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Revision as of 11:25, 12 August 2005 by 83.67.65.99 (talk) (→Possible causes and origins)(diff) ← Previous revision | Latest revision (diff) | Newer revision → (diff)Asperger's syndrome (AS), is a pervasive developmental disorder commonly referred to as a form of "high-functioning" autism. In very broad terms, individuals with Asperger's are considered to have normal to high intellectual capacity and an atypical social capacity. The term "Asperger's syndrome" was coined by Lorna Wing in a 1981 medical paper. She named it after Hans Asperger, an Austrian psychiatrist and pediatrician whose work was not internationally recognized until the 1990s.
Characteristics
Like other conditions currently classified as an Autism Spectrum Disorder, Asperger's Syndrome is strongly gender biased, with males currently comprising approximately 75 percent of diagnoses. However, this figure may not be completely accurate, as girls are arguably more exposed to social situations and thus have more of a chance to learn to imitate the non-autistics and behave "normally".
Physically, aspergians are no different from non-autistics. The difference lies in the social life. Non-autistics — called neurotypicals, or NTs, by people on the autistic spectrum who reject the word "normal" — possess a comparatively sophisticated sense of other people's mental states. Most people are able to gather a whole host of information about other people's cognitive and emotional states based on clues gleaned from the environment and the other person's body language. Persons with autism are relatively deficient in this ability, and the individual with Asperger's can be every bit as "mind-blind" as the person with profound classical autism. For those who are severely affected by "mind-blindness", they may, at best, see a smile but not know what it means (perhaps overwhelmed with the possibilities — is it an understanding, a condescending, or a malicious smile?) and at worst they will not even see the smile, frown, smirk, or any other nuance of interpersonal communication. They generally find it difficult or impossible to "read between the lines"; that is, figure out those things a person is implying but is not saying directly — not because they can't imagine the answer, but because they are unable to choose among the possibilities. It is worth noting, however, that since it is a spectrum disorder, a few with Asperger's are nearly normal in their ability to read facial expressions and intentions of others. Those with Asperger's often have difficulty with eye contact. Many make very little eye contact, finding it overwhelming, while others have unmodulated, staring eye contact that can be off-putting to others.
Asperger's syndrome can involve an intense and obsessive level of focus on things of interest and is often characterized by special (and possibly peculiar) gifts; one person might be obsessed with 1950s professional wrestling, another with national anthems of African dictatorships, another with building models out of matchsticks. Particularly common interests are means of transport (for example trains), computers, and dinosaurs. These interests are often coupled with an unusually high capacity to retain and recall encyclopedic amounts of information about the favored subject.
In general, orderly things have appeal to individuals with Asperger's. When these special interests coincide with a materially or socially useful task, the individual with Asperger's can often lead a profitable life. The child obsessed with naval architecture may grow up to be an accomplished shipwright, for instance. In pursuit of these interests, the individual with Asperger's often manifests extremely sophisticated reason, an almost obsessive focus, and eidetic memory. Hans Asperger called his young patients "little professors", based on the fact that his thirteen-year-old patients had as comprehensive and nuanced an understanding of their field of interest as university professors.
Individuals with Asperger's have emotional responses as strong as, or perhaps stronger than, most people, though what generates an emotional response might not always be the same. What they lack (or are markedly slower to develop) is the inborn ability to perceive the emotional states of others or to express their own emotional state via body language, facial expression, and nuance in the way that most people do. Many people with Asperger's report a feeling of being unwillingly detached from the world around them; they lack the natural ability to see the subtexts of social interaction, and they equally lack the ability to broadcast their own emotional state to the world accurately.
This leads to many troubles in childhood and adulthood. Asperger's children are often the target of bullying at school because of their idiosyncratic behaviour, language, and interests, and because of their lower or delayed ability to perceive and respond in socially expected ways to non-verbal cues, particularly in situations of interpersonal conflict.
When a teacher asks a child with Asperger's, "Did the dog eat your homework?", the child with Asperger's will remain silent if they don't understand the expression, trying to figure out if they need to explain to the teacher that they don't have a dog and also that dogs don't generally like paper. The child doesn't understand what the teacher is asking, cannot deduce the teacher's meaning, or the fact that there is a non-literal meaning, from the tone of voice, posture or facial expression, and is faced with a question which makes as much sense to him as "Did the glacier in the library bounce today?". The teacher may walk away from the experience frustrated and thinking the child is arrogant, spiteful, and insubordinate. The child sits there mutely, feeling frustrated and wronged.
