/grandin1.html|title=Kill Them With Kindness|publisher=American RadioWorks|date=April 2002|author=Zwerdling, Daniel|access-date=8 November 2007|url-status=live|archive-url=https://web.archive.org/web/20040817075912/http://americanradioworks.publicradio.org/features/mcdonalds/grandin1.html|archive-date=17 August 2004}}</ref> and ], a ]-winning critic and author<ref>{{cite journal|url=https://www.newyorker.com/reporting/2007/08/20/070820fa_fact_page?printable=true|author=Page, Tim|journal=]|title=Parallel Play: A lifetime of restless isolation explained|date=20 August 2007|pages=36–41|pmid=17710777|access-date=8 November 2007|url-status=live|archive-url=https://web.archive.org/web/20071030183451/http://www.newyorker.com/reporting/2007/08/20/070820fa_fact_page?printable=true|archive-date=30 October 2007}}</ref><ref>{{cite web|url=https://www.npr.org/templates/story/story.php?storyId=12750745|author1=Page, Tim |author2 = Seigel, Robert | website = All Things Considered|publisher=NPR|title=Pulitzer-Winner on Living with Asperger's |format= Interview |date=13 August 2007|access-date=8 November 2007|url-status=live|archive-url=https://web.archive.org/web/20070825103437/http://www.npr.org/templates/story/story.php?storyId=12750745|archive-date=25 August 2007}}</ref> are autistic. | Some notable figures such as ], a food animal handling systems designer and author,<ref>{{cite web|url=http://americanradioworks.publicradio.org/features/mcdonalds/grandin1.html|title=Kill Them With Kindness|publisher=American RadioWorks|date=April 2002|author=Zwerdling, Daniel|access-date=8 November 2007|url-status=live|archive-url=https://web.archive.org/web/20040817075912/http://americanradioworks.publicradio.org/features/mcdonalds/grandin1.html|archive-date=17 August 2004}}</ref> and ], a ]-winning critic and author<ref>{{cite journal|url=https://www.newyorker.com/reporting/2007/08/20/070820fa_fact_page?printable=true|author=Page, Tim|journal=]|title=Parallel Play: A lifetime of restless isolation explained|date=20 August 2007|pages=36–41|pmid=17710777|access-date=8 November 2007|url-status=live|archive-url=https://web.archive.org/web/20071030183451/http://www.newyorker.com/reporting/2007/08/20/070820fa_fact_page?printable=true|archive-date=30 October 2007}}</ref><ref>{{cite web|url=https://www.npr.org/templates/story/story.php?storyId=12750745|author1=Page, Tim |author2 = Seigel, Robert | website = All Things Considered|publisher=NPR|title=Pulitzer-Winner on Living with Asperger's |format= Interview |date=13 August 2007|access-date=8 November 2007|url-status=live|archive-url=https://web.archive.org/web/20070825103437/http://www.npr.org/templates/story/story.php?storyId=12750745|archive-date=25 August 2007}}</ref> are autistic. | ||
Notable individuals known to have Asperger syndrome include ],<ref>{{cite news |last1=McCabe |first1=Kathy |title=Rock and a hard place | |
Notable individuals known to have Asperger syndrome include ],<ref>{{cite news |id={{ProQuest|354129283}} |last1=McCabe |first1=Kathy |title=Rock and a hard place |newspaper=The Courier-Mail |date=27 November 2004 |page=L10 }}</ref> lead singer, songwriter, guitarist and only constant member of the Australian rock band ], who was diagnosed in 2004,<ref>{{Cite web|url=http://www.nme.com/news/vines/18584|archive-url=https://web.archive.org/web/20110605172725/http://www.nme.com/news/vines/18584|url-status=dead|archive-date=2011-06-05|title=VINES SINGER DIAGNOSIS REVEALED {{!}} News {{!}} NME.COM|website=]|date=2011-06-05|access-date=2020-03-06}}</ref> and actor ].<ref name="Lockyer">{{cite news|last=Lockyer|first=Daphne|url=https://www.telegraph.co.uk/culture/8440399/Paddy-Considine-Knowing-I-have-Aspergers-is-a-relief.html|title=Paddy Considine: Knowing I have Asperger's is a relief|newspaper=]|date=10 April 2011|access-date=12 April 2011|location=London|archive-date=12 November 2020|archive-url=https://web.archive.org/web/20201112015758/http://www.telegraph.co.uk/culture/8440399/Paddy-Considine-Knowing-I-have-Aspergers-is-a-relief.html|url-status=live}}</ref><ref>{{cite web|url=http://www.digitalspy.ie/showbiz/news/a313837/paddy-considine-reveals-aspergers-diagnosis.html|title=Paddy Considine reveals Asperger's diagnosis|author=Goodacre, Kate|website=Digital Spy|publisher = ]| access-date=19 March 2020|archive-date=11 March 2012|archive-url=https://web.archive.org/web/20120311210947/http://www.digitalspy.ie/showbiz/news/a313837/paddy-considine-reveals-aspergers-diagnosis.html|url-status=live}}</ref> | ||
Swedish environmentalist ], who in August 2018 started the "]" movement, has explained how the "gift" of living with Asperger syndrome helps her "see things from outside the box" when it comes to ].<ref>{{cite web |url=https://www.theguardian.com/commentisfree/2019/apr/23/greta-thunberg-autism |title=Greta Thunberg Teaches Us about Autism as Much as Climate Change |work=The Guardian|first=Ian |last=Birrell |date=23 April 2019 |access-date=25 June 2019 |archive-date=15 June 2019 |archive-url=https://web.archive.org/web/20190615233715/https://www.theguardian.com/commentisfree/2019/apr/23/greta-thunberg-autism |url-status=live }}</ref> In an interview with presenter ] on BBC Radio 4's '']'', the 16-year-old activist said that autism helps her see things in "black and white". She went on to say:<ref name="Thunberg">{{cite news |last1=O'Malley |first1=Katie |title=Greta Thunberg says 'gift' of Asperger's Syndrome helps her see through 'lies' |url=https://www.independent.co.uk/life-style/health-and-families/greta-thunberg-gift-asperger-syndrome-environment-strike-climate-change-radio-4-a8883056.html |access-date=27 April 2019 |work=The Independent |date=23 April 2019 |archive-date=23 April 2019 |archive-url=https://web.archive.org/web/20190423182409/https://www.independent.co.uk/life-style/health-and-families/greta-thunberg-gift-asperger-syndrome-environment-strike-climate-change-radio-4-a8883056.html |url-status=live }}</ref>{{blockquote|It makes me different, and being different is a gift, I would say. It also makes me see things from outside the box. I don't easily fall for lies; I can see through things. I don't think I would be interested in the climate at all, if I had been like everyone else. Many people say that it doesn't matter, you can cheat sometimes. But I can't do that. You can't be a little bit sustainable. Either you're sustainable, or not sustainable. For way too long the politicians and people in power have got away with not doing anything at all to fight the climate crisis and ecological crisis, but we will make sure that they will not get away with it any longer.