| Formation | 1971 (1971) |
|---|---|
| Type | Nonprofit organization |
| Purpose | Sickle-cell disease Research, public policy, education and community service. |
| Headquarters | Baltimore, Maryland, U.S. |
| Region served | United States |
| President | Beverley Francis-Gibson |
| Website | www.sicklecelldisease.org |
The Sickle Cell Disease Association of America, Inc. (SCDAA) is a nonprofit organization with the sole purpose of supporting research, education and funding of individuals, families those who are impacted by sickle cell disease.
Mission statement
"To advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease."
History
The Sickle Cell Disease Association of America, Inc. originated in Racine, Wisconsin. Representatives from 15 different community-based sickle cell organizations came together at Wingspread, a community center, as guest of the Johnson Foundation. There was a common belief that there was a need for national attention to sickle cell disease. After a meeting, they created the "National Association for Sickle Cell Diseases". The name was changed in 1994 to the Sickle Cell Disease Association of America, Inc. Over the course of several years, the organization has grown into over 40 different branches. The organization has partnered with several different medical facilities, local and state government agencies to pursue national health care objectives. Some of the organization's partnerships include: National Association for the Advancement of Colored People (NAACP), National Institutes of Health (NIH), Health Resources and Services Administration (HRSA), Centers for Disease Control (CDC), United Way of America, and the Robert Johnson Foundation.
Areas of emphasis
- Research
- Public Health Education
- Professional Health Education
- Patient Services
- Community Services
- Support to Global Organizations and Practitioners
Events
The Sickle Cell Disease Association of America, Inc. hosts several events throughout each year. It hosts the Annual National Sickle Cell Walk with the Stars the weekend after Labor Day each year. The inaugural walk was held on September 6, 2014, at Lake Montebello in Baltimore, Maryland. This event typically will have a variety vendors, kid activities, prizes and celebrity guests.The Sickle Cell Disease National Convention is held annually during the first weekend of October in Baltimore's Inner Harbor. The event will feature themed experience, with prizes, awards, auctions and educational sessions.
Notable supporters
- Tionne 'T-Boz' Watkins - The National Celebrity Spokesperson for the SCDAA.
- Tiki Barber - The former NFL running back has sickle cell disease and does his part educating others.
- Prodigy - Hip Hop star promotes sickle cell awareness at different events, including the 2011 National Convention.
- Ryan Clark - NFL Super Bowl champion with the Pittsburgh Steelers.
- Devin McCourty and Ryan McCourty - Twins fight Sickle Cell Disease with Tackle Sickle Cell Organization.
- Kier "Junior" Spates - SCDAA National Celebrity Ambassador
- Larenz Tate - Actor is passionate about sickle cell awareness.
- Santonio Holmes - Runs benefit for son with sickle cell disease.
Branches and affiliates
Alabama
- North Alabama Sickle Cell Foundation - Huntsville
- SCDA - West Alabama Chapter - Northport
- SCDAA Central Alabama Chapter - Birmingham
- SCDAA - Alabama Chapter State Association - Mobile
- SCDAA - Mobile Chapter
- Sickle Cell Foundation of Greater Montgomery, Inc. - Montgomery
- Southeast Alabama Sickle Cell Association, Inc. - Tuskegee
- Tri County Sickle Cell Association, Inc. - Selma
Arizona
- Sickle Cell Anemia Society of Arizona, Inc. - Phoenix
California
- Sickle Cell Disease Foundation of California - Los Angeles
