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Revision as of 04:53, 1 August 2008

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Medicine B‑class Mid‑importance

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cidpusa.com

A link to the "CIDPUSA" site ( http://www.cidpusa.org/ ) was added by an IP several revisions back. This is not an information resource like the others, but is mainly a collection of materials advocating the unsupported hypotheses of one doctor. It is also a bit deceptive because at first glance it appears to represent a national association in the United States, but as far as I can tell it actually represents a clinic in Lahore. I don't think it belongs with the other links, but I'm willing to listen with an open mind to arguments in its favour. Badinfinity (talk) 23:40, 10 March 2008 (UTC)

Much of the material at the site seems to be just poorly-written text that's housing ads for an e-book. I'd say dump it. --CliffC (talk) 01:59, 11 March 2008 (UTC)

Went ahead and removed the link. If the IP wants to reinstate it I would look for a convincing argument. Badinfinity (talk) 06:38, 11 March 2008 (UTC)

It appears that none of you went further than the first page of the website cidpusa.org to make any type of decisions to remove it from this webpage. None of Dr Khan's hypothesis are unsupported. My nurses found the website informative in a variety of ways for the patient-The E-book is for those who want to use his proven treatments after gaining complete insight and understanding of their condition. In the case of Dr Khan, and to quote my nurse he is "famous" and is world renowned in his field of neurology! Taken from his website:
"Dr Khan served in the United States Public Health Service, appointed by the President of the United States. Promoted by the Surgeon General of USA to a Lt. Commander in the USPS. Served in the United States Civil Service as a Research Fellow at the National Institutes of Health, Bethesda. Residency Neurology at University of Arizona, Royal Postgraduate Medical School London and Institute of Neurology Queens Square London."
Had you gone further than a cursory look at the contact page and viewed each page on the INFO of CIDP, The PATHOLOGY, diagnosis, treatment, etc etc you would have seen not only detailed information for the person who suffers from this condition, but diagrams and explanations to anatomy and a variety of tests to isolate a CIDP diagnosis.
If you had actually read the website you would have found how supported the information IS, and that the doctor who began this webpage and the CIDP clinic in Lahore utilizes the skill of doctor's from all over the world, as well as their own research--if you clicked on the link to Mass General you would have seen diagrams of anatomy explaining a skin biopsy. RLS, RSD, Lupus, Fibromylagia are all discussed auto-immune diseases, that often the CIDP patient is tested for before final diagnosis--that because they are in fact auto-immune conditions they should be treated as such and often are not. The website does contain references to back up the Doctor's information some of which comes from Harvard Medical School and Mass.General Hospital.
In fact it was Dr Khan's website that helped me to further understand better what I have, better preparing me to the use of IVig than any other weblink that was on the CIDP Wiki page. The link to CIDP on the GBS-CIDP website was terrible and the informaiton provided was poor in the extreme. Even this webpage should be listed as requiring cleanup since there is important findings and information about CIDP that are omitted from the webpage. This webpage doesn't even cover the fact that CIDP is often misdiagnosed as ALS and can cause death. The polyneuropathy alone means that it affects the peripheral as well as the central nervous system, not that it "can" have central neverous system involvement, this just one example of how poorly this web page has been edited in recent months. It is an irony of sorts to see that Dr Khan's information has been used in the writing of this page.
Allowing your ignorance and what appears as bigotry to prevail on the neutrality of Misplaced Pages is a disgrace! There is so much information without even purchasing the Doctor's E-book! How dare you arbitrarily decide to remove an incredibly knowledgable website, as well as hope for many other CIDP sufferers, from Wiki, without doing an investigative and exhuastive search of the website in question. I am returning the website back to this page, as well as sending a note to Wiki staff about how you did not do any real research at all in reference to and prior to the removal of an amazing resource to others like me.-brattysoul

Those editors may not have, but I did -- at length -- and your personal testimony aside, the information on the site is remarkably low quality and much of it purely speculative or even factually inaccurate.

I laughed out loud when I read your statement about "sending a note to Wiki staff" to tattle on us. But perhaps you do not understand the concept of an all-volunteer anyone-can-edit website? Let me suggest that you start reading at Misplaced Pages:About. WhatamIdoing (talk) 04:53, 1 August 2008 (UTC)

External links

Misplaced Pages's external links policy and the specific guidelines for medicine-related articles do not permit the inclusion of external links to non-encyclopedic material, particularly including: patient support groups, personal experience/survivor stories, internet chat boards, e-mail discussion groups, recruiters for clinical trials, healthcare providers, fundraisers, or similar pages.

Misplaced Pages is an encyclopedia, not an advertising opportunity or a support group for patients or their families. Please do not re-insert links that do not conform to the standard rules.

External links are not required in Misplaced Pages articles. They are permitted in limited numbers and in accordance with the policies linked above. If you want to include one or more external links in this article, please link directly to a webpage that provides detailed, encyclopedic information about the disease. Thanks, WhatamIdoing (talk) 03:29, 13 April 2008 (UTC)

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