Those affected by Asperger's may also manifest a range of other sensory, developmental, and physiological anomalies. It is common for Asperger's children to evidence a marked delay in the development of fine motor skills. They may display a distinctive 'waddling' or 'mincing' gait when they walk and may walk with their arms held out in an unusual manner. Compulsive finger, hand, or arm movements, such as flapping, are also observed.
Some Asperger's children suffer from varying degrees of sensory overload, and may be pathologically sensitive to loud noises or strong smells and may dislike being touched — for example, certain Asperger's children exhibit a strong dislike of having their head touched or their hair disturbed. The "sensory overload" factor may exacerbate problems faced by Asperger's children at school, where levels of noise in the classroom can become almost intolerable for them. Relatedly, some are apparently unable to block out certain repetitive stimuli, such as the constant ticking of a clock. Whereas most children will stop registering this sound after a short time and can only hear it if they consciously listen for it, the aspergian child can become distracted, agitated, or even violent if the sound is not removed. These characteristics often continue through adulthood.
Children with Asperger's often display advanced abilities for their age in language, reading, mathematics, spatial skills, or music, sometimes into the 'gifted' range, although as noted above, they may be counterbalanced by appreciable delays in other developmental areas.
As with most gifted children, children with Asperger's are often misdiagnosed by teachers as being a "problem child" or a "poor performer," but the reality is that they simply have an extremely low tolerance and motivation for what they perceive to be mundane and mediocre tasks, and will often rather daydream within their own focused universe than work on the task at hand.
There seems to be a strong correlation between those with Asperger's/High-Functioning Autism (HFA) and the INTP type of the Myers-Briggs Type Indicator (MBTI): description 1, description 2.
Social interaction and cognitive patterns
Asperger's can also lead to problems with normal social interaction between peers. In childhood and teenage years, this can cause severe problems as a child or teen with Asperger's can have difficulty interpreting subtle social cues, and as such be ostracized by their peers, leading to social cruelty. A child or teen with Asperger's is frequently puzzled as to the source of this cruelty, unaware of what has been done "wrong". Recent efforts in the field of special education have concentrated on teaching children with Asperger's how to interact with their peers, achieving only moderate success, while the alternative of teaching their peers to cope with Asperger's children does not seem to have been seriously considered by many professionals. The social alienation of some people with Asperger's syndrome is so intense in childhood that some create imaginary friends for companionship.
Asperger's syndrome hardly guarantees a miserable life. Often the intense focus and tendency to work things out logically, a characteristic of Asperger's, will grant them a high level of ability in their field of interest. Despite their difficulty with social interaction, many people with Asperger's possess a rare gift for humor (especially puns, wordplay, doggerel, satire), and writing. In fact, sometimes their fluency with language is such that a number of them also qualify as hyperlexic. Asperger's is associated with child authorship, and hence terrible injustice if the chance to achieve child authorship is wrecked by the high-handed demands of school. While many people with Asperger's will probably not have lives that are considered a social success by common standards - and there are many who will remain alone their entire lives - it is possible for some to find understanding people with whom they can have close relationships. Many autistics have children, in which case their children may be neurotypical or may have an autism spectrum disorder. Many autistics are unaware of their autism, because milder forms of autism are widely misunderstood and often undiagnosed or misdiagnosed by professionals.
Social Stories and Comic Book Conversations
Carol Gray, a well-recognized researcher in the area of educational intervention for individuals on the autism spectrum, has developed a technique called the Social Story that has been found helpful in explaining social situations. A Social Story is a story written for a particular individual with Asperger's in order to provide a written framework for a social situation that they encounter regularly and have difficulty working through. The story is constructed of four types of sentences:
- descriptive sentences describe the situation in terms of cues or characteristics that can be observed whenever the situation occurs
- perspective sentences that tell about a person's internal state such as their knowledge, feelings, beliefs, or motivations
- directive sentences identify a suggested response or choice of responses
- note that these stories are a collaborative effort between the individual with Asperger's and his or her teacher, and in no way seek to "tell the person what to do" - the stories aim to provide a written, visual cue as to how a situation may be encountered and dealt with
- affirmative sentences emphasize the other three types, often expressing a commonly shared opinion or value within a culture. E.g. the perspective sentence "Sometimes I get angry." may be followed by the affirmative sentence "This is okay. Many people get angry. "
This type of structured, written and visual cue can often be helpful to individuals with AS.