Colorado
- Colorado Sickle Cell Association - Denver
Connecticut
- Citizens for Quality Sickle Cell Care, Inc. - New Britain/Hartford
- SCDAA Southern Connecticut, Inc. - Bridgeport/New Haven
Florida
- SCDAA of Escambia & Santa Rosa Counties - Pensacola
- SCDAA of Levy/Marion Counties - Ocala
- SCDAA - Dade County Chapter, Inc. - Miami
- SCDAA - St. Petersburg Chapter
- Sickle Cell Association of Hillsborough County - Tampa
- Sickle Cell Disease Association of Broward County - Ft. Lauderdale
- Sickle Cell Disease Association of Florida, Inc. - Pensacola
- Sickle Cell Disease Association of Tri-County, Inc. - Orlando
- Sickle Cell Disease Association of Upper Pinellas/Pasco/Hernando Counties, Inc. - Clearwater
- Sickle Cell Disease Association of Volusia County - Daytona Beach
- Sickle Cell Foundation of Palm Beach County & Treasure Coast Inc. - West Palm Beach
- Sickle Cell Foundation, Inc. - Tallahassee
Georgia
- Sickle Cell Foundation of Georgia, Inc. - Atlanta
Illinois
- Sickle Cell Disease Association of Illinois - Chicago
Louisiana
- Baton Rouge Sickle Cell Anemia Foundation
- Northeast Louisiana Sickle Cell Anemia Foundation - Monroe
- SCDAA - Northwest Louisiana - Shreveport
- Sickle Cell Anemia Research Foundation - Alexandria
- Southwest Louisiana Sickle Cell Anemia, Inc. - Lake Charles
Maryland
- Maryland Sickle Cell Disease Association, Inc. (MSCDA)
- Sickle Cell Disease Association of America, Inc. - Baltimore
Massachusetts
- Greater Boston Sickle Cell Disease Association - Dorchester
Michigan
- SCDAA Michigan - Detroit
Nevada
- Nevada Childhood Cancer Foundation - Las Vegas
New Jersey
- The Sickle Cell Association of New Jersey, Inc. - Newark
New Mexico
- The Sickle Cell Council of New Mexico - Albuquerque
New York
- Queens Sickle Cell Advocacy Network - Queens Village
North Carolina
- Bridges Pointe Sickle Cell Foundation - Durham
- Community Health Interventions and Sickle Cell Agency, Inc. - Fayetteville
- Piedmont Health Services and Sickle Cell Agency - Greensboro
- SCDAA - Eastern North Carolina - Jacksonville
Ohio
- SCDAA - Ohio Sickle Cell & Health Association - Columbus
Oregon
- Sickle Cell Anemia Foundation of Oregon - Portland
Pennsylvania
- Children's Sickle Cell Foundation, Inc. - Pittsburgh
- SCDAA - Philadelphia/Delaware Valley Chapter
- The South Central PA Sickle Cell Council - Harrisburg
South Carolina
- James R. Clark Memorial Sickle Cell Foundation - Columbia
Tennessee
- Sickle Cell Foundation of Tennessee - Memphis
Texas
- SCDAA of Tarrant County - Fort Worth
- Sickle Cell Association of Austin and San Antonio Marc Thomas Foundation - Austin
Virginia
- Sickle Association, Inc. - Norfolk
References
- ^ "Home". Sickle Cell Disease Association of America Inc.
- "Welcome Walk with the Stars Participants". sicklecellnationalwalk.com. Archived from the original on 14 May 2014.
{{cite web}}: CS1 maint: unfit URL (link) - "TLC's T-Boz targets sickle cell disease". usatoday30.usatoday.com.
- "Tiki Barber sickle cell Archives". Xickle.
- "Archived copy". www.negenetics.org. Archived from the original on 20 October 2014. Retrieved 14 January 2022.
{{cite web}}: CS1 maint: archived copy as title (link) - "Ryan Clark News, Videos, Photos, and PodCasts - ESPN". ESPN. Archived from the original on 2 February 2009. Retrieved 14 January 2022.
- "The McCourty Twins". Tackle Sickle Cell.
- "Sickle Cell Disease Association of America, Inc. - News & Press". www.sicklecelldisease.org. Archived from the original on 16 September 2013. Retrieved 14 January 2022.
- McMillen, Matt. "Larenz Tate on Sickle Cell Disease". WebMD.
- "Holmes' son battles sickle cell disease". Newsday. 2011-11-12. Retrieved 2019-06-22.