|title=|source=}} | Swedish environmentalist ], who in August 2018 started the "]" movement, has explained how the "gift" of living with Asperger syndrome helps her "see things from outside the box" when it comes to ].<ref>{{cite web |url=https://www.theguardian.com/commentisfree/2019/apr/23/greta-thunberg-autism |title=Greta Thunberg Teaches Us about Autism as Much as Climate Change |work=The Guardian|first=Ian |last=Birrell |date=23 April 2019 |access-date=25 June 2019 |archive-date=15 June 2019 |archive-url=https://web.archive.org/web/20190615233715/https://www.theguardian.com/commentisfree/2019/apr/23/greta-thunberg-autism |url-status=live }}</ref> In an interview with presenter ] on BBC Radio 4's '']'', the 16-year-old activist said that autism helps her see things in "black and white". She went on to say:<ref name="Thunberg">{{cite news |last1=O'Malley |first1=Katie |title=Greta Thunberg says 'gift' of Asperger's Syndrome helps her see through 'lies' |url=https://www.independent.co.uk/life-style/health-and-families/greta-thunberg-gift-asperger-syndrome-environment-strike-climate-change-radio-4-a8883056.html |access-date=27 April 2019 |work=The Independent |date=23 April 2019 |archive-date=23 April 2019 |archive-url=https://web.archive.org/web/20190423182409/https://www.independent.co.uk/life-style/health-and-families/greta-thunberg-gift-asperger-syndrome-environment-strike-climate-change-radio-4-a8883056.html |url-status=live }}</ref>{{blockquote|It makes me different, and being different is a gift, I would say. It also makes me see things from outside the box. I don't easily fall for lies; I can see through things. I don't think I would be interested in the climate at all, if I had been like everyone else. Many people say that it doesn't matter, you can cheat sometimes. But I can't do that. You can't be a little bit sustainable. Either you're sustainable, or not sustainable. For way too long the politicians and people in power have got away with not doing anything at all to fight the climate crisis and ecological crisis, but we will make sure that they will not get away with it any longer.|title=|source=}} | ||
Additionally, media speculation of contemporary figures as being on the autism spectrum has become popular in recent times. ] reported some examples, which included that ] suggested that ] is autistic, and that a biographer of ] wrote that his prodigious memory and "fascination with numbers" give him "a vaguely autistic aura". The magazine also reported that on '']'', ] |
Additionally, media speculation of contemporary figures as being on the autism spectrum has become popular in recent times. ] reported some examples, which included that ] suggested that ] is autistic, and that a biographer of ] wrote that his prodigious memory and "fascination with numbers" give him "a vaguely autistic aura". The magazine also reported that on '']'', ] deemed basketball player ] a candidate for an Asperger's diagnosis, and the ] specialist consulted "seemed to concur". ] criticized these conclusions, writing that popular speculative diagnoses suggest autism is "an epidemic, or else a wildly over-diagnosed thing that there used to be other words for".<ref name="nymag">{{cite news|last1=Wallace|first1=Benjamin|title=Autism Spectrum: Are You on It?|url=https://nymag.com/news/features/autism-spectrum-2012-11/|access-date=3 May 2016|work=New York|archive-date=28 April 2016|archive-url=https://web.archive.org/web/20160428131037/http://nymag.com/news/features/autism-spectrum-2012-11/|url-status=live}}</ref> The practice of diagnosing autism in these cases is controversial.<ref name="sowell">{{cite book|last1=Sowell|first1=Thomas|title=The Einstein Syndrome : bright children who talk late|date=2001|publisher=Basic Books|location=New York|isbn=9780465081417|pages=, 189|url=https://archive.org/details/einsteinsyndrome00sowe|url-access=registration|access-date=3 May 2016}}</ref><ref>{{cite news|last1=Steinberg|first1=Paul|title=Asperger's History of Overdiagnosis|url=https://www.nytimes.com/2012/02/01/opinion/aspergers-history-of-over-diagnosis.html|access-date=3 May 2016|work=The New York Times|date=31 January 2012|archive-date=25 May 2016|archive-url=https://web.archive.org/web/20160525142455/http://www.nytimes.com/2012/02/01/opinion/aspergers-history-of-over-diagnosis.html|url-status=live}}</ref> | ||
== Controversies == | == Controversies == | ||
There are a wide variety of both supportive and critical opinions about the movement among people who are autistic or associated with people with autism. A common criticism leveled against autistic activists is that the majority of them do not have co-occurring intellectual disability and critics |
There are a wide variety of both supportive and critical opinions about the movement among people who are autistic or associated with people with autism. A common criticism leveled against autistic activists is that the majority of them do not have co-occurring intellectual disability and critics argue that their views do not represent the views of autistic people with intellectual disability and their parents.<ref>{{Cite web |title=Autism, PDD-NOS & Asperger's fact sheets {{!}} The Autism Rights Movement |url=http://www.autism-help.org/points-autism-rights-movement.htm |access-date=2023-02-03 |website=www.autism-help.org |archive-date=23 May 2022 |archive-url=https://web.archive.org/web/20220523025259/http://autism-help.org/points-autism-rights-movement.htm |url-status=live }}</ref> | ||