A similar type of written/visual cue called a Comic Strip Conversation can also be helpful. A social situation is illustrated similar to a comic strip. Highly salient cues to location are illustrated. Stick figures are used to represent the actors in the situation. Speech bubbles represent things that were actually said, and thought bubbles represent what the person with Asperger's was thinking and what the other individual may have been thinking. A color code is used to represent the underlying emotions or motivations. Often, adding the structure and visual cues to the situation assists the Aspergian to perceive otherwise-missed social cues.
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DSM definition
Asperger's is defined in section 299.80 of the Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) as:
- Qualitative impairment in social interaction, as manifested by at least two of the following:
- Marked impairments in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body posture, and gestures to regulate social interaction
- Failure to develop peer relationships appropriate to developmental level
- A lack of spontaneous seeking to share enjoyment, interest or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest to other people)
- A lack of social or emotional reciprocity
- Restricted repetitive and stereotyped patterns of behavior, interests and activities, as manifested by at least one of the following:
- Encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus
- Apparently inflexible adherence to specific, nonfunctional routines or rituals
- Stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole-body movements)
- Persistent preoccupation with parts of objects.
- The disturbance causes clinically significant impairments in social, occupational, or other important areas of functioning.
- There is no clinically significant general delay in language (e.g., single words used by age two years, communicative phrases used by age three years)
- There is no clinically significant delay in cognitive development or in the development of age-appropriate self-help skills or adaptive behavior (other than in social interaction) and curiosity about the environment in childhood.
- Criteria are not met for another specific Pervasive Developmental Disorder or Schizophrenia.
Please read the DSM cautionary statement.
The Diagnostic and Statistical Manual's diagnostic criteria have been roundly criticized for being vague and subjective: what one psychologist calls a "significant impairment" another psychologist may call insignificant. Another criticism, made for example by Christopher Gillberg in A Guide to Asperger Syndrome (Cambridge: Cambrige University Press, 2002) is that the "no significant delay" clauses, and to a lesser extent some of the others as well, represent a misunderstanding or oversimplification of the syndrome. There may well be significant delay in some areas of language development, indeed, Gilberg considers this an important characteristic of aspergians. This is, however, often combined with exceptionally high functioning in other language-related areas. In Gillberg's opinion, this combination superficially resembles, but is in reality very different from, normal development in language and adaptive behaviour.
Relationship to autism
Experts today generally agree that there is no single mental condition called autism. Rather, there is a spectrum of autistic disorders, with different forms of autism taking different positions on this spectrum. But within certain circles of the autism community, this concept of a "spectrum" is being severely questioned. If differences in development are purely a function of differential acquisition of skills, then attempting to distinguish between "degrees of severity" may be dangerously misleading. A person may be subjected to unrealistic expectations, or even denied life-saving services, solely on the basis of very superficial observations made by others in the community.
In the 1940s, Leo Kanner and Hans Asperger, working independently in the United States and Austria, identified essentially the same population, Asperger's group being perhaps more "socially functional" than Kanner's as a whole. Some of Kanner's originally identified autistic children might today get an Asperger's syndrome diagnosis, and vice versa. It is a mistake to say that a "Kanner autistic" is a child who sits and rocks and does not communicate. Kanner's study subjects were all along the spectrum.
Traditionally, Kannerian autism is characterized by significant cognitive and communicative deficiencies, including delays in or lack of language. Often it will be clear that these people do not function normally. An individual with Asperger's on the other hand will not show delays in language. It is a more subtle disorder and affected individuals will often only appear to be eccentric.
Researchers are grappling with the problem of how to divide up the spectrum. There are many potential definitional divisions: autistics who speak versus those who do not; autistics with seizures versus those without; autistics with more "stereotypical behaviors" versus those with fewer; and so forth. Some are trying to identify genes associated with these traits as a way to make logical groupings. Eventually, one may hear about autistics with or without the HOXA 1 gene, with or without changes to chromosome 15, etc.
Some clinicians believe that communicative and/or cognitive deficiencies are so essential to the concept of autism that they prefer to consider Asperger's as a separate condition altogether from autism. This opinion is a minority one. Uta Frith (an early researcher of Kannerian autism) has written that people with Asperger's seem to have more than a touch of autism to them. Others, such as Lorna Wing and Tony Attwood, share in Frith's assessment. Dr. Sally Ozonoff, of the University of California at Davis's MIND institute, argues that there should be no dividing line between "high-functioning" autism and Asperger's, and that the fact that some individuals do not start to produce speech until a later age is no reason to divide the two groups, as they are identical in the way they need to be treated.
