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YODA Project

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Project to promote open data in clinical research

The YODA (Yale Open Data Access) Project is a Yale University project to promote open data in clinical research.

The YODA Project has served as a trusted intermediary in a variety of collaborative efforts to make scientific data more broadly available to researchers. It is a response to expanding demands for health information.

The YODA Project is currently partnering with Johnson & Johnson.. SI-BONE is also a partner. Inquiries for data availability for unlisted trials from these data holders can also be submitted.

This project is being examined as a pilot for a new way of sharing information.

See also

References

  1. Taichman, Darren B.; Backus, Joyce; Baethge, Christopher; Bauchner, Howard; de Leeuw, Peter W.; Drazen, Jeffrey M.; Fletcher, John; Frizelle, Frank A.; Groves, Trish; Haileamlak, Abraham; James, Astrid; Laine, Christine; Peiperl, Larry; Pinborg, Anja; Sahni, Peush; Wu, Sinan (28 January 2016). "Sharing Clinical Trial Data — A Proposal from the International Committee of Medical Journal Editors". New England Journal of Medicine. 374 (4): 384–386. doi:10.1056/NEJMe1515172. ISSN 0028-4793. PMC 4720169. PMID 26786954.
  2. Herper, Matthew (30 January 2014). "In Stunning Win For Open Science, Johnson & Johnson Decides To Release Its Clinical Trial Data To Researchers - Forbes". forbes.com. Retrieved 12 May 2015.
  3. Armstrong, Drew (31 January 2014). "J&J Sets Drug Data Free in 'YODA' Collaboration With Yale". bloomberg.com. Retrieved 12 May 2015.
  4. "Johnson & Johnson Announces Clinical Trial Data Sharing Agreement with Yale School of Medicine | Johnson & Johnson". www.jnj.com. Retrieved 22 August 2016.
  5. Hofheinz, Elizabeth. "Yale, SI-BONE Commence Data Transparency Project | Orthopedics This Week". ryortho.com. Retrieved 22 August 2016.
  6. "BioLINCC: Yale University Open Data Access Project (YODA)". National Heart, Lung, and Blood Institute. Retrieved 17 August 2016. Public Domain This article incorporates text from this source, which is in the public domain.
  7. Shaikh, Abdul; Mutscher, Gus (4 August 2014). "Innovators in Health Data Series: The Yale Open Data Access (YODA) Project - Health Data Consortium". Health Data Consortium. Retrieved 12 May 2015.
  8. Krumholz, Harlan M.; Ross, Joseph S.; Gross, Cary P.; Emanuel, Ezekiel J.; Hodshon, Beth; Ritchie, Jessica D.; Low, Jeffrey B.; Lehman, Richard (2013). "A Historic Moment for Open Science: The Yale University Open Data Access Project and Medtronic". Annals of Internal Medicine. 158 (12): 910–911. doi:10.7326/0003-4819-158-12-201306180-00009. ISSN 0003-4819. PMC 5459387. PMID 23778908.

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