==See also== | ==See also== | ||
* ] | |||
* '']'' | * '']'' | ||
* ] | * ] | ||
* ] | |||
* ] | * ] | ||
* '']'' | * '']'' | ||
* |
* ] | ||
* {{Annotated link|Judge Rotenberg Educational Center}} | |||
* ] | * ] | ||
* ] | * ] | ||
==References== | ==References== | ||
{{reflist}} | {{reflist}} | ||
==Sources== | |||
* {{cite book |last1=Singer |first1=Judy |title=NeuroDiversity: The Birth of an Idea |date=2017 |publisher=Judy Singer |isbn=978-0-6481547-0-9 }} | |||
* {{cite book |doi=10.1007/978-981-13-8437-0 |title=Autistic Community and the Neurodiversity Movement |date=2020 |isbn=978-981-13-8436-3 |editor-last1=Kapp |editor-first1=Steven K. }} | |||
* {{cite book |last1=Waltz |first1=M. |title=Autism: A Social and Medical History |date=2013 |publisher=Palgrave Macmillan UK |isbn=978-0-230-52750-8 }} | |||
==Further reading== | ==Further reading== | ||
* {{cite news |last1=Amdur |first1=Neil |title=Asperger's Syndrome, on Screen and in Life |url=http://www-nc.nytimes.com/2009/08/04/health/04aspe.html |access-date=30 June 2022 |work=The New York Times |date=3 August 2009 |archive-url=https://web.archive.org/web/20130408185123/http://www-nc.nytimes.com/2009/08/04/health/04aspe.html?=_r=6& |archive-date=8 April 2013 |page=D5}} | * {{cite news |last1=Amdur |first1=Neil |title=Asperger's Syndrome, on Screen and in Life |url=http://www-nc.nytimes.com/2009/08/04/health/04aspe.html |access-date=30 June 2022 |work=The New York Times |date=3 August 2009 |archive-url=https://web.archive.org/web/20130408185123/http://www-nc.nytimes.com/2009/08/04/health/04aspe.html?=_r=6& |archive-date=8 April 2013 |page=D5}} | ||
* {{cite journal | |
* {{cite journal |last1=Davidson |first1=Joyce |title=Autistic culture online: virtual communication and cultural expression on the spectrum |journal=Social & Cultural Geography |date=November 2008 |volume=9 |issue=7 |pages=791–806 |doi=10.1080/14649360802382586 }} | ||
* Grandin, Temple. (2011). ''Thinking in Pictures, Expanded Edition: My Life with Autism''. New York: Vintage. {{ISBN|978-1935274216}} | * Grandin, Temple. (2011). ''Thinking in Pictures, Expanded Edition: My Life with Autism''. New York: Vintage. {{ISBN|978-1935274216}} | ||
* Grandin, Temple. (1995). Sachs, Oliver (foreword). . New York: Doubleday. {{ISBN|0-385-47792-9}} | * Grandin, Temple. (1995). Sachs, Oliver (foreword). . New York: Doubleday. {{ISBN|0-385-47792-9}} | ||
* ''Loud Hands: Autistic People, Speaking''. Washington, DC: ], 2012. Bascom, Julia. (Foreword). {{ISBN|978-1938800023}} {{OCLC|823510362}} | * ''Loud Hands: Autistic People, Speaking''. Washington, DC: ], 2012. Bascom, Julia. (Foreword). {{ISBN|978-1938800023}} {{OCLC|823510362}} | ||
* {{cite book |author= Nadesan, Majia |year= 2005 |title= Constructing Autism: Unravelling the "Truth" and Discovering the Social |publisher= London: Routledge |doi= 10.4324/9780203299500 |isbn=978-0-415-32180-8}} | * {{cite book |author= Nadesan, Majia |year= 2005 |title= Constructing Autism: Unravelling the "Truth" and Discovering the Social |publisher= London: Routledge |doi= 10.4324/9780203299500 |isbn=978-0-415-32180-8}} | ||
* {{cite journal |vauthors=Rossetti Z, Ashby C, Arndt K, Chadwick M, Kasahara M |title= 'I like others to not try to fix me': agency, independence, and autism |journal= Intellect Dev Disabil |volume=46 |issue=5 |pages=364–75 |year=2008 |pmid=19090638 |doi=10.1352/2008.46:364-375}} | * {{cite journal |vauthors=Rossetti Z, Ashby C, Arndt K, Chadwick M, Kasahara M |title= 'I like others to not try to fix me': agency, independence, and autism |journal= Intellect Dev Disabil |volume=46 |issue=5 |pages=364–75 |year=2008 |pmid=19090638 |doi=10.1352/2008.46:364-375 }} | ||
==External links== | ==External links== |
Latest revision as of 09:26, 22 December 2024
Disability rights movement for autistic peopleThis article has multiple issues. Please help improve it or discuss these issues on the talk page. (Learn how and when to remove these messages)
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The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with the disability rights movement. It emphasizes the neurodiversity paradigm, viewing autism as a set of naturally occurring variations in human cognition, a disability with both strengths and weaknesses, rather than as a disease to be cured or a medical disorder. This paradigm contradicts and diverges from the medical model of disability, without opposing all aspects of it.
Central to the autism rights movement's beliefs is the right to self-determine if one is part of the autism community, that autistic people should be seen as the primary voice for people with autism, and that autistic people have the final say in what language should be used when talking about autism. A common motto used by the autism rights movement, borrowed from the disability rights movement, is the phrase "nothing about us without us".
Autism rights movement advocates strive for widespread acceptance of people with autism, as well as the traits and behaviors (e.g. stimming, lack of eye contact, and special interests) associated with autism, for autistic people to socialize on their own terms, and to mitigate the double empathy problem. The movement seeks to reform and foster autism-oriented interventions and therapies in accordance with neurodiversity principles to emphasize coping skills for challenging situations, promote adaptive skills, and promote psychological well-being and mental health.