Asperger's syndrome and other forms of autism are often grouped together in a Pervasive Developmental Disorder family.
Possible causes and origins
The causes and origins of autism and Asperger's syndrome are subjects of continuing conjecture and debate, and there is still considerable debate on these topics, alongside the broader debate about whether Asperger's and other conditions (such as ADHD) are part of the so-called autism spectrum or not.
Amongst several competing theories are the underconnectivity theory developed by cognitive scientists at Carnegie Mellon University and the University of Pittsburgh, the extreme male brain theory by Simon Baron-Cohen, the lack of theory of mind, and the Pre-operational autism theory, which states that autistic people are those who get neurologically stuck at the pre-operational stage of cognitive development, where much of information processing is at a holistic-visual level and is largely musical and non-verbal. This also addresses the issue of the theory of mind where children at the pre-operational stage of cognitive development have not attained decentralisation from egocentrism.
The Monotropism hypothesis argues that the central feature of Autism is attention-tunnelling, monotropism. The hypothesis is founded on the model Mind as a Dynamical System: Implications for Autism. In this model of mind, the fundamental and limited resource is mental attention. Mental events compete for and consume attention. In a polytropic mind, many interests are aroused to a moderate degree. In a monotropic mind, few interests are very highly aroused. When many interests are aroused, multiple, complex, behaviours emerge. When few interests are aroused then a few, intensely motivated, behaviours are engendered. From monotropism hypothesis, autism results from different strategies of distributing attention in the brain.
The underconnectivity theory indicates a deficiency in the coordination among brain areas. With the aid of functional magnetic resonance imaging (fMRI), it was seen that white matter, which connects various areas of the brain like cables, has abnormalities in people with autism. (For those interested in brain studies, see Neuropsychology.)
However, absent from much analysis of fMRI data collected from a select group of AS-diagnosed people is the likelihood that differences in the white/grey matter ratio can be accounted for by neuroplasticity (see Plasticity (brain)), the ability of the brain to rewire itself in response to environmental stimuli. Thus disturbances in normal emotional development can affect the brain's maturation process during childhood and adolescence. Data from fMRI studies have to date proven both inconclusive and open to multiple interpretations and recent studies have revealed marked differences between the traditional HFA/Kanners group, who all exhibit early communication deficits, and the much wider AS group (see "Investigation of neuroanatomical differences between autism and Asperger syndrome." March 2004 Lotspeich LJ et al.). The vast majority of the AS-diagnosed have not undergone any form of brain imaging. Diagnosis is made purely on clinical observation with many having been previously diagnosed with ADHD, schizophrenia (itself of questionable scientific validity - see Mary Boyle: Schizophrenia a Scientific Delusion), social anxiety disorder etc. All the behavioural traits associated with AS can be found to varying extents in a sizable section of the general populace, the distinction mainly being one of degree. Within the AS-diagnosed community there is an enormous variation both in the manifestation of associated traits and in the onset of social withdrawal ranging from early childhood to early adulthood. With a paucity of consistent neuroscientific data concepts such as the "broad autistic spectrum" remain at best theories that fail to account for much more pervasive changes in the social environment evident in the select group of countries where an AS diagnosis is common.
The underconnectivity theory holds that autism is a system-wide brain disorder that limits the coordination and integration among brain areas. This theory is parsimonious, in that it explains why autistic people are matured on certain dimensions, such as visual information processing and logical analysis, and yet are socially — and sometimes neuro-physiologically — significantly younger than their chronological age. The underconnectivity theory can be regarded as monotropism in the brain.
Other theories address the rise of autism in recent times. They suggest that the rise of visual media and the increasingly central role of visual information processing in the breakdown of language contributes to the increase of autism. Other theories involve the effect of toxins and poisons on neural development. It has been suggested that high levels of heavy metals such as lead may be a causal factor, and lead poisoning has been strongly linked to some cases of severe autism.