The movement criticizes therapies and interventions that—implicitly or explicitly—encourage masking behaviors associated with autism and imitating neurotypical social behaviors, as higher tendencies of camouflaging, autistic masking, or passing as neurotypical are associated with worse mental health outcomes according to most recent studies and multiple systematic reviews and some autistic adults who experienced some forms of behavioral interventions reported adverse effects such as detrimental effects on their mental health due to increased camouflaging or autistic masking.
The movement also advocates for people with autism to be recognized as a minority group rather than as having a disorder. Within the autism rights movement, autism is often compared to different variations in human biology not categorized as disorders, such as homosexuality.
History
1980s–1990s: Autistic-run organizations, newsletters, and conferences
Jim Sinclair is credited as the first person to communicate the autism rights perspective. In the early 1990s, Sinclair frequently participated in autism conferences led by parent-centric organizations but found them "overwhelmingly hostile from both sensory and emotional standpoints". In 1992, Sinclair co-founded the Autism Network International (ANI) with Donna Williams and Kathy Grant, an organization that publishes newsletters "written by and for autistic people."
The ANI newsletter, Our Voice, had its first issue distributed online in November 1992 to an audience of primarily neurotypical professionals and parents of young autistic children. The number of autistic people in the organization increased over the years, and ANI eventually became a communication network for like-minded autistic people. Sinclair wrote the essay "Don't Mourn for Us" (1993) in the ANI newsletter (Volume 1, Number 3) with an anti-cure perspective on autism. Some have considered the essay a touchstone for the autism rights movement, and it has been mentioned in The New York Times and New York Magazine.
ANI established the yearly retreat "Autreat" in 1996. Autreat was a retreat and conference held in the United States specifically for autistic people and was held every year from 1996 to 2013, except in 2001. The theme of the first conference in 1996 was "Celebrating Autistic Culture", and it had close to 60 participants. It was hosted at Camp Bristol Hills in Canandaigua, New York. The success of Autreat later inspired similar retreats, such as the Association for Autistic Community's conference, Autspace, in the United States; Autscape in the United Kingdom; and Projekt Empowerment in Sweden.
Martijn Dekker, an autistic computer programmer from the Netherlands, launched an e-mail list called "Independent Living on the Autism Spectrum", or "InLv", in 1996. The list also welcomed those with similar conditions, such as ADHD, dyslexia, and dyscalculia. American writer Harvey Blume was a member of the list and described it as embracing "neurological pluralism" in a 1997 article in The New York Times. Blume discussed the concept of neurological diversity with Australian sociologist Judy Singer. The term "neurodiversity" was first published in Judy Singer's 1998 Honours thesis and in Harvey Blume's 1998 article in The Atlantic.
2000s–2010s: The rise of self-advocacy
Aspies For Freedom (AFF) was founded in 2004. They established June 18 as Autistic Pride Day starting in 2005. AFF member Joe Mele initiated a protest against the National Alliance for Autism Research in 2004. AFF also initiated protests against Cure Autism Now and the Judge Rotenberg Center.
In 2004, Canadian autism researcher Michelle Dawson challenged applied behavior analysis (ABA), a common behavioral intervention for people with autism, on ethical grounds. She testified in Auton v. British Columbia against the lack of required government funding for ABA. That same year, The New York Times covered the autism rights perspective by publishing journalist Amy Harmon's article, "How About Not Curing Us, Some Autistics Are Pleading".
In 2006, The Autism Acceptance Project (TAAP) was founded by Estée Klar, the mother of an autistic child, with help from an autistic advisory and board. The project is affiliated with the Autistic Self Advocacy Network (ASAN) and other activist groups in North America.
From 2005 to 2007, TAAP organized arts-based events. TAAP also sponsored the Joy of Autism: Redefining Ability and Quality of Life events and lectures in Toronto, featuring dozens of autistic artists and speakers such as Jim Sinclair, Michelle Dawson, Phil Schwartz, Morton Ann Gernsbacher, and Larry Bissonnette.
In 2007, an ASAN initiative helped halt the New York Child Study Campaign. The advertising campaign launched in 2007 depicted conditions like autism and ADHD as kidnappers holding children for ransom. The campaign was canceled two weeks after its launch when the center's director had received an estimated 3000 e-mails and phone calls, most of them "expressing anger and hurt". ASAN halted another advertising campaign in 2008 where PETA had implied a link between autism and casein in milk. Phone calls, letters, and petitions organized by ASAN contributed to the removal of the advertisements.
The internet has provided a space for members of the autism movement to organize and communicate independently without relying on people without autism, such as family members, healthcare workers, or events hosted by non-autistic individuals, especially considering the geographical distance and communication and speech patterns of autistic individuals.
2020–present
The COVID-19 pandemic caused a drop-off in physical events in the summer of 2020, including autism pride events. Much of autism awareness and campaigning was driven by social media, including the notable growth of TikTok and the emergence of autistic advocates like Chloé Hayden and Paige Layle.
Autism advocacy made progress within the traditional media, making its way into influential business publications such as Harvard Business Review and Fast Company. A comprehensive approach to inclusion in the workplace, the Canary Code, was developed in 2022 by Ludmila Praslova, specifically focusing on autistic talent and other marginalized communities.
Neurodiversity and autistic self-advocacy movement
Main article: NeurodiversityJudy Singer coined the term neurodiversity in the late 1990s as a middle ground between the two dominating models of disability, the medical model and the social model, dismissing both of them as insufficiently capturing the solution for—and cause of—disability.
Steve Silberman describes neurodiversity as seeing the virtue of different conditions while taking into consideration that the conditions also convey challenges. Autistics for Autistics, a self-advocacy group, describes neurodiversity this way: "Neurodiversity means that—like biodiversity—all of us have a role to play in society ...and we should be valued for who we are. Included in public life, such as school and employment. For nonverbal autistics, this also means equal and fair access to communication, such as AAC."