One of the most controversial claims along these lines is that conditions such as autism and Asperger's are caused by adverse side-effects of immunization — particularly the so-called triple antigen vaccine — and from the heavy-metal preservatives that in the past were used in their manufacture. This theory has a degree of popular currency and has been discussed in a number of documentaries on the subject. It has also been supported by some recent research that indicates that glutathione, a natural antioxidant, may be unusually low in autistic people; this may explain why the tiny amounts of mercury found in vaccines might be detoxified in the bodies of some children, but cause damage that leads to autism in a few. If this theory has merit, a blood test for autism, measuring glutathione levels, might be in the offing in the near future. However, critics argue that this theory fails to address the basic empirical observation that Asperger's and related disorders are overwhelmingly predominant in males, yet children of the two sexes are immunized in roughly equal numbers.
A lesser known theory is that Asperger's and related syndromes may, in part, perpetuate genetic traits which were once highly advantageous to survival. One of the most notable characteristics of many people with Asperger's is that even very young children display a prodigious and often eidetic (photographic) memory, with the ability to precisely recall very large amounts of music, dialogue and speech after even a single hearing.
Although being able to precisely memorize and recall vast amounts of detail, such as cricket scores, dinosaur facts or television-show dialogue, may seem little more than an unusual trait in some societies, it is important to realize that such a skill would have had a high value in pre-literate society. The ability to accurately memorize and re-tell stories, myths, histories and other important oral traditions — such as directions to a remote food or water source — could have meant the difference between life and death before the invention of writing.
Effect on relationships
The significant others of people with Asperger's are more prone to major depression than the general population because people with Asperger's often have trouble showing affection or have little desire to show affection, and can be very literal and hard to communicate with in an emotional way. It is helpful for those involved with someone with Asperger's to read as much as they can about Asperger's syndrome, obsessive-compulsive disorder, hyperlexia and other comorbid disorders. It also helps to visit support groups' websites on the Web and talk with others who are involved with people with Asperger's. A significant other will often be much less angry or depressed if he or she understands that the Asperger's symptoms are not intentionally directed, but are part of a neurodevelopmental disorder. That when someone does not spontaneously show affection, it does not necessarily mean that he or she does not feel it. Thus, the significant other will come to feel less rejected and be more understanding. Light will be shed on the nature of the misunderstandings. They may figure out ways to work around the problems; for example, by being more explicit about their needs. For instance, when describing emotions, it can be helpful to be direct and to avoid vague terms like "upset" when the emotion being described is "anger". Another suggestion could be to lay out in clear language what the problem is and to ask the partner with Asperger's to describe what emotions are being felt or ask why a certain emotion was being felt.
A gift and a curse
Recently, some researchers have speculated that well-known people, such as including Albert Einstein and Isaac Newton (cf. BBC News, Einstein and Newton "had autism", 30 April 2003), have or had AS, as they showed some Asperger's related tendencies, such as intense interest in one subject, and social problems. A chapter of the aforementioned Gillberg book is devoted to this subject, including a detailed case study of the philosopher Ludwig Wittgenstein concluding that he met the criteria for the disorder. Such diagnoses remain controversial, however.
The obvious social contributions of such individuals has led to a shift in the perception of Asperger's and autism away from the simple view of a disease needing to be cured towards a more complex view of a syndrome with advantages and disadvantages. There is a semi-jocular theory within science fiction fandom, for example, which argues that many of the distinctive traits of that subculture may be explained by the speculation that a significant portion thereof is composed of people with Asperger's. A Wired Magazine article called The Geek Syndrome suggested that Asperger's syndrome is more common in the Silicon Valley, a haven for computer scientists and mathematicians. It created an enduring myth popularized in the media and self-help books that "Geek Syndrome" equals Asperger's syndrome, and precipitated a rash of self-diagnoses. Though these conditions do share traits, there is a consensus that most geeks are arguably "variant normal" and do not exhibit autistic-spectrum behaviors. "Geeks" may exhibit an extreme professional or casual interest in computers, science, engineering and related fields, and may be introverted; however, they do not suffer from impairments per se. This does not imply that there is no overlap between "geeks" and Asperger's patients, but it should be noted that self-diagnosis is a dangerous practice, and one prone to error.
Criticisms
Some people, including some people diagnosed with Asperger's syndrome, argue that Asperger's syndrome is a social construct. Professor Simon Baron-Cohen of the Autism Research Centre has written a book arguing that Asperger's syndrome is an extreme version of the way in which men's brains differ from women's. He says that, in general, men are better at systematizing than women, and that women are better at empathizing than men. Hans Asperger himself is quoted as saying that his patients have 'an extreme version of the male form of intelligence'.
As a category claimed to have a clearly defined neuro-biological basis, Asperger's Syndrome probably has the same degree of validity as a whole host of other psychiatric labels such as ADHD, widely criticised by leading psychiatrists such as Peter Breggin and Sami Timimi, obsessive compulsive disorder (see OCD) and clinical depression, much promoted by the growing mental health sector and pharmaceutical industry. All the behavioural traits associated with this condition occur to varying degrees within the general population. People diagnosed with AS vary considerably in terms of intellectual, professional and social performance, range of interests, loquacity, conformism, hypersensitivity etc.. While a small minority may be genuine high-functioning autistics (with a communication and attachment deficit noticeable from early infancy) and much diagnostic confusion reigns among autism experts, no scientific proof exists of a link between severe Kanner's type autism and the geekish and slightly quirkish attributes of so many within our society. Subtle environmental, somatic and neurological differences can shape the development of our personality and our socialisation strategies. Among the AS-diagnosed, a large number have some form of dyspraxia leading to a childhood predilection for solitary activities over group activities. Much is made of the central role played by the theory of mind in the categorisation of the autistic spectrum, yet clearly within the general population there is a huge variation in relative levels of social naivety and self-centredness. Many of our social skills are acquired in early infancy through bonding with our mother-figure and then through play with peers. Environmental factors interfering with these formative experiences may have lifelong repercussions leading some to withdraw into their own world.
Another objection which has been put forward to this view is that, although AS is more common among males than females, females with AS do not necessarily come across as particularly masculine personalities, and some of them can show an exceptional interest in activities such as dancing. Yet again, what is perceived as a "masculine personality" may not be what Baron-Cohen had in mind by male intelligence, and dancing may be considered feminine only by certain social conventions. That dancing is considered a feminine pursuit clearly does not mean that a patient's interest in it must be motivated or directed by a non-systematic (presumably "female" in Baron-Cohen's work) brain structure.
Affectionate terms
"Aspy" or "aspie" is an affectionate term used by some with Asperger's syndrome to describe themselves. Others prefer "Aspergian", "Asperger's Autistic" or no name at all. Many who feel there is no significant difference between Asperger's syndrome and autism due to the spectrum analogous variances in autism may prefer the term "autie" or just "autistic" as a more general term.
International Asperger's Year
International Asperger's Year, 2006, marks the 100th anniversary of Professor Asperger's birth and the 25th anniversary of Dr. Wing's landmark paper. International Asperger's Year was conceived by the Asperger Adults of Greater Washington.
References
- The ADHD-Autism Connection: A Step toward more accurate diagnosis and effective treatment, by Diane M. Kennedy, ISBN 1578564980 (The aim of this book is to explore the similarities that attention deficit hyperactivity disorder (ADHD) shares with a spectrum of disorders currently known as pervasive developmental disorders.)
- Asperger's Syndrome — A Guide for Parents and Professionals by Tony Atwood. This book is considered to be the Bible as far as general AS books go.
- Martian in the Playground by Claire Sainsbury. This book is all about the schoolchild with Asperger syndrome.
- Freaks, Geeks and Asperger Syndrome (ISBN 1843100983) by Luke Jackson, with the book's structuring and editing done by his mother according to the Times's review of 16 August 2002. This book won the National Association of Special Educational Needs Children's book award. Luke Jackson and his family starred in the British TV program, My Family and Autism. Luke is 14 years old and has Asperger syndrome. He has a brother with dyslexia and dyspraxia, a brother with ADHD and a brother with classic autism. He also has three neurotypical sisters.
See also
- Autism rights movement
- Conditions comorbid to autism spectrum disorders
- Autism
- Picture thinking
- High-Functioning Autism (HFA)
External links
In the media
- Fresh Air with Terry Gross Program on Aspergers, May 5, 2004.
- The Infinite Mind Aspergers Syndrome: A Special Report (Part One), May 11, 2005.
- The Infinite Mind Aspergers Syndrome: A Special Report (Part Two), May 18, 2005.
- Geeks and Autism Wired
Community forum sites
- Asperger's Syndrome World Community Asperger's Syndrome World Community.
- Aspergia Promoting the development of an Aspergian cultural identity.
- WrongPlanet.net Asperger's Syndrome Support online resource and community for those with AS
- Fellowship of the Aspergian Miracle - Secret Society A place for Aspies and HFAs that would like to participate in deep discussions within the framework of respect, friendship, and mutual support.