The autistic self-advocacy movement, made up of autistic individuals, works from a social model of disability perspective. For example, the Autistic Self-Advocacy Network describes its mandate as "to advance the principles of the disability rights movement with regard to autism".
Autistic people are considered to have neurocognitive differences that give them distinct strengths and weaknesses, and they are capable of succeeding when appropriately accommodated and supported. According to Ludmila Praslova, author of The Canary Code, creating systems that support the employment of autistic people and their success through organizational transparency, justice, and flexibility benefits all employees.
There is no leader of the neurodiversity movement, and little academic research has been conducted on it as a social phenomenon. As such, proponents of the neurodiversity approach have heterogeneous beliefs but are consistent in the view that autism cannot be separated from an autistic person. The movement opposes therapies that aim to make children "indistinguishable from their peers". Instead, they advocate for accommodations in schools and work environments and including autistic people when making decisions that affect them. Neurodiversity advocates oppose researching a "cure" for autism, and instead support research that helps autistic people thrive as they are.
An analysis of data from the UK and Hungary in 2017 found evidence that self-advocates with autism or intellectual disabilities are rarely involved in leadership or decision-making within organisations. It also showed that poverty, unpaid positions at disability organisations, and lack of support are significant barriers for most autistic people, including autistic people with an intellectual disability who wish to self-advocate.
Perspectives
Autism diagnosis
The autism rights movement rejects the classification by psychiatrists of autism as a disorder. Autistic self-advocates also reject terming the reported increase in autism diagnoses as an "epidemic" since the word implies autism is a disease and point out that the increase is likely due to an expansion of diagnostic criteria rather than an epidemic.
Rejection of functioning labels
The autism rights movement rejects the use of the labels "high-functioning" and "low-functioning" when describing different people with autism, arguing that the strengths and struggles of people with autism are on a spectrum and not linear.
Opposition to cure and prevention
The autism rights movement opposes "curing" autism, criticizing the idea as misguided and dangerous. Instead, autism is viewed as a way of life and advocate acceptance over a search for a cure. The autism rights movement is a part of the larger disability rights movement and acknowledges the social model of disability. Within the model, struggles faced by autistic people are viewed as discrimination rather than deficiencies.
Autism rights activists are opposed to attempts to eliminate autism genes, and argue that doing so would decrease human genetic diversity. In particular, there is opposition to prenatal genetic testing of autism in fetuses, which some believe might be possible in the future. On 23 February 2005, Joseph Buxbaum of the Autism Genome Project at the Icahn School of Medicine at Mount Sinai said there could be a prenatal test for autism within 10 years. However, the genetics of autism have proven to be extremely complex. A wider debate on the ethics involved in the possible elimination of a genotype that has advantages as well as disadvantages, has focused on possible negative effects of tampering with natural selection.
Some people lament that professionals, such as social workers, may discourage autistic people from having children. Activists are concerned that the "ultimate cure will be a genetic test to prevent autistic children from being born" and that most fetuses with so-called "autism genes" would be aborted if prenatal tests for autism are developed.
The anti-cure perspective is the view of autism as a normal occurrence—an alternate variation in brain wiring or a less common expression of the human genome—rather than a disorder. Advocates of this perspective believe that autism is a unique way of being that should be valued, and efforts to eliminate autism should not be compared to curing cancer but instead to the "efforts of a previous age to cure left-handedness".
Activist Jim Sinclair expresses in his essay "Don't Mourn For Us" that wishing that an autistic person be cured is equivalent to wishing that an entirely different person exists in their place.
Canadian autism researcher Michelle Dawson writes that "No one has yet calculated the costs to autistics, and to society, of the current widespread autism advocacy effort to create a world where there are no autistic people at all."
Temple Grandin comments that if autism were eliminated, society would lose scientists, musicians, and mathematicians; a caveman "with high-functioning Asperger's" might have developed the stone spear.
Most autistic self-advocates agree that autistic people should not be made to act exactly like everyone else but that society should accommodate their disability and that autism services should focus on quality of life rather than conformity.
Autistic culture
Further information: Societal and cultural aspects of autismSome autistic activists suggest that life with autism is like being born among people who speak a different language, follow a religion or philosophy one does not share, and live a lifestyle that feels alien. Social media, meetups, and specific professions are spaces where autistic people connect and may share common interests.
Self advocacy and inclusion in decision-making
A common theme expressed among autism rights activists and neurodiversity groups is that they are different from parent- and professional-led organizations and conferences that dominate the autism scene.
In 2003, autism researcher Michelle Dawson criticizes the norm of allowing parents to speak on behalf of their autistic children at conferences to the exclusion of autistics: "With the happy and proud collaboration of governments, courts, researchers, service providers, and funding bodies", she says, "parents have succeeded in removing autistics from the vicinity of any important discussions or decisions." She says that the exclusion results in policy and treatment decisions being made solely by individuals who do not directly experience autism.
In 2005, Autism rights activist Jim Sinclair states that autism conferences are traditionally geared toward neurotypical parents and professionals, and that to an autistic person they may be quite "hostile" in terms of sensory stimulation and rigidity.
Autism interventions and therapies
Further information: Autism therapiesIn 2011, Aspies For Freedom (AFF) stated that they believe many unethical therapies and treatments for autism have become common. AFF argued that extensive—40 hours per week—applied behavior analysis (ABA) and restricting stimming and other coping mechanisms associated with autism are mentally harmful, that aversion therapy and the use of restraints are physically harmful, and that non-medically approved treatments like chelation therapy and exorcism are dangerous.
United Nations (UN) human rights experts have expressed that people with autism are particularly at risk for harmful medical practices and some approaches amount to "ill-treatment or torture."
Canadian autism self-advocate Michelle Dawson testified in court against government funding of ABA therapy. The Canadian organization Autistics for Autistics (A4A) has outlined some of the main objections to ABA from autistic self-advocates.