- Fellowship of the Aspergian Miracle - Family Forum A place where parents and relatives of Aspies and HFAs can discuss Asperger Syndrome and High Functioning Autism with Aspies and HFAs.
- Spectrum Fairness A site for Spectrumites to defend standards of personal fairness and oppose social injustices in other autistic spectrum online communities.
- Fellowship of the Aspergian Miracle - Secret Shield For those Aspies and HFAs who have been bullied.
- Aspies for Freedom Site that has a positive approach to autism and focuses on autistic advocacy.
- AutismForum.net offers a discussion forum, articles, and a chat room for the Autism community.
- Aspergers Community Board offers a discussion forum for parents of AS children and teenagers, as well as for adults with Asperger's. Also offers pre-set searches for common queries.
- Aspergian PrideContains articles, web links, and forums that present positive views of autistic identity as a unique, meaningful culture and as a way of being.
- SpectrumHaven.com Site for kids and teens with Asperger's Syndrome
- AspieTALK (United Kingdom & Ireland) Discussion Forums & Chat Room for Adults & Teens in the UK & Republic of Ireland with Asperger Syndrome
Support groups
- ASPEN Asperger Syndrome Education Network
- Autism Society of America
- National Autistic Society, UK
- Autistics.org, resources by and for persons on the autistic spectrum
- ASPECT Australia Autism Spectrum Australia, for people on the autism spectrum and their families
- Asperger Adults of Greater Washington
Informational
- mayoclinic.com - Asperger's syndrome
- Outsider Insight: All in the Mind Authored by someone who has been diagnosed with Asperger's Syndrome himself this site takes a critical look at the presumptions and agenda of the growing autism sector linked as it is with the psychiatric establishment.
- World Wide Aspie Web Watch is an anonymous coalition of objective Aspie web watchers that checks and reviews websites, message boards, and resources designed expressly for people with various forms of high-functioning autism. Check daily for updates.
- Autism Assembly Coalition of people on the autism spectrum, websites and groups, part of the global autism rights movement.
- Fellowship of the Aspergian Miracle An informational site that has links the Fellowship of the Aspergian Miracle family of forums.
- Autistic Pride Day Official information site for Autistic Pride Day, June 18th each year.
- Autism Awareness Campaign UK
- Oops! Wrong Planet Syndrome
- Online Asperger Syndrome Information and Support
- Dallas Asperger Network for Information, Support and Help
- Online (informal) test for signs of Asperger's.
- Autism In Mind, Autism support website.
- Neurodiversity.com, The neurodiversity movement.
- AS-IF (aspergerinformation.net) Great resources about Asperger's.
- Autism and Computing, Autism spectrum resources
- A survival guide for people with Asperger syndrome, by Marc Segar.
- Aspies.co.uk, Personal site detailing interventions taken to help a child with Asperger syndrome.
- The Neanderthal theory of autism, A non-dysfunctional theory of autism and many other related conditions.
- An aspie quiz, A test aimed at the behavioral differences between non-autists and those on the autism spectrum.
- Quackwatch.org: Misconceptions about autism: Vaccines cause autism
- Autistic Advocacy
- Online Asperger Syndrome Information & Support
- AskAnAspie.com Offers information (written by a group of students at the University of Chicago who are on the autism spectrum) that is specifically designed for parents.
- International Asperger's Year listserv
- Sula Wolff, Beyond Asperger Syndrome Links between schizoid personality, Asperger syndrom and schizophrenia
- Autism Research Center: Other Tests
Humor
- Institute for the Study of the Neurologically Typical (a parody by people on the autism spectrum)
Schools
- Franklin Academy A boarding school for students in grades 8-12 geared specifically for students with Asperger's and non-verbal learning disabilities.
Literature
- The Curious Incident of the Dog in the Night-time: A Novel by Mark Haddon ISBN 0385509456
- The Adhd-Autism Connection : A Step Toward More Accurate Diagnoses and Effective Treatments by Diane Kennedy, Rebecca Banks, Temple Grandin; ISBN 1578564980
- Shadow Syndromes: The Mild Forms of Major Mental Disorders That Sabotage Us by John J. MD Ratey; ISBN 0553379593
- Understanding and Working With the Spectrum of Autism: An Insider's View by Wendy Lawson; ISBN 1853029718