In 2004, Jane Meyerding, who has autism, criticized therapy that attempts to remove autism typical behaviors and states that the behaviors are often attempts to communicate. Studies have shown that efforts to pass as non-autistic is associated with poorer mental health and psychological well-being, and such findings were consistent across various age groups. There have been accounts and qualitative evidence that some forms of behavioral interventions increase masking or worsen mental health for some autistic people. American autism rights advocate Ari Ne'erman argues that by addressing individual traits and symptoms of autism, it is possible to reduce harmful behavior and avoid encouraging camouflaging behaviors.
Criticism of Autism Speaks
Further information: Autism Speaks § ViewsAutism Speaks has faced criticism from autism rights advocates for failing to represent autistic people and for exploitative practices.
Until he resigned in 2013, John Elder Robison was Autism Speaks' only board member openly recognized as being on the autism spectrum. His resignation came two days after the release of an op-ed by the group's co-founder Suzanne Wright which, according to Robison, "is simply not defensible for someone who feels as I do, and I cannot continue to stand up for the public actions of an organization that makes the same mistakes over and over again by failing to connect to the community it purports to represent".
Simone Greggs, the mother of an autistic child, filed a lawsuit against Autism Speaks for disability discrimination after her job offer was rescinded. The suit alleges that she lost the job offer due to asking for an accommodation on behalf of her autistic son.
Autism Speaks has produced the documentary films Autism Every Day (2006) and Sounding the Alarm (2014) and the short video I Am Autism (2009), each met with strong opposition from autism rights advocates. Autism Every Day is a documentary featuring interviews of parents with mostly negative opinions about autism and their situations. It has been criticized due to parents speaking about their children as if they are not there. In one interview, former board member Alison Singer, while in the same room as her autistic daughter, reveals she had contemplated driving herself and her daughter off a bridge. I Am Autism is a short video that personifies autism as a narrative voice, which compares itself to several life-threatening diseases and makes the false claim of causing divorce. Sounding the Alarm is a documentary exploring the transition to adulthood and the cost of lifetime care. It was criticized by the Autistic Women & Nonbinary Network for being "full of dehumanizing rhetoric" and portraying ignorance of nonverbal communication.
Autism Speaks fundraising events have been the object of several organized protests by autism rights advocates.
In 2013, the organization Boycott Autism Speaks published a list of companies that donate money to Autism Speaks along with their contact information, urging those in the Autistic community to pressure those companies into dropping their support via an active boycott, since direct appeals to Autism Speaks did not result in the desired changes. A month later, ASAN published its 2014 Joint Letter to the Sponsors of Autism Speaks, signed by 26 different disability-related organizations, appealing to the moral responsibility of the sponsors, donors, and other supporters.
Autism rights groups
There are several organizations in the autism rights movement. Some like ASAN are led exclusively by autistic people, while others such as Autism National Committee encourage cooperation between autistic people and their non-autistic allies.
Year founded | Title | Description | Nonprofit status |
---|---|---|---|
1983 | Autism-Europe (AE) | An international network association located in Brussels, Belgium, whose main objective is to advance the rights of autistic people and their families and to help them improve their quality of life. Autism-Europe does this primarily by representing autistic people and their families in advocacy work with the European Union institutions. | International non-profit organisation (aisbl) |
2009 | Don't Play Me, Pay Me | UK campaign focusing on Asperger syndrome, encouraging and supporting disabled actors. | None |
2016 | Alternative Baseball Organization (ABO) | Adaptive baseball/softball organization formed by Taylor C. Duncan in 2016 to raise awareness and acceptance for autistic teens and adults through sport. | Yes |
2008 | Washington Autism Alliance (WAA) | Washington state organization formed by Arzu Forough in 2008 to advocate for WA state individual access balanced with systems change advocacy and policy reform. | Yes |
Events and activities
- In 2010, Autistics Speaking Day was a response to the then-upcoming first commemoration of Communication Shutdown. The annual Communication Shutdown event encourages non-autistics to refrain from using social networking websites for one day as a perspective-taking exercise, while Autistics Speaking Day encourages autistic people to become more active on social media and to describe their experiences during a time when there are fewer neurotypical voices in the mix.
- In 2012, autistic activist Zoe Gross organized the first Disability Day of Mourning vigil held in memory of people with disabilities murdered by family members or caregivers. These vigils are now held annually on 1 March globally, often by local self-advocacy and disability rights groups.
- In 2015, autistic activist Alanna Rose Whitney created the social media campaign #WalkInRed, later rebranded #RedInstead to be more inclusive of wheelchair users, as another alternative to Light It Up Blue.
- Autism rights activists organize protests against organizations they consider objectionable, most notably Autism Speaks and the Judge Rotenberg Center. In the United States, activists affiliated with ASAN have organized numerous protests against Autism Speaks events, typically protesting and leafleting at fundraising walks. Autistic activists including Shain Neumeier and Lydia Brown have organized lobbying days and protests aiming to close or more strictly regulate the Judge Rotenberg Center.
Terminology
There is disagreement within the autism community on whether to use person-first terminology (e.g., person with autism) or identity-first terminology (e.g., autistic person). The autism rights movement encourages the use of identity-first terminology to stress that autism is a part of an individual's identity rather than a condition they have.
Phrases like suffers from autism are objectionable to many people, and are discouraged by both the American Psychological Association's style guide and National Center on Disability and Journalism's style guide.
The autistic community has developed their own terminology such as:
- Aspie – a person with Asperger's syndrome. Not as frequently used with Aspergers being removed as an official diagnosis.
- Autie – an autistic person.
- Autistics and cousins (AC) – a cover term including aspies, auties, and their "cousins", i.e., people with some autistic traits but no formal diagnosis
- Curebie – a person with the desire to cure autism. This term is considered derogatory.
- Neurodiversity – the framework for understanding some disabilities, such as autism, as a variation in human neurological makeup rather than a disorder.
- Neurotypical (NT) – a person who does not have any neurological differences. It is often used to describe an individual who is not on the autism spectrum.
- Allistic – a person who is not autistic. Originally it was used satirically to describe those without autism.
Autistic pride
Further information: Autistic Pride DayAutistic pride refers to being pride of being autistic and promotes the idea that people with autism are not defective. Autistic pride emphasizes the variation and diversity in human neurology.
Autistic pride asserts that autistic people are not impaired or damaged; rather, they have a unique set of characteristics that provide them many rewards and challenges, not unlike their non-autistic peers.
Autistic culture and community
With the recent increases in autism recognition and new approaches to educating and socializing autistics, an autistic culture has begun to develop. Autistic culture is based on a belief that autism is a unique way of being and not a disorder to be cured. The Aspie world, as it is sometimes called, contains people with Asperger syndrome (AS) and high functioning autism (HFA), and can be linked to three historical trends: the emergence of AS and HFA as labels, the emergence of the disability rights movement, and the rise of the Internet. Autistic communities exist both online and offline; many people use these for support and communication with others like themselves, as the social limitations of autism sometimes make it difficult to make friends, to establish support within general society, and to construct an identity within society.
Because many autistics find it easier to communicate online than in person, a large number of online resources are available. Some autistic individuals learn sign language, participate in online chat rooms, discussion boards, and websites, or use communication devices at autism-community social events. The Internet helps bypass non-verbal cues and emotional sharing that autistics tend to have difficulty with. It gives autistic individuals a way to communicate and form online communities.
Conducting work, conversation and interviews online in chat rooms, rather than via phone calls or personal contact, helps level the playing field for many autistics. A New York Times article said "the impact of the Internet on autistics may one day be compared in magnitude to the spread of sign language among the deaf" because it opens new opportunities for communication by filtering out "sensory overload that impedes communication among autistics."
Notable events
Origin | Event | When | Occurrence |
---|---|---|---|
World Autism Awareness Day | 2 April | Yearly | |
Autism Sunday | Second Sunday of February | Yearly | |
Autism Awareness Year | 2002 | One-off | |
Autistic Pride Day | 18 June | Yearly | |
Autism Acceptance Project | 2006 | One-off | |
Autistics Speaking Day | 1 November | Yearly |
World Autism Awareness Day
Main article: World Autism Awareness DayWorld Autism Awareness Day, sometimes referred to as World Autism Day, is marked yearly on 2 April. It was designated by the United Nations General Assembly at the end of 2007.
Some autism rights advocates have campaigned to rename it Autism Acceptance Day because of a misconception that the day is affiliated with Autism Speaks.
Autism Sunday
Main article: Autism SundayAutism Sunday is a global Christian event observed annually on the second Sunday of February. It is supported by church leaders and organisations around the world. The event was initiated by the founders of Autism Awareness Campaign UK, Charika Corea and Ivan Corea. Autism Sunday was launched in London in 2002 with a service at St. Paul's Cathedral.
Autism Awareness Year
Further information: Autism Awareness Campaign UKThe year 2002 was declared Autism Awareness Year in the United Kingdom—the idea was initiated by Ivan and Charika Corea, parents of an autistic child, Charin.
Autism Awareness Year was led by bibic, Brainkind, Shirley Foundation, National Autistic Society, Autism London, and 800 other organizations in the United Kingdom. It had the personal backing of British Prime Minister Tony Blair.
The 2002 Autism Awareness Year helped raise awareness of the serious issues concerning autism and Asperger's syndrome across the United Kingdom. A major conference, Autism 2002, was held at the King's Fund in London with debates in the House of Commons and the House of Lords in Westminster. Autism awareness ribbons were worn to mark the year.
Some British autism advocates want autistic people acknowledged as a minority rather than as disabled, because they say that "disability discrimination laws don't protect those who are not disabled but who 'still have something that makes them look or act differently from other people.'" But the autism community is split over this issue, and some view this notion as radical.
Autistic Pride Day
Main article: Autistic Pride DayAutistic Pride Day is an Aspies For Freedom initiative celebrated on 18 June each year. It is a day for celebrating the neurodiversity of people with autism. Inspired by LGBT+ communities, Autistic Pride often compares their efforts to the civil rights and LGBT social movements.
Autistics Speaking Day
Autistics Speaking Day is a yearly event designated on 1 November, a self-advocacy campaign run by people with autism to raise awareness and challenge negative stereotypes about autism by speaking for themselves and sharing their stories. The first Autistics Speaking Day was held in 2010. According to Corina Becker, one of the early founders, the day is to "acknowledge our difficulties while sharing our strengths, passions, and interests." The idea for the event developed out of opposition to a Communication Shutdown fundraising campaign led by United States charity Autism Speaks. Participants had been asked to "simulate having autism" by straying from all forms of online communication for one day. The event received criticism and accused Autism Speaks of missing the point of what autism actually is, referring to autistic individuals' comfort using other means of communication.
Autism Acceptance Project
In 2006 the Autism Acceptance Project (TAAProject) was founded by Estée Klar, the mother of an autistic child, with help from an autistic advisory board. The project was dedicated to promoting acceptance and accommodations for autistic people in society and was primarily supported by autistic people. The website for TAAProject disappeared a decade later, but the idea of promoting acceptance has now been adopted with other campaigns such as Autism Acceptance Month.
Autism Acceptance Day
In 2011, the first Autism Acceptance Day celebrations were organized by Paula Durbin Westby, as a response to traditional "Autism Awareness" campaigns which the Autistic community found harmful and insufficient. Autism Acceptance Day is now held every April. "Awareness" focuses on informing others of the existence of autism while "acceptance" pushes towards validating and honoring the autism community. By providing tools and educational material, people are encouraged to embrace the challenges autistic people face and celebrate their strengths. Rather than making autism into a crippling disability, acceptance integrates those on the autistic spectrum into everyday society. Instead of encouraging people to wear blue as Autism Awareness Day does, Autism Acceptance Day encourages people to wear red.
Autreat
At Autreat—an annual autistic gathering—participants compared their movement to gay rights activists, or the Deaf culture, where sign language is preferred over surgery that might restore hearing. Other local organizations have also arisen: for example, a European counterpart, Autscape, was created around 2005.
Scholarship
ASDs received increasing attention from social-science scholars in the early 2000s, with the goals of improving support services and therapies, arguing that autism should be tolerated as a difference not a disorder, and by how autism affects the definition of personhood and identity. Sociological research has also investigated how social institutions, particularly families, cope with the challenges associated with autism.
A study published on 20 January 2021, by the University of Texas at Dallas suggests that educating non-autistic people about the strengths and challenges of autistic people can help reduce stigma and misconceptions surrounding autism, which may help increase social inclusion of autistic people. The study also found that implicit biases about autism were harder to overcome for non-autistic people.
Media portrayals
See also: Autism in popular cultureMuch of the public perception of autism is based on its portrayals in biographies, movies, novels, and TV series. Many of these portrayals have been inaccurate, and have contributed to a divergence between public perception and the clinical reality of autism. For example, in the 2005 movie Mozart and the Whale, the opening scene gives four clues that a leading character has Asperger syndrome, and two of these clues are extraordinary savant skills. The savant skills are not needed in the film, but in movies savant skills have become a stereotype for the autism spectrum, because of the incorrect assumption that most autistic people are savants.
Some works from the 1970s have autistic characters, who are rarely labeled. In contrast, in the 2013 BBC2 television miniseries The Politician's Husband, the impact of Noah Hoynes' Asperger syndrome on the boy's behavior and on his family, and steps Noah's loved ones take to accommodate and address it, are prominent plot points in all three episodes.
Popular media have depicted special talents of some children with autism, including exceptional abilities as seen in the 1988 movie Rain Man.
Since the 1970s, fictional portrayals of people with autism, Asperger syndrome, and other ASCs have become more frequent. Public perception of autism is often based on these fictional portrayals in novels, biographies, movies, and TV series. These depictions of autism in media today are often made in a way that brings pity to the public and their concern of the topic, because their viewpoint is never actually shown, leaving the public without knowledge of autism and its diagnosis. Portrayals in the media of characters with atypical abilities (for example, the ability to multiply large numbers without a calculator) may be misinterpreted by viewers as accurate portrayals of all autistic people and of autism itself. Additionally, the media frequently depicts autism as only affecting children, which promotes the misconception that autism does not affect adults.
Notable individuals
See also: Retrospective diagnosis § Retrospective diagnoses of autismSome notable figures such as Temple Grandin, a food animal handling systems designer and author, and Tim Page, a Pulitzer Prize-winning critic and author are autistic.
Notable individuals known to have Asperger syndrome include Craig Nicholls, lead singer, songwriter, guitarist and only constant member of the Australian rock band The Vines, who was diagnosed in 2004, and actor Paddy Considine.
Swedish environmentalist Greta Thunberg, who in August 2018 started the "School strike for climate" movement, has explained how the "gift" of living with Asperger syndrome helps her "see things from outside the box" when it comes to climate change. In an interview with presenter Nick Robinson on BBC Radio 4's Today, the 16-year-old activist said that autism helps her see things in "black and white". She went on to say:
It makes me different, and being different is a gift, I would say. It also makes me see things from outside the box. I don't easily fall for lies; I can see through things. I don't think I would be interested in the climate at all, if I had been like everyone else. Many people say that it doesn't matter, you can cheat sometimes. But I can't do that. You can't be a little bit sustainable. Either you're sustainable, or not sustainable. For way too long the politicians and people in power have got away with not doing anything at all to fight the climate crisis and ecological crisis, but we will make sure that they will not get away with it any longer.
Additionally, media speculation of contemporary figures as being on the autism spectrum has become popular in recent times. New York magazine reported some examples, which included that Time magazine suggested that Bill Gates is autistic, and that a biographer of Warren Buffett wrote that his prodigious memory and "fascination with numbers" give him "a vaguely autistic aura". The magazine also reported that on Celebrity Rehab, Drew Pinsky deemed basketball player Dennis Rodman a candidate for an Asperger's diagnosis, and the UCLA specialist consulted "seemed to concur". Nora Ephron criticized these conclusions, writing that popular speculative diagnoses suggest autism is "an epidemic, or else a wildly over-diagnosed thing that there used to be other words for". The practice of diagnosing autism in these cases is controversial.
Controversies
There are a wide variety of both supportive and critical opinions about the movement among people who are autistic or associated with people with autism. A common criticism leveled against autistic activists is that the majority of them do not have co-occurring intellectual disability and critics argue that their views do not represent the views of autistic people with intellectual disability and their parents.
See also
- Autism: The Musical
- Discrimination against autistic people
- Ivar Lovaas
- Look Me in the Eye
- Mad pride
- Societal and cultural aspects of autism
- TASH (organization)
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Further reading
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- Davidson, Joyce (November 2008). "Autistic culture online: virtual communication and cultural expression on the spectrum". Social & Cultural Geography. 9 (7): 791–806. doi:10.1080/14649360802382586.
- Grandin, Temple. (2011). Thinking in Pictures, Expanded Edition: My Life with Autism. New York: Vintage. ISBN 978-1935274216
- Grandin, Temple. (1995). Sachs, Oliver (foreword). Thinking in Pictures, and other stories from my life with autism. New York: Doubleday. ISBN 0-385-47792-9
- Loud Hands: Autistic People, Speaking. Washington, DC: Autistic Self Advocacy Network, 2012. Bascom, Julia. (Foreword). ISBN 978-1938800023 OCLC 823510362
- Nadesan, Majia (2005). Constructing Autism: Unravelling the "Truth" and Discovering the Social. London: Routledge. doi:10.4324/9780203299500. ISBN 978-0-415-32180-8.
- Rossetti Z, Ashby C, Arndt K, Chadwick M, Kasahara M (2008). "'I like others to not try to fix me': agency, independence, and autism". Intellect Dev Disabil. 46 (5): 364–75. doi:10.1352/2008.46:364-375. PMID 19090638.
External links
- John Elder Robison radio interview about life with Asperger's Syndrome
- "This Podcast Has Autism". 24 November 2019. Archived from the original on 19 March 2022. Retrieved 30 June